damn it. von Willebrand

my baby, (14yo) already has chron's disease. she is doing fine physically, but is not coping with it all that well mentally. refuses to take meds, etc. well, talked to the pediatrician this morning, and apparently she also has von Willebrand. she has horrible periods, which is what took us to the doc.
i know nothing about this, really, except what the doc said- it is a platelet problem that causes clotting failure. not that serious. the google says hereditary, although at this point i think we need to stop using that term and just say genetic. i think that genetic damage is more likely the point, as i know of nothing like this in either family, but i do know that i was exposed to some horrible pollution as a kid.
anyway. poor kid. god damn. the hits just keep on coming.
also, my dog apparently has epilepsy. i feel like i have some sort of reverse midas touch or something. doomed to spend an eternity in waiting rooms.

:(

I feel bad for any kid with chronic health problems.

Are you giving your dog anti-epilepsy meds? I don't know how vets treat epilepsy.

she goes through children's memorial (one of the world's great hospitals) for all her med stuff, and they have psychs that specialize in sick kids. we are in the queue, and i think when she gets this news, she will go along. she has been kinda resistant up to now.

so, the dog is pumped up on phenobarbytal right now, and sleeping on the couch. we spent the morning at the vet. i have a sick suspicion that it is not epilepsy, but a brain tumor. she is more out of control of her muscles that really seizing. and the seizures last tooooo long. we are giving the meds a shot. but it is pretty hard to hope. epilepsy is pretty treatable. but....

Childrens will be able to help you with that. I understand how you feel about genetics and waiting rooms. My son was diagnosed with Dermatomyosits in January of 1991 and we spent 15 years in and out of Childrens Los Angeles. I also believe that exposure to certain chemicals are a factor in many autoimmune disorders. Feel free to pm me if you just need someone to vent to.
peace and prayers