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Edited on Wed Jun-08-11 06:47 PM by MineralMan
I first got these things in 1991, with the first headache happening in Mexico, as my fiancee and I were enjoying seven days together nonstop to see how we did around each other 24 hours a day. That first cluster lasted 9 months, with several excruciating headaches every day and nothing to do about them. My family doctor didn't know what they were, so I had x-rays, cat scans, MRIs and other stuff...all to no avail.
Each headache is very similar to a brain freeze headache from eating too cold ice cream, but they last for half an hour or more. Amazing pain.
Finally, toward the end of that first cluster, I discovered what I had, by doing my own research. Oxygen tanks came to my house, and I could abort each headache in about 10 minutes. Then, they went away as suddenly as they started, only to reappear a year later, again just as suddenly. This time I saw a neurologist, a headache specialist. We tried one thing after another, without much success, including a medication used to stop post-partum bleeding in women. Nobody researches these headaches, because they aren't life-threatening, really, so it was all hit or miss as far as treatments went.
So, every year or two, I'd get to suffer for a few months. Wake up every couple of hours, head for the oxygen tanks, then go back to sleep, only to wake up again. Luckily for me, the headaches almost never occurred during the day, so I've always been able to continue working. But, the workday over, it was back to the cycle of headaches and oxygen and more headaches.
The doctors all said these things generally faded away as you get older. It was three years before this latest round came on. This time, though, I had a new tool. Sumatriptan (generic Imitrex), taken daily about half an hour before the first headache predictably would occur, would block the headaches for several hours. It's all off label, and outside of the patient instructions, but an amazing thing happens. After about a week of that, you can stop taking it and the headaches fade away and stop. It's a freaking miracle, for me at least.
Maybe this will be my last cluster. Maybe I'll never have these again. That would be a good thing. But, I'll keep a full tank of oxygen in the basement, just in case. That gives me time to get into the doctor's office and get the sumatriptan.
Life's interesting. All sorts of things come along to interrupt your normal routine. Some are worse than others. Some are deadly. Cluster headaches aren't deadly, but they're a stone bitch. I'm glad I've finally found something that helps end the cycle. Maybe, at 65, I'll have outgrown them. That'd be very good. If you know someone with these headaches, give them a hug.
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