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WTF? This does NOT make sense.

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TZ Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 10:34 AM
Original message
WTF? This does NOT make sense.
So despite me upping my interferon dosages AND me actually feeling better, I went to the hematologist this morning and discovered that not only have my platelets not gone down, they actually went back UP! I'm near that dangerous number of 1500 where the bleeding risk becomes very real again (1452). Time to get in contact with the Mayo doc..I'm thinking its time to up the interferon again..although my hematologist wants me to go back on the chemo drug (effective but nasty). Ick, pooey!
It sucks bad enough to have a rare, chronic disease...but even worse to have a disease that is NOT well understood even by the specialists!
:banghead:
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Gormy Cuss Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 12:22 PM
Response to Original message
1. Well that just stinks, doesn't it?
I hope that the Mayo doc has a good remedy.
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TZ Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 12:26 PM
Response to Reply #1
4. Ugh.
He wants me on BOTH medications (interferon and the chemo drug Hydrea) until I work up to the full dose of interferon...:scared:
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Pierre.Suave Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 12:23 PM
Response to Original message
2. I hope they get it figured out
I just started on Methotrexate today for my Arthritis...

How much fun am I in for...
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HiFructosePronSyrup Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 12:25 PM
Response to Original message
3. Have you tried crystal therapy?
I blame the Insuro-Pharma-Jew conspiracy for your troubles.
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Chan790 Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 03:48 PM
Response to Reply #3
13. umm...
what do Jewish people have to do with insurance and big-pharma or the OPs health issues?
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TZ Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 03:51 PM
Response to Reply #13
14. He's teasing me
I'm jewish (and therefore run the World Bank) and I work in the biopharmaceutical industry, therefore I am a shill for Big Pharma..Or at least thats what a big fraction of the Health forum thinks..Its a skeptics joke...;)
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madinmaryland Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 12:27 PM
Response to Original message
5. Sorry to hear about that. Do you need to visit a homeopathic doctor??
:hi:
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TZ Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 12:28 PM
Response to Reply #5
6. Naw.
I think I just need to find a good tea leaf reader...;-)
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madinmaryland Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 12:33 PM
Response to Reply #6
7. Some people would say it's all in your mind.
:wtf:

:eyes:

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SoxFan Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 02:23 PM
Response to Reply #5
10. I don't care what a doctor does in his own bedroom
That's his own....what? Oh.

Nevermind

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TZ Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 03:46 PM
Response to Reply #10
12. ....
:rofl:
Thanks for the laugh...:hi:
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TZ Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 12:43 PM
Response to Original message
8. Damn.
Higher dose of interferon and FULL DOSE of hydrea..God..I'm gonna feel like shit in a couple of days...:banghead:
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Parche Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 01:45 PM
Response to Original message
9. Does Turtleandsue Need A Hug?
:hug: :hug: :hug: :hi:
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lightningandsnow Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 03:45 PM
Response to Original message
11. Hugs.
:hug:

Hope everything works out soon.
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Symarip Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 03:54 PM
Response to Original message
15. Bob Beck did some interesting blood type things.
Google his name if you're interested in reading something different.
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NJmaverick Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 04:26 PM
Response to Original message
16. ....
:pals: :hug:
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applegrove Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jul-08-08 04:33 PM
Response to Original message
17. so sorry for all the complications. You seem to have the right spirit though. Best wishes
for a speedy recovery.
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CreekDog Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 07:48 AM
Response to Original message
18. hey you
:hug:
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