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Ethical question. Say there is someone who needs an organ, but nobody in their

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Horse with no Name Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Sep-15-09 10:54 PM
Original message
Ethical question. Say there is someone who needs an organ, but nobody in their
family has ever signed up as a donor, should they be put ahead of someone else who has designated themselves as willing to donate as well as several family members who have been designated donors?
This is something that I have been thinking of. I know of a family that just received a donation that saved their loved ones life. Previous to that, they had been vehemently opposed to donating their own organs. Of course, since their loved one received a new organ, approximately NONE of them have signed up as donors...and have expressed that they still weren't going to do that.
The selfishness astounds me.
I think I would like to see a clause when someone is signing up for organ donation that a member of the family MUST have been registered before their family can be listed.
Not sure of the particulars, but absolutely sure that the entire conversation made me nauseous.
There has to be a better way to do this.
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Unvanguard Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Sep-15-09 10:56 PM
Response to Original message
1. I think this is a bad idea, for two reasons.
First, nobody should be compelled, in any way, shape, or form, to give up part of his or her own body. Period.

Second, it's hardly the sick person's fault that his or her family won't sign up to donate.
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Horse with no Name Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Sep-15-09 10:58 PM
Response to Reply #1
4. But why weren't THEY a donor before they got sick?
(Kids excluded)I would be pissed that having listed myself as a donor for the last 20 or so years to know that someone that could care less about another person's plight would get an organ before myself or my family would.
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Unvanguard Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Sep-15-09 11:01 PM
Response to Reply #4
7. I would not be. It is their organs to do with as they see fit.
They are not trying to compel anybody else into giving them organs; why should they be compelled into giving up theirs?
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Ms. Toad Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Sep-15-09 11:57 PM
Response to Reply #4
12. Even after they are sick they can be a donor,
and anyone old enough to get a driver' license can be, as well, in most states.

My daughter registered as a donor at age 15 or 16 (don't recall whether they asked her when she got her learner's permit), and is still registered as a donor even though she expects to need a liver. No one would want her liver, but her kidneys, heart, lungs, eyes, and skin (as examples) could easily be used by others once she no longer needs them.

You can also be an organ donor if you have been rejected as a blood donor. The criteria are different - and are generally different for each organ. Even if some of your organs cannot be used, others might be still be useful.
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armyowalgreens Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Sep-15-09 10:57 PM
Response to Original message
2. There should be no incentive program instituted in organ donation...
We already have incentived healthcare and it sucks.

Secondly, what if a family cannot donate for some unforeseen medical or some other important reason?
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customerserviceguy Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Sep-15-09 10:57 PM
Response to Original message
3. So, if I'm your cousin
Your need obligates me to do something? Or the other way around?

Just for the record, I'm an organ donor, so I'm fine with the concept, I'd just rather educate people versus coercing them.
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Horse with no Name Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Sep-15-09 11:01 PM
Response to Reply #3
6. These people KNOW the value of an organ
their 22-year old son received one and would have died within the week if he had not.
Still, that does not compel them to be merciful to another family in their same situation.
I do not understand that kind of selfishness. It makes me ill.
It also makes me ill to think that someone who was willing to donate might have been denied the organ.
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customerserviceguy Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Sep-16-09 07:38 AM
Response to Reply #6
15. It's not so much selfishness
as it is ignorance. There are certain religious beliefs out there (not necessarily supported formally by the adherent's official religious teachings) that get in the way of organ donation.

Also, there is the denial thing. If I sign an organ donor card, I'm facing my own mortality. Many people just can't handle that.

These are problems we can educate people out of.
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rucky Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Sep-16-09 08:36 AM
Response to Reply #15
18. If the personal experience doesn't educate them
I can't imagine much that will.
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customerserviceguy Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Sep-16-09 08:49 PM
Response to Reply #18
21. What in our culture
educates people to face their own mortality? Nothing I've seen.

For TV shows, it's pretty much a downer. There have been a few comedies that dare to deal with death, but they're pretty rare.

Do you recall any significant campaigns that say, "You can't take it with you---your organs, we mean" to try to get people to think beyond silly little misconceptions?
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pipi_k Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Sep-16-09 08:57 AM
Response to Reply #15
20. I think you nailed it...
many people don't become donors because they just cannot face the fact of their own mortality.

Many of them also do not make out a Will or other similar documents for the same reason.

Squeamishness...fear...
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Statistical Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Sep-15-09 10:58 PM
Response to Original message
5. While the attitude is disgusting I don't agree with punishing one for the actions of their family.
Should we deny federal student aid to people who's family have been convicted of selling drugs.

Of course not.

Sometimes people just suck. You can't legislate everything.

I don't know why we don't sell organ contracts (not organs but contract to harvest your organs after death).

Imagine if you go a check for say $2000 per year as long as you remained an organ donor and maintained good health.

