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I was just diagnosed with DFS. I need support and good feelings.

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Tom Yossarian Joad Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 07:44 PM
Original message
I was just diagnosed with DFS. I need support and good feelings.
DFS.

Dancing Feet Syndrome.

The results of untreated RLS (Restless Leg Syndrome).

I started noticing it when I started Mamba's while standing in line. Then, whenever I saw an attractive woman, I'd start a Tango with an invisible partner. When I started slam dancing at a Board Meeting, I knew it was time to see a Doctor.

Thanks to the helpful and informative advertisements by Big Pharm, I knew what the problem was and informed my Doctor (saving me money and his time... No unnecessary tests). He then prescribed 30 days of Bodacious B which has not quite stopped my DFS, but has certainly made me feel much better about it.





Is anyone else here concerned about Mass Pharm ads and how they are spending millions on drug ads that might affect 1 in 1000 of us? Are they inventing diseases for us now?

Cheers,

Your Dancing Fool
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Oversea Visitor Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 07:46 PM
Response to Original message
1. OK here play this
"Saturday Night Fever"
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The Backlash Cometh Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:28 PM
Response to Reply #1
23. Heretic. The serious dancers go for some MOOOOOTown.
Edited on Sun May-07-06 08:28 PM by The Backlash Cometh
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Oversea Visitor Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 07:46 PM
Response to Original message
2. Or Dancing Queen by ABBA
:rofl:
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Tom Yossarian Joad Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 07:48 PM
Response to Reply #2
3. OMG! You ought to see what my feet are doing at just the thought!
LOL!~
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Oversea Visitor Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 07:57 PM
Response to Reply #3
11. Ok me make you think of DICK
Here another song by ABBA
"Money Money Money"
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antigone382 Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 07:48 PM
Response to Original message
4. I have a treatment for RLS...I call it walking. N/T
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Ms. Toad Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:28 PM
Response to Reply #4
24. Sorry. Doesn't work.
I've had RLS for decades. It's not the most serious thing around, but it is not a joke and walking doesn't resolve anything other than the mildest symptoms.

In the past I have taken medication for it (Q-VEL - which is Quinine, Vitamin E and Lecithin), but the medication caused severe ear ringing so I had to stop. Now when it wakes me out of a sound sleep, and won't let me return to sleep, I just overload the nerve endings (i.e. I cause myself so much temporary pain that the nerve endings in the affected area at least temporarily stop transmitting the RLS sensations). Not quite shooting myself (as another poster suggested), but when it has awakened me several nights in a row that thought - or at least shooting my ankles - is not necessarily an unattractive one.
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antigone382 Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:38 PM
Response to Reply #24
25. Sorry...couldn't resist a bad punch line.
I don't mean to denigrate your problem, as I'm sure it has affected your life adversely. It just angers me that they can spend however many thousands or even millions of dollars on an advertizement for a drug that will only help a tiny fraction of the population (the definition of "help" being rather loosely enforced, here), with a non-life-threatening illness, and then be so uselessly enslaved to their own greed when it comes to combatting AIDS and other serious illnesses that are killing millions of people worldwide.
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Ms. Toad Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:56 PM
Response to Reply #25
28. To give it a different perspective...
My mother, a breast cancer survivor, feels about AIDS the same way you feel about RLS. In the US, at least, breast cancer is a much more prevalent killer, yet far more money/PR/attention has been paid to finding a cure for AIDS than to treating/preventing breast cancer.

I can tell you that when I tried Q-VEL for the first time, after being made aware of it by an advertisement, I had the first good night's sleep in weeks. The impact of sleep deprivation (which almost invariably results from RLS) cannot be underestimated.

We need to work at creating a bigger health care pie, not fight amongst ourselves over whose disease is most worthy of attention.
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Misskittycat Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 09:03 PM
Response to Reply #28
30. Well said. n/t
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antigone382 Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 09:11 PM
Response to Reply #28
31. That's a pain I can share with you...
My grandmother died of breast cancer when I was sixteen. I actually thought of mentioning it in my post before, but went with the AIDS example instead. Watching my grandmother die was a huge factor in my growing disillusionment towards the pharmaceutical industry. After putting her on HRT without fully studying the negative effects, they kept throwing some new treatment for her cancer at her, for three years...they'd tell her she was better and she'd get sick again, over and over. I mean, I know that some of that is just the nature of cancer; it keeps coming back. But the way they kept filling her with false hope--hope that was disproportionate to the level of evidence really supporting these treatments, made me really bitter--and what's worse, this all happened after she'd been a nurse caring for premature babies for her entire life, placing her trust in the medical industry.

