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My Sister and Trigeminal Neuralgia ("the suicide disease") - call for vibeage

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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 09:06 AM
Original message
My Sister and Trigeminal Neuralgia ("the suicide disease") - call for vibeage
Wikipedia on trigeminal neuralgia: http://en.wikipedia.org/wiki/Trigeminal_neuralgia

She took today off because "the face cancer," as we jokingly call it, is bad, worse than it's ever been. I don't know if she's ever taken a full day off just for the face cancer.

She finally broke down and asked for narcotics. She hates narcotics. The best drug she's tried was on its way to ruining her liver. Jesus fucking christ . . .

She's not at the end of her rope yet, because she has yet to see a surgeon or radiologist. There are several surgical procedures and one "gamma knife" procedure to consider.

Please send good thoughts or whatever you do, for my sister. Her name is Marie.

Thank you, generous people
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LeftyFingerPop Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 09:10 AM
Response to Original message
1. Bertha...I have never heard of this before now...
and it sounds absolutely terrible.

Many healing vibes and good wishes for Marie.

The things that humans sometimes suffer with...

:grouphug:
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:14 PM
Response to Reply #1
15. Thank you, Lefty
:hug:
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Tuesday Afternoon Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 09:15 AM
Response to Original message
2. ~~~ vibes for your sister, give her strength, peace and healing ~~~
:hug:
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:15 PM
Response to Reply #2
16. Thank you, T.A.
:hug:
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lightningandsnow Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 09:31 AM
Response to Original message
3. Sending Marie lots and lots of vibes...
and you too, Bertha. :hug:
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:15 PM
Response to Reply #3
17. thank you, L/S
:hug:
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Rosie1223 Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 09:37 AM
Response to Original message
4. Vibes for your sister
I'm sorry she's in so much pain.
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:15 PM
Response to Reply #4
18. thank you, Rosie
:hug:
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LynzM Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 09:57 AM
Response to Original message
5. Oh Bertha...
God, that sounds so hard to handle... much love and many hugs to your sister... :hug: :hug: :hug: Good things her way, from me...
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:16 PM
Response to Reply #5
19. thank you, Lynz
:hug:
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Gormy Cuss Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 10:44 AM
Response to Original message
6. Vibes for your sister
and for the future, hopes for a surgical procedure to alleviate her pain .
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:16 PM
Response to Reply #6
20. thank you, Gormy
:hug:
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fizzgig Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 10:54 AM
Response to Original message
7. healing vibes for marie
:hug: for her and :hug: for you, bertha.
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:16 PM
Response to Reply #7
21. thank you, fizzgig
:hug:
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Richardo Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 10:58 AM
Response to Original message
8. My god, that's a horrific affliction
I hope she gets the help she needs to end it :hug:
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:17 PM
Response to Reply #8
22. thank you, Richardo
:hug:
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GreenPartyVoter Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 11:25 AM
Response to Original message
9. I have the utmost sypathy for her. Chronic pain is one of the worst things
to try and live with. (That goes for chronic emotional pain as well.)

:hug:
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:17 PM
Response to Reply #9
23. thank you, GPV
:hug:

(it is indeed, any pain)
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KamaAina Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 01:52 PM
Response to Original message
10. Auwe for sis Marie!
I know someone who has that; it came along with his MS. He actually described being close to suicide in an article about why he eventually turned against physician-assisted suicide.

:( :scared:
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:18 PM
Response to Reply #10
24. thank you, Mark
:hug:
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foxfeet Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 02:36 PM
Response to Original message
11. Good vibes en route!
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:18 PM
Response to Reply #11
25. thank you, foxfeet
:hug:
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GoddessOfGuinness Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 02:55 PM
Response to Original message
12. Sending vibes for Marie...
This sounds like agony personified...
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~>
:hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug:
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~>
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:21 PM
Response to Reply #12
26. thank you, Goddess
:hug:
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blueamy66 Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:02 PM
Response to Original message
13. Sending good vibes and positive thoughts out to your sister.
:hug:
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:21 PM
Response to Reply #13
27. thank you, blueamy
:hug:
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jeff30997 Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:10 PM
Response to Original message
14. OMG !
That's really sad.(((Vibes)))
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:22 PM
Response to Reply #14
28. thank you, jeff
:hug:
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CaliforniaPeggy Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:26 PM
Response to Original message
29. My very best vibes for Marie...
May she very soon find healing and relief from this scourge...

Vibes to you as well, my dear Bertha, for standing by her in this awful and painful time...

