And this post is going to have some faith stuff in it, so if you can't cope with the concepts, move along, please. :)
Yesterday was notable for two things: the first being my mother, after suffering with "unexplained" excruciating back/hip pain finally went to a chiropractor (more on that in a second), and secondly, for my conversation with a noted veterinarian/doctor, who calmly explained why what we had done for my premature twins made perfect sense, why it worked, and a little bit of why I can't get anyone to pay attention.
I'm going to start with the story about my mother. She's in her sixties, and about six months ago, her hip started bothering her. She has been previously diagnosed with rheumatoid arthritis, and my father (deceased) worked in the auto industry, so she's always had good insurance, which means she went to the doctor. She told them her hip was hurting her, and they told her it was from her back. They gave her physical therapy, cortisone shots, muscle relaxers -- you name it, she tried it.
FOR SIX MONTHS. And nothing helped. Sometimes the pain was so bad, she was near tears, and could barely get out of bed.
I told her to go see a chiropractor, specifically, one I have a lot of experience with who "fixes" problems and doesn't milk it (because yes, there are actually both kinds out there -- no insult, and your mileage may vary).
Anyway, for six months she suffered, and I would periodically offer up what I thought was a logical solution; in my opinion there is a time and a place for all kinds of medicine, but this one seemed pretty clear cut. But she wasn't comfortable with the idea, and frankly, "you can lead a horse to water" etc.
Finally, in pure desperation, she agreed to go. And he took an x-ray of her back/hip (the first time anyone had done that, despite her saying the same thing over and over to all of the doctors and specialists), and it was pretty freaking obvious on the x-ray what was going on, and he "whacked" her back/neck, and BOOM.
She was fine. Stood up, right there on the spot, FINE. He told her he'd see her in a month to make sure the adjustment "held" and also told her that a lot of people ended up with hip-replacements when their (blah blah doctor stuff -- yeah, my eyes glazed over; I turn the engine and my car works; I see the doctor, and he does doctor stuff, and my body works better -- its the middle of the night, and I want to get to the rest of my story).
After we left, we had a discussion on the spiritual aspect of the situation: she'd been praying for six months for help/relief of the problem she was experiencing, and I'd been telling her about the solution, but because she was afraid, she hadn't been willing to listen. In essence, I joked, I was a Messenger from God. "But I didn't recognize you as such," she played along.
"Yeah," I told her. "I get that a lot." And we laughed. Only I was a little serious. Its not easy watching someone you love be in pain, especially if you are convinced it is unnecessary and easily fixable. :)
Which brings me to my second story, and the mission I've been on for the last couple of months.
My twins were born prematurely. (I've talked about that here before.
http://www.democraticunderground.com/discuss/duboard.php?az=view_all&address=222x22924) And they've been "caught up" since they were four months old Actual/two months old Adjusted. Its unheard of -- most preemies catch up, but usually it takes them a couple of years.
Mine did it in two months.
And yes, it appears they are going to be "special needs" but only because it looks like they are going to be little geniuses. (Don't all 2-1/2 year old kids count in multiple languages? Insert eye roll here.)
Anyway, I am pretty convinced I know exactly what we did to achieve this "miracle" and it involved a $20 bottle of minerals. My pediatrician and preemie clinic have all been appropriately stunned, but are caught up in the day-to-day stuff, and aren't investigating, so I trotted off with my information, and have spent the last two months trying to find someone to investigate. (I am not a medical professional; neither is my husband.)
I have been in contact with the March of Dimes, the formula makers, doctors from noted institutions, the folks who keep the stats on infant death rates (prematurity = #1 cause), and a host of others. My story makes people happy, because most preemie stories don't end with "my special needs are happy, healthy, top of the growth chart genius babies," and they smile, and MOVE ON to their normal lives.
If I wasn't a stubborn woman, I'd have thrown up my hands in disgust, and MOVED ON myself. After all, I've got my healthy babies, and all I have to do is forgot the rest of the folks in the NICU.....
And then I pick up the phone, and find someone else to call. Sigh.
Yesterday I spoke with a noted veterinarian/doctor, who very calmly explained that, in essence, I had a small litter (he said RUNTS!), and that by addressing their nutritional needs, I caught them up. He said it was something vets see all of the time, and I found myself nodding, because, after all, we did puppy rescue work (87!), and I saw the "runts" catch up, as long as they didn't have to compete with their larger siblings for food. Heck, anyone who has ever seen "Charlotte's Web" should get it!
But the very folks who pray for ways to help preemies aren't listening to me (or the good doctor I spoke with yesterday, who has apparently been trying to get through to them for 40 years that NUTRITION IS IMPORTANT).
They don't see me as a "Messenger from God." Or, if they do, it just sounds too easy: 1/2 a teaspoon, once a day, and BOOM! Problem solved.
Don't get me wrong: I am not naive enough to think this stuff will fix birth defects, brain damage, or fight infection -- I just know that larger lungs meant winter colds were inconvenient, instead of life threatening; muscles meant they could hit normal milestones, instead of having to play catch up, and feeding their brains probably helped with my genius problem.
But the first thing that has to happen is for someone to "investigate" (which means do a scientific study) to determine whether or not we are "just" miracles, or whether this miracle is the best kind -- the repeatable one.
And folks, I'm getting stumped as to how to get the attention of the person or people who can do that study -- someone credible, who has access to the resources to track the participants (which is apparently going to be the hardest part!), and knows how to get through the hospital review boards with all of the paperwork associated, plus the recruitment of the participants (because telling preemie parents you want to "experiment" with giving them some nutritional supplementation can be pretty darn scary) and half a dozen other logistical issues, especially when they are dealing with other important things --
Yeah, its going to be a challenge. Not an impossible one, but a big one. I guess most life changing things are that way, and for a whole bunch of preemies, this is going to be important. Someday, it will most likely be just "common sense" -- ("of course you provide trace mineral supplementation for preemies"), but right now, I'm just a woman in the wilderness, jumping up and down yelling, "HEY, MAYBE SOMEONE SHOULD COME TAKE A LOOK AT THIS!"
Like I said, its not easy being a "Messenger from God". But I asked, I was answered, and I've been blessed. Maybe I'll shut up later. But for now, I'm going to hit "Post" and politely ask this community --
Are any of you holding the answers I'm looking for? How can I get this information to the people who need to see it? Can anyone help me get a medical study done on "Trace Mineral Supplementation and the Premature Infant"?
I am a woman of faith. And I am grateful for the gifts I have received. I know the answer is out there. Can any of you help me, please?