"We need to work at creating a bigger health care pie, not fight amongst ourselves over whose disease is most worthy of attention."

That's a really good point. My anger isn't at the sufferers of any disease, it's at an industry that is so important to the welfare of the world, but which chooses to look for the most profitable diseases to treat, rather than the most damaging--and then uses treatments that in the end are either ineffective, or create worse or more dangerous side effects than what the sufferer was dealing with in the first place.
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Arkansas Granny Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 07:49 PM
Response to Original message
5. Is this related to Steve Martin's "Happy Feet" syndrome?
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Tom Yossarian Joad Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 07:52 PM
Response to Reply #5
6. Oh, god, yes! I wondered where that had come from!
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roguevalley Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 07:55 PM
Response to Reply #6
9. my mom has it bad and I have it a bit. it makes you want to shoot
Edited on Sun May-07-06 07:56 PM by roguevalley
yourself. go here: http://www.rls.org/NetCommunity/Page.aspx?&pid=354&srcid=261

Of course, it you're just happy, then nothing can save you. ;)

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Tom Yossarian Joad Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 07:59 PM
Response to Reply #9
12. Don't diss me on this, I have Spine problems that do things to my
legs that make me wish that it the description of RLS. Nothing like having an unexpected cattle prod stuck into your thigh in the middle of whatever.

It's life.

Laugh at it.
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havocmom Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 09:42 PM
Response to Reply #12
33. Oooo, I know that feeling
One reason for moving from a large city... less people hear me screaming at 3 AM now
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Misskittycat Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 09:03 PM
Response to Reply #9
29. I've been taking the advertised drug, Requip, for 8 months now, and it's
an incredible help for a really crappy disorder that does make you want to shoot yourself. Luckily, Restless Legs Syndrome has gotten a bit more attention recently. The website posted by roguevalley is a good site. It's a lot worse than just having the need to keep moving. Untreated, it completely robs you of sleep for most of the night -- and this can go on for weeks or months at a time.

Having said that, I hate Big Greedy Pharma, too. I just happen to have benefited from this drug and another breakthrough drug 25 years ago (in which I was a guinea pig).
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Tom Yossarian Joad Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 07:55 PM
Response to Reply #5
10. Holy cow, there's a movie called Happy Feet" coming in November...
http://www2.warnerbros.com/happyfeet/

Robin Williams and Nicole Kidman.
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HysteryDiagnosis Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 07:55 PM
Response to Original message
7. While this is funny..... the point you make is not, and people here
should be aware of the following if they are taking anything that the FDA has said is "safe".


http://www.findarticles.com/p/articles/mi_m0FDN/is_2_7/ai_85522989

Many of the top 100 drugs prescribed in the United States have been shown to deplete a variety of nutrients. For instance, did you know that the HMG-Co A reductase inhibitors Lipitor, Mevacor, Pravachol, and Zocor, as well as the beta blockers, Toprol, and Lopressor, all deplete coenzyme Q10, a nutrient essential to ATP production in cellular mitochondria? It has also been demonstrated that both oral and inhaled corticosteroids, such as hydrocortisone, Prednisone, Azmacort, Flonase, and Serevent, deplete several important minerals, folic acid, and vitamins C and D. The popularly prescribed histamine agonists Pepcid, Tagamet, and Zantac can deplete folic acid, B vitamins, calcium, iron, zinc, and vitamin D. The second edition of Drug-Induced Nutrient Depletion Handbook includes detailed information on these drugs and nearly 1,000 more, and is a valuable reference guide addressing drug-induced nutrient depletion in humans. It expands on the information found in the first edition and the authors' intent is to provide health professionals and the lay public access to the large body of credible scientific research pertaining to drug-induced nutrient deficiencies.

The book is divided into four main sections, in addition to the introduction, appendix, and alphabetical index. The first section is an alphabetical listing of drug monographs by brand and generic name, providing synonyms, pharmacological class, nutrients depleted by the drug, the scientific basis for this information, and a reference to the corresponding nutrient monograph. The second section is a cross reference to the first, alphabetically listing nutrients and the drugs that deplete them, along with a reference number for the abstracts/studies section of the book. The nutrient monograph section is perhaps the most informative, as it provides an alphabetically arranged overview of the nutrients, their biological functions and effects, as well as side effects and toxicity. The monographs also describe the physiological effects of depletion, suggested daily dosage, and dietary sources of the nutrient. The "Studies and Abstracts" section provides brief summaries of the citations and abstracts of over 500 scientific studies corresponding to the drug monographs.
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havocmom Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 09:57 PM
Response to Reply #7
35. Thank you. Your post are very enlightening and helpful
Know they are appreciated!

