Reply #58: My son has spina bifida... [View All]

stemming from a neural tube defect (the defect was just farther down on the spinal cord). I joined a support group after he was born and spent so much time talking with families who waited to tell people they were pregnant until after the AFP test was done to determine of spina bifida or anecephaly were present. I don't blame them.

I chose to not have any more children (and didn't do the AFP so didn't know about the spina bifida until my son's birth). But if I had become pregnant I would have waited as well. An anecephalic child dies as soon as it is born, and with spina bifida children it can take a lifetime to know all the levels of disability (I know we're still discovering!)

You did the right thing for you and your baby and your loved ones. NO ONE HAS THE RIGHT TO JUDGE!!

You are in our families prayers.