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New California Law Prohibits Discrimination: Organ Transplants for HIV

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wiley Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Oct-05-05 01:24 AM
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New California Law Prohibits Discrimination: Organ Transplants for HIV
Organ Transplants for Patients with HIV

AMERICAN CHRONICLE
By California Political Desk

September 29, 2005

New California Law Prohibits Insurance Coverage Denials Based Solely on HIV Status

(West Hollywood) - AB 228, authored by Assemblyman Paul Koretz (D-West Hollywood), has been signed by Governor Arnold Schwarzenegger. The bill was passed by the Legislature in August with bipartisan support and is the first in the nation to prohibit insurers from denying coverage for organ transplants based solely on a patient's HIV status.

"The passage of AB 228 sends a message to the nation that patients with HIV should not be denied access to organ transplantation simply because of their HIV status. There are many reasons why a patient with HIV may not be suitable for a transplant, but the sole fact that they are HIV positive is no longer considered a legitimate reason at many transplant centers," said Assemblyman Koretz.

Historically, HIV-positive patients have not been considered suitable
candidates for organ transplantation due to their relatively shortened lifespan. Today, anti-retroviral medications have greatly extended the life expectancy of persons living with HIV infection, and studies have shown that organ transplants in qualified patients with HIV lead to outcomes similar to non-HIV infected patients.

Over the past few years California health plans and health insurers have been paying for transplants in patients with HIV who are deemed suitable by transplantation specialists. However, outside California some health insurers have continued to deny coverage because the procedures are deemed to be experimental in nature. Since these transplants have become possible, coverage denials in Iowa, Pennsylvania, Colorado, Maryland, New Jersey and California have been overturned through internal reviews or appeals to government authorities. Supporters of the California legislation say that because there have been only 44 transplants in patients with HIV in California, not every insurer in the state has encountered this situation and may repeat the mistakes that continue to occur in other states.

Ruel Nolledo is Co-Chair of the Southern California HIV Advocacy Coalition (SCHAC), a group of AIDS service providers and HIV positive individuals who sponsored AB 228. "These denials are based on outdated views of HIV as an imminently terminal illness and a lack of awareness about the rapidly advancing science in organ transplantation and HIV. Unfortunately, patients in need of a transplant simply don't have the time and energy to appeal an
unnecessary denial," said Nolledo.

Dr. Michelle Roland is a leading HIV and transplantation researcher with the Positive Health Program at San Francisco General Hospital and the University of California San Francisco. "UCSF has been at the forefront of addressing the scientific questions and developing clinical care models for these patients. Although we have not had problems with private insurance coverage in the last few years in California, our colleagues around the country have. The enactment of AB 228 ensures that California will stay at the forefront of compassionate and effective medicine for all our residents," said Dr. Roland.

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TaleWgnDg Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Oct-05-05 02:35 AM
Response to Original message
1. Uuummmm, thanks, Arnold, for signing this into law . . .
.
Uuummmm, thanks, Arnold, for signing this into law . . . it's a just and necessary statute. However, Arnold, are you attempting to suck up to the gay community and their friends, supporters, and families because you vetoed the California same-sex marriage law?


.
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NorthernSpy Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Oct-05-05 10:14 AM
Response to Original message
2. meanwhile, discrimination based on inability to pay continues...
... with the government's blessing.

No uninsured person should ever sign an organ donor's card. Dare to declare that the lives of affluent people are NOT more precious than your own!
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wiley Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Oct-05-05 11:58 PM
Response to Reply #2
3. Interesting and very troubling statement
Should uninsured people not participate in clinical trials of experimental treatments that may confer them clinical benefits based on the fact they are unlikely to be able to afford the drug once it is approved?

Also, would you support a law that prohibited individuals from going to other countries to receive organ transplants at a much lower cost regardless of where the organ came from?

I would support demanding universal health care that included organ transplant coverage and not depriving others of a chance at better health or life. That, of course would not change access to high standards of care by the uninsured or poor.
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LeftyMom Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Oct-06-05 12:39 AM
Response to Reply #2
5. If my donor card's at issue, I'm dead anyhow.
Edited on Thu Oct-06-05 12:58 AM by LeftyMom
You could feed my organs to the cat for all the good they'd do me at that point. Better they keep somebody alive.

At any case once somebody's got an illness serious enough to require a transplant, they can generally get coverage under Medi-Cal or a similar program, California's much better than most states about that sort of thing.

Even if they have private coverage, that hardly translates to being affluent. My mother has awesome medical coverage and may wind up on the transplant list someday. She's not "affluent" she's just a middle class woman with slightly above average pay, decent benefits (gov't job) and hepatitis C. I have decent medical coverage too and if we were any more "affluent" we'd qualify for food stamps. :eyes:
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wiley Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Oct-06-05 12:00 AM
Response to Original message
4. I also think that this will begin to force the issue of equity of access
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