:hi:

We Americans are much marketed to but not much taught. It sets us up for all sorts of problems when we try to buy that which we are conned into believing will fix our lives, be it the 'in' car, perfume, power tool or shoes or a quick fix from Big Pharma. We are complex critter with complex needs which are always in flux. One size does NOT fit all. One pill doesn't either.

I hate that marketing is THE biggest motivator for most people. We have become a nation with too many 'reactors' and not enough 'considerers'.
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KoKo Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 07:55 PM
Response to Original message
8. Ha! Hubby got up and pee'd three times one night and I thought he
Edited on Sun May-07-06 07:59 PM by KoKo01
had "prostrate problems." He explained it was too much coffee and iced tea while he was hammering out a late night proposal for business deal.

Of course! I'm worried that I need to get on whatever the pill they are pushing for flavor of the moment...even if it could cause "Migrane, Nausea, Vomiting, Sweats, Fainting, Esophogeal, erectile, colon, heart and whatever disfunction." To say nothing of "palpitations, blood in stools, irregular heartbeat" and not to be taken if you have "high calcium levels, mitral valve prolapse, diabetes, kidney disease, swelling of arms or feet and tongue, excessive thirst or unrination and fear of flying."

UGH! :puke: One of John Edwards campaign promises was to do something to limit this Drug Advertising.

It's become like the Pro-Smoking Commercials in the 50's to get people hooked that tobacco was good if you watched "I Love Lucy" or something.

BAN IT! We are becoming a nation of hypochondriacs and it ain't good for anything but BIG PHARMA!!!! and BUSH!
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Tom Yossarian Joad Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:05 PM
Response to Reply #8
14. "BAN IT! We are becoming a nation of hypochondriacs"
Ka-Ching!

(This might piss off soem people here) Sorry.
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me b zola Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:22 PM
Response to Reply #8
20. I love the thought of limiting drug ads
We occasionally squabble about this at home, but I just don't believe that it is ethical to advertise prescription meds.

Edwards has a pair of big ones to want to take on the big pharma industry! :thumbsup:
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Kutjara Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:03 PM
Response to Original message
13. I have an uncontrollable...
...urge to kick the President repeatedly in the ass. It started just over five years ago, and has steadily worsened. Now, I have the urge all the time and am worried that it is taking over my life.

Is this related to RLS or do I have something else entirely?
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uppityperson Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:05 PM
Response to Original message
15. If you do have it (not a joke) that's a pain, can be a pain.
Yes, I am concerned about mass pharm ads (the purple pill!) but restless leg syndrome is a real thing that can be quite troublesome.
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Tom Yossarian Joad Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:10 PM
Response to Reply #15
17. I'm sure it is, but is it worth your liver and other cotradictions?
Actually, RLS is usually caused by Venous Reflux ( http://www.veinclinics.com/veins-restlesslegs/index.html?WT.mc_id=595&WT.srch=1 ) like 97% of it according to studies sited at the link.

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uppityperson Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:13 PM
Response to Reply #17
18. cool, I didn't know that. I know little directly but through a friend w/it
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Ms. Toad Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:42 PM
Response to Reply #17
26. Depends on which day you ask.
These days - no. In the early years I lived with it, on the worst days, yes. And the medication that allowed me to get through those bad early days was an over the counter remedy I found via advertisements.

The stuff these days is out of control (provides virtually no information and is directed to prescription medications that many doctors don't have enough guts/brains to refuse to prescribe when they are inappropriate).
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bahrbearian Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:09 PM
Response to Original message
16. I've got Crazy leg 's syndrome
I'd kick my lover out of bed after sex.
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Tom Yossarian Joad Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:14 PM
Response to Reply #16
19. Is that you, Ex Wife?
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bahrbearian Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:24 PM
Response to Reply #19
21. You where never any good in bed anyway,,, big boy.
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catnhatnh Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:25 PM
Response to Original message
22. Dear,Dear Tom.....
write me immediately and tell me the caliber of your favorite weapon and I will send you a cartridge.If you break out in the dreaded "macarena" you'll know what to do....
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undeterred Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 08:42 PM
Response to Original message
27. I have it and its not fun or funny
A lot of doctors have never even heard of it, so it doesn't hurt to educate the public.
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annabanana Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 09:16 PM
Response to Original message
32. HAhahahahahahahahahaha!
I clicked on this all ready to be supportive (and curious what this "DFS" might be)

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titoresque Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-07-06 09:49 PM
Response to Original message
34. Do you sometimes get tired?
thirsty or hungry? If so....R.I.P. dear friend, you're screwed!
:hi:
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