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Edited on Sat Aug-25-07 02:19 PM by sfexpat2000
mailed out yesterday to the grad school. Oh, ambivalence! Go Cheney yourself! This thing gets mailed today in some form.
Feedback appreciated. :hi:
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In the summer of 1994, I had been advanced to candidacy in the doctoral program in English at Berkeley. That means, I’d finished my coursework, my language tests and passed my Oral Examination. I was in the process of writing a prospectus when I married my husband. It seemed like a good time to begin a new marriage. We both came from Latino families, shared many intellectual interests, not the least of which were jazz and popular culture, and had known each other on and off for about twenty years.
What neither of us knew was that somewhere during those twenty years, my husband suffered the onset of a personality disorder. No one else seemed to know it either. His formal diagnosis was depression and he was in therapy for that with a prominent psychiatrist here in San Francisco.
The first time I witnessed a psychotic episode in my living room, it’s likely that the time I spent studying Object Relations in a working group at Cal saved my life. Although I was in the English Department, I survived the Theory Wars of those years by reading Freud, Klein, Winnicott and others with Janet Adelman and Nancy Chodorow. Janet had studied with Winnicott herself and she and Nancy and a group of Bay Area clinicians as well as academics from other disciplines at Cal met once a week with graduate students in the evening. We had very lively discussions about this British school that was so out of favor during the day in our curriculum. In any case, the work I did with that wonderful group stood me in good stead when my husband went into a paranoid state that night because although I had very few tools at the time, at least I understood, roughly, what was happening for him and was able to contain that very dangerous situation to a degree.
I spent most of the next eight years trying to get appropriate care for him while I supported us and while I tried to keep his case in the arena of mental health care and out of the criminal justice system. Because he was unable to work, I had to leave Cal in order to support us. That was a loss but my extended family has always come first so there was no question at that time what was more important to me, my dissertation or my family.
Doug’s story has been extensively covered in the press, and even on cable because he was a successful, well known comedian. One night in 2001, our family headlined CNN ahead of the Pope and the Boy Scouts. And even though friends questioned the wisdom of going public in that way, even then I knew that the coverage was an opportunity to reframe mental illness for the public and not to mention, for Doug and for our family. We participated in a live chat after that segment and all in all, I’m satisfied we made the right decision both for ourselves and for the community of families struggling to find care, let alone, trying to counter stigma.
What hasn’t been covered very well is the struggle most families that deal with mental illness have on their hands – trying to manage at home, trying to access care, struggling to stay connected to community. To say we are thrown on our own resources is such an understatement that it borders on comedy.
But it is precisely because our families have so little support as families that I had to develop the habit of independence and a support network. Doug wasn’t exactly an equal partner in that effort but it’s equally true that I learned the most important lessons of my life from him and from how he coped with a society that mostly wanted to ditch him.
During those years, I had to do a great deal of research on everything from drug interactions to crisis prevention, management and resolution. I reached out to anyone I could contact, mostly via the internet and also, all over the world. There were two projects in particular that would prove very useful for me, for our family and for the underserved community of families dealing with personality disorders. The first one was an internet peer support group I put together. I’d been on other lists that were mostly for the “okay” people – in other words, for spouses of Borderlines, for their partners or other relatives. But, after a time, it seemed clear to me that those groups more or less just duplicated the disruptive dynamics in our families. So, I started a discussion list for anyone who was dealing with BPD – whether it was our own or whether we were simply “sharing” a family member’s situation. I had no idea if it would work. That group is now six years old. It’s worked very well as a mixed group and often as a manageable bridge from internet discussion to actual treatment in “real” life.
The second project was a book, a snapshot of the progress of our family over the period of one year, taken from my correspondence to our support group. It’s a little train wreck as a book. I wrote it before Doug was in any way stabilized so I had to write during the days he was decompensated or at night after work. I couldn’t find an editor willing to take it on, and the printer botched the binding so it couldn’t be sold. But that little book has gone all over the world to families that needed support and that wanted to think along with me how we could best manage our situation. I gladly mailed it out because it seemed to me that widening the network of supported and supportive families was in itself a project worth the effort and expense.
Thinking back to those years, it’s possible that the most important thing I learned was the habit of activism and the strength inherent in collaboration. Had I remained passive and misguidedly “respectful” of Doug’s situation and the professionals he interacted with, he’d most likely be in prison right now, instead of stable, working and also, active in his community.
And it’s probable that without experiencing that level of need and isolation and danger, I wouldn’t have become active myself not only on our behalf, but on behalf of the community. When I realized that if this was happening to our family, it was happening to many families, I promised myself I would help find resources for anyone who needed them. And that decision changed my life in a profound way.
Doug and I are no longer married, although I make myself available to support him as needed. He seems to do better without the demands of marriage. And since our marriage ended, I’ve had a great deal of time to reflect on what I learned during the course of that relationship.
I learned how to withhold my reactions. How to reframe a concern, how to predict a crisis, how to use communication tools like SET. How to listen to anyone and anything. How to appreciate the value of the person in front of my own nose, not matter how superficially difficult that person may be to address in the moment. So, after my marriage ended and I was no longer writing comedy and producing events for and with Doug, it seemed to me that it would be a shame to waste that life experience, to waste the skills I learned dealing with our personal situation. It became clear to me that while my training was in literary criticism and Shakespeare, my attention was still with our families, dealing with so much barehanded in their living rooms. I’d like to work on that.
Elizabeth Ferrari San Francisco August 25, 2007
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