:hug: :hug:
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Bertha Venation Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 03:27 PM
Response to Reply #29
30. thank you, Peggy
:hug:
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susanr516 Donating Member (823 posts) Send PM | Profile | Ignore Fri Aug-14-09 03:33 PM
Response to Original message
31. Good vibes for Marie, and some for you, too nt
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Dystopian Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 05:02 PM
Response to Original message
32. Dearest Marie...
My thoughts are with you...
My heart goes out to you....
May your doctors find the answer....

I'm so sorry, Bertha...
I know how hard it is to stay strong for someone you love...:hug:

peace & love to you both~
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AllenVanAllen Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 05:08 PM
Response to Original message
33. I wish the best for your sister.


I hope Marie's suffering can end soon.
Peace :hug:
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BlueIris Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 05:09 PM
Response to Original message
34. ((((( Bertha )))))
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latebloomer Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 06:35 PM
Response to Original message
35. Oh, how terrible!
I hope she can find a solution, and soon.

Sending all my best wishes.
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auntAgonist Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 08:32 PM
Response to Original message
36. wow K.
I'll be sending good thoughts best vibes and hopes for your sister. I'd never heard of such a disease before.

I'll keep Marie close.

aA
kesha
:hug: :loveya: :hug: '

:grouphug:
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ThomCat Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 08:33 PM
Response to Original message
37. Wow. Lots of Good Vibes for your sister.
:hug: :loveya:

I've never heard of that before. It sounds like hell to deal with. I'm very sorry she has to go through that. :(
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LadyoftheRabbits Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 08:45 PM
Response to Original message
38. Bertha, my thoughts are with your sister. I have TN too. (This is Lizziegrace)
Edited on Fri Aug-14-09 08:46 PM by LadyoftheRabbits
Mine is atypical - throbbing like toothaches. I had root canals on 14 teeth over 10 years before I was finally diagnosed.

I your sister ever needs a shoulder, this one knows exactly how she feels.

:hug:
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Demoiselle Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 08:56 PM
Response to Original message
39. Marie is in my prayers. I am so sorry.
I've never heard of this either. Sending as many positive vibes as I can.
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Strong Atheist Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 08:57 PM
Response to Original message
40. Will add it to the next MILESTONES.
:hug:
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abbeyco Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-14-09 09:09 PM
Response to Original message
41. All the vibes my doggie & I can muster are
on their way to you and your dear Marie.

I will keep good thoughts and hope all will be well.

abbeyco :hug:
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Flaxbee Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-15-09 12:15 AM
Response to Original message
42. this sounds awful, your poor sister!
And you, who has to see her suffer.

I'm so sorry, Bertha. Sending strong vibes her way. I can't imagine the pain.
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onestepforward Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-15-09 01:09 AM
Response to Original message
43. Vibes for your sister. I hope she can find some comfort.
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kentauros Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-15-09 01:20 AM
Response to Original message
44. I will send some energy healing right away
:hug: for Marie and you

Although I understand dental-root pain, even that's not as bad. It only gives me a "taste" of chronic and debilitating pain.

One thing, though, in having been joking about kudzu lately, I have learned that it is good at strengthening the liver. Perhaps find out about that and maybe she could take the drug that isn't so good for the liver while taking a natural substance that makes it better again :)
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Sugarcoated Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-15-09 01:24 AM
Response to Original message
45. Done.
And a cyber :hug:
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elleng Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-15-09 02:16 AM
Response to Original message
46. Prayers, Light, and Vib4es for your sister.
It sounds awful.
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SeattleGirl Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-15-09 03:30 AM
Response to Original message
47. Vibes for your sister, Bertha
And to you and all who care about her. :hug:

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Odin2005 Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-15-09 03:47 PM
Response to Original message
48. OMG, that's awful. Vibes to your Sis!
:hug:
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joeybee12 Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-15-09 03:50 PM
Response to Original message
49. Vibes coming your way!
:grouphug:
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Pool Hall Ace Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-15-09 07:19 PM
Response to Original message
50. Holy hell, that sounds awful. Vibes for Marie
and of course, you too. :hug: :hug:
(((((((((((((((((((((( Marie )))))))))))))))))))))) (((((((((((((((( Bertha ))))))))))))))))
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rurallib Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-15-09 09:31 PM
Response to Original message
51. my best good vibrations
hope it helps.
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BuelahWitch Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-15-09 10:34 PM
Response to Original message
52. Vibes coming for Marie
:hug:
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AwakeAtLast Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Aug-16-09 12:12 AM
Response to Original message
53. They are on their way!
:hug:

I have never heard of this. I will keep you and your sister in my prayers.

:hug:
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KT2000 Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Aug-16-09 02:48 AM
Response to Original message
54. Good vibes for Marie
Wow - I have never heard of this - I really feel for her.
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