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onethatcares

(16,165 posts)
Sun Dec 21, 2014, 01:10 PM Dec 2014

the second opinion and more

Thursday was our meeting at Moffit with Dr. Mofalo and after review, he just said they would have done things differently there. They would have done the surgery first and then followed up with chemo. As we did not have a second ECPT to show him, he told us we could start by doing blood work and then an MRI right then. My wife had to go back to work that day so we took the paperwork home and waited until Friday to do anything with it.

Now for the good part.

After the ECPT procedure on Friday, the gastroent doctor came in and said, "I have good news. Dr. Rosemurgy, with the Life Hope Center will have a much easier time removing this tumor than originally thought" For some reason, and we don't know how, the cancer is no longer in the crotch of her bileary duct but lower, in the tube. The imaging showed no expansion to the upper ducts which is way weird due to it showing there originally. I am walking on sunshine at this point.

We overnighted the imaging disc to Moffit and Rosemurgy today. We should be hearing from them after review Monday after 4 pm.

I cannot believe the relief I'm feeling.

The tumor still needs to be removed but as we hear it's always a matter of location, location , location. It's still a very risky operation but the odds in our favor just went up 10%.

Thanks to everyone for the positivity and kind words. I do not have enough words to tell you how much they are appreciated.

9 replies = new reply since forum marked as read
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the second opinion and more (Original Post) onethatcares Dec 2014 OP
... YvonneCa Dec 2014 #1
So wonderful for you to hear good news! Siwsan Dec 2014 #2
This message was self-deleted by its author Ruby the Liberal Dec 2014 #3
Great news that the surgery will be better. sinkingfeeling Dec 2014 #4
Best of wishes to you Tab Dec 2014 #5
Excellent news. KaryninMiami Dec 2014 #6
Reposting Ruby the Liberal Dec 2014 #7
we did and onethatcares Dec 2014 #8
Best of luck with your appointment on Monday ... slipslidingaway Dec 2014 #9

Response to onethatcares (Original post)

Tab

(11,093 posts)
5. Best of wishes to you
Tue Dec 23, 2014, 07:44 PM
Dec 2014

Unfortunately, you'll find everyone has their own opinion on how this should transpire. Choose the one that makes the most sense to you, both logically and life-style wise.

I wish you the best.

- t

Ruby the Liberal

(26,219 posts)
7. Reposting
Thu Dec 25, 2014, 07:58 PM
Dec 2014

Was advised I may have had too much personal information in the last post.

Just wanted to again encourage you in continuing to find help. Not every Doc is up to speed on every option out there. One Doc may specialize in gliomas but be woefully behind the times in ductal carcinomas.

I hope you all had a wonderful (and RESTFUL) Christmas day today.

onethatcares

(16,165 posts)
8. we did and
Thu Dec 25, 2014, 08:35 PM
Dec 2014

we have an appointment with the surgeon on Monday, 12/29. We'll probably get a surgery date then.

I hope your day was good as well. We have to take the good ones when we can.

back at ya

slipslidingaway

(21,210 posts)
9. Best of luck with your appointment on Monday ...
Sun Dec 28, 2014, 02:12 AM
Dec 2014

looking forward to hearing some better news for the New Year!



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