You could increase the supply 100x overnight. Likely they would turn some people away because demand is higher than supply.
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brewens Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Sep-15-09 11:28 PM
Response to Original message
8. I work for a blood center and donate blood and platelets.
I donated for years before I ever thought about getting a job in the industry. I'm also and organ donor and on the National Bone Marrow Donor Registry.
I can guarantee you that my donations have gone to people that would never lift a finger to help anyone else. I'd rather not know anything about it. It'd be nice to know that others that were donors would be first in line. There is probably no way I could agree with to accomplish that. I just have to be happy that I've helped my share of the good people.
One thing I run into is people questioning the fact that we charge hospitals for the blood products. Also a friend of mine that won't be an organ donor because the organs aren't given away for free. People donate blood, volunteer to help us and have fund raisers to buy us new busses and other equipment. It's not enough to pay for everything but it helps keep the cost down. We can't work for free so there has to be a charge.
I dealt with a real cranky old woman that was donating blood for her own surgery. She was really upset that there was a $250 charge to her. I explained that it takes our paid staff to draw the blood, lab staff to process it and special handling and shipping to get it to the hospital for her surgery. Insurance will cover that if the patient is actually given the unit/s of blood during surgery. We have to collect payment at the time of the donation though.
Then I asked if her doctor had sent a physicians request with her to have this done. We have to have one of those. Nope. So now she's even more pissed and I give her the form and tell her to go to her doctor and get it filled out. I didn't tell her I could have just called and had them fax one to us. This particular doctor knows the drill.
I don't usually work at the front desk at the blood center like that day. She came back one more time and the woman that is usually there had to deal with her. She claimed her doctor was supposed to have faxed the form to us but we never got it. We determined that the doctor probably did not want her to use her own blood anyway.
I would be willing to bet this woman never donated anything to anyone her whole life.
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Ms. Toad Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Sep-15-09 11:50 PM
Response to Reply #8
11. Thank you for mentioning the National Bone Marrow Donor Registry
and the other ways of making living donations. You don't have to wait until you are dead to recycle yourself
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TexasObserver Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Sep-16-09 12:26 AM
Response to Reply #8
14. Would you address the "platelets" portion of your post?
I want to give you an opportunity to explain to readers why it's important to also have platelet donors, and how often they can be such a donor.
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brewens Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Sep-16-09 08:03 AM
Response to Reply #14
16. Here is the wikipedia page on plateletpheresis
It's basically donating the cells that help blood clotting. Anyone with a low platelet count need them transfused to avoid bleeding complication during surgery.
You can donate platelets every 7 days. Up to 24 times in one year. You need to be in generally good physical condition and have a healthy platelet count.
Quite a few people can donate two units in about 90 minutes. Some of us can do three in under two hours. Large physically fit people are more likely to be able to do the triples.
http://en.wikipedia.org/wiki/Plateletpheresis
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Statistical Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Sep-16-09 08:34 AM
Response to Reply #8
17. That is sad.
"I dealt with a real cranky old woman that was donating blood for her own surgery. She was really upset that there was a $250 charge to her."

Well she wasn't "donating" she was storing her own blood for her use in the future.
It is no more donating then me putting money in my IRA is "donating" to my future self.

I have no problem w/ Red Cross charging for blood:
1) As you said even if the "product" (blood) is free there is still the operating cost. If Wendy's had free ingridiants they still couldn't offer a free hamburger.

2) The cost makes Hospitals less likely to waste blood (use it when not necessary) which supports the pool and ensure there is blood available when needed.
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donheld Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Sep-15-09 11:34 PM
Response to Original message
9. There are givers, takers, and maybe some who are both, in this world
Edited on Tue Sep-15-09 11:36 PM by donheld
The family of whom you speak belong to the takers.


Stevie Wonder in "They Won't Go When I Go" wrote : "There ain't no room for the hopeless sinner
Who will take more than he will give"
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Ms. Toad Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Sep-15-09 11:47 PM
Response to Original message
10. As the mom of a 19 year old on the way to a liver transplant,
Organs need to be allocated on the basis of most urgent need and best match. That may mean that someone whose family refuses to donate may get an organ before my daughter does. We expect her to be in a long slow decline for a few years before she is eligible to be listed - but when she is, I don't expect to feel any differently.

I know someone in the situation you suggested - a close relative of his (and I believe the rest of the family) is dead set against using brain death as a definition of death. Realistically that means that most of his relative's organs will never be available because the blood must be kept circulating (generally chemically) and respiration must be continued (generally mechanically) once the donor is brain dead in order to keep the organs vital for transplant. By his relative's definition, circulation and respiration must cease for her to be dead, making her organs pretty much worthless. He should not be denied a lifesaving transplant when he is most in need and the best match because his family fundamentally misunderstands when life ceases.

For what it's worth, my daughter is a fourth generation donor - she signed up as an organ donor before she was diagnosed with a condition that means she will almost certainly also be an organ recipient. (The oldest generation aged out of eligibility before they died, and their bodies were used for research. The next oldest generation is still living - and already past the age for most transplant use.) I have not only signed up, I wear bright green rubber band inscribed "Donate Life" which ought to suggest my intent to anyone around when I die in case I don't happen to be carrying my driver's license. My family, both descendants and ancestors, are aware of my wishes, as is my faith community, so whoever can be located can speak for me when I no longer can.

Far more people indicate they are willing to have organs donated than have actually signed up to do so - and far fewer have had straightforward discussions with their family, who will ultimately be responsible for carrying out their wishes. I encourage everyone to express their intent to "recycle" their bodies when they are done with them, and to make sure everyone around them is aware of that intent - but please, don't begrudge the gift of life to someone merely because they were born into a family that chooses not to donate, for whatever reason.
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TexasObserver Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Sep-16-09 12:22 AM
Response to Original message
13. It is not ethical to deny a transplant to a person because their family hasn't been donors.
It is unreasonable to penalize a person for anything their relatives do or do not do, whether regarding transplants or anything else.
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SidDithers Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Sep-16-09 08:39 AM
Response to Original message
19. Just as a woman should not be forced to carry a pregnancy to term...
a family member should not be forced to become an organ donor unwillingly.

We all have a right to the sanctity of our person.

Sid
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