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Maine girl with 'mermaid syndrome' dies at 10

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Starbucks Anarchist Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Oct-24-09 02:46 PM
Original message
Maine girl with 'mermaid syndrome' dies at 10
Source: AP

PORTLAND, Maine – Shiloh Pepin, a girl who was born with fused legs, a rare condition often called "mermaid syndrome," and gained a wide following on the Internet and national television, has died. She was 10.

Doctors had predicted she would only survive only for days after her birth at the most, but the girl, described by her mother as "a tough little thing," died at Maine Medical Center on Friday afternoon, hospital spokesman John Lamb said. She had been hospitalized in critical condition for nearly a week.

Being born with "mermaid syndrome," also known as sirenomelia, meant that the Kennebunkport girl had only one partially working kidney, no lower colon or genital organs and legs fused from the waist down.

Some children who have survived sirenomelia have had surgery to separate their legs, but Shiloh did not because blood vessels crossing from side to side in her circulatory system would have been severed. She had received two kidney transplants, the last one in 2007.

Read more: http://news.yahoo.com/s/ap/20091024/ap_on_en_tv/us_obit_pepin
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CaliforniaPeggy Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Oct-24-09 02:49 PM
Response to Original message
1. How sad...
Safe passage to her...

I hope her family and friends have a lot of support during these tough days of mourning...

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Angry Dragon Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Oct-24-09 02:53 PM
Response to Original message
2. It always saddens me most when children die
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GreenPartyVoter Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Oct-24-09 03:01 PM
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3. :^( My heart goes out to her family.
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peace13 Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Oct-24-09 03:15 PM
Response to Original message
4. Tears for this sweet child and her family.
She was one tough cookie. Please let her next stop be easier.
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theHandpuppet Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Oct-24-09 03:46 PM
Response to Original message
5. I recently watched an interview with her
She was a truly remarkable child. Condolences to her family and to all who loved her.
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tonysam Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Oct-24-09 04:34 PM
Response to Reply #5
6. I agree. Just because one is born "different,"
that doesn't mean the person has nothing to contribute to this world. Apparently Shiloh was a very happy, very well-adjusted girl.
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Dogmudgeon Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Oct-24-09 07:57 PM
Response to Original message
7. I thought she had a good chance to survive
To adulthood? To old age?

Shiloh was one tough little dame, all right. It's sad that she lost the fight. But at least the next kid born like that will have that much more of a chance of making it because of Shiloh.

Here's to Shiloh Pepin: and a hearty "Fuck You!" to Death.

--d!
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shanti Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Oct-24-09 11:31 PM
Response to Original message
8. oh no...:-(
her story on TLC was so inspiring....RIP, little lady....
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Erebus67 Donating Member (78 posts) Send PM | Profile | Ignore Sat Oct-24-09 11:49 PM
Response to Reply #8
9. I just saw the show a week or so ago. My heart and prayers go out to her family. n/t
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oldtime dfl_er Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Oct-25-09 02:06 AM
Response to Original message
10. She was a fighter
It's of little help to say that she survived about a decade longer than doctors thought she should. But she brought a lot of joy, inspiration and education to a lot of people in that time. RIP.
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Barack_America Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Oct-25-09 04:06 PM
Response to Original message
11. Sounds like her parents must have been fighters too.
My condolences to Shiloh's entire family for their loss.
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unkachuck Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Oct-25-09 08:55 PM
Response to Original message
12. '...described by her mother as "a tough little thing,"'
....rest in peace, little one....the world's a better place for you having been here....
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