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Nevilledog

(51,197 posts)
Wed Oct 3, 2018, 07:16 PM Oct 2018

UPDATE on my mom after her brain surgery.

Last edited Wed Oct 3, 2018, 08:20 PM - Edit history (1)

I want to start by expressing how deeply affected I was by all the DUer's kind thoughts for my mom and my family. It was very comforting to me while I was feeling so alone until I could physically get to my mom.

I won't go into great details about what led to my mom ending up with the brain bleed except to say it was a case of negligence on behalf of the hospital when they released her from the ER. The negligence was releasing my mother while ignoring that her platelets were at 31. Without bringing out all the medical implications, that's really bad, and was the reason for the excessive weakness she was feeling that was the basis for the ER visit in the first place. Three hours after she was released from the ER she fell, hitting her head on the closet door. Back to the ER and lapse into unconsciousness, emergency surgery for a brain bleed.

She's still in the Neuro ICU. Today is the first day I would say she's showing sign of regaining consciousness, eyes open and focusing, responding to verbal commands, able to answer questions by blinking her eyes or gripping your hand.

Here's the fucking nightmare though..... The reason her platelets were so low is because she has lymphoma. They have not been able to determine what type at this point due to concerns about doing a bone marrow test until she's stronger. Now we are faced with hoping our mother regains coherence, only to be faced with having to tell her she has cancer.

One day at a time, one day at a time.

Sorry it took me a bit to update, just wasn't ready to write about it.

Edited to add:. It's been hard telling family (all living very far away) what's going on with mom. We've told them about the brain surgery, but not that they found cancer. It feels wrong to tell them before my mom is told.

41 replies = new reply since forum marked as read
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UPDATE on my mom after her brain surgery. (Original Post) Nevilledog Oct 2018 OP
I hope for the best mythology Oct 2018 #1
Thanks for that update... best wishes to you, your mom, and the entire family. InAbLuEsTaTe Oct 2018 #2
Hang in there Nevilledog! redwitch Oct 2018 #3
🙏🏼 DUgosh Oct 2018 #4
I'm so sorry. moriah Oct 2018 #5
Sending healing vibes. sheshe2 Oct 2018 #6
I hope your mom keeps fighting. mobeau69 Oct 2018 #7
I'm so sorry for what she had to go through, and you too.. FM123 Oct 2018 #8
I'll keep her in my thoughts. MineralMan Oct 2018 #9
Wishing you strength, endurance and presence. Been through something similar this year. JudyM Oct 2018 #10
As a former critical care nurse, I understand about platelets. CaliforniaPeggy Oct 2018 #11
I'm a lawyer. Nevilledog Oct 2018 #17
Thank you so much for your kind remarks! CaliforniaPeggy Oct 2018 #36
I hope your Mom recovers fully from her surgery mercuryblues Oct 2018 #12
Hospital ERs are becoming deadly with their obvious inadequate diagnoses. nocoincidences Oct 2018 #13
Way you need malaise Oct 2018 #14
So sorry about what your mom is going through. Sending positive thoughts to you, Nevilledog. skylucy Oct 2018 #15
Praying for samplegirl Oct 2018 #16
I am so very sorry diva77 Oct 2018 #18
Sending positive vibes from California. That is a hell-of-a double whammy. alwaysinasnit Oct 2018 #19
I'm sending warm, healing thoughts to your mom and you DesertRat Oct 2018 #20
Hoping that this terribly challenging time will find your family strengthening all of the family grantcart Oct 2018 #21
Prayers do work. Energy from a bunch of well meaning folks all over the planet can do nothing ... marble falls Oct 2018 #22
Best wishes to you, your mother, and your family csziggy Oct 2018 #23
I am so sorry about her cancer diagnosis. I hope it is in the early stages and her treatment goes Glimmer of Hope Oct 2018 #24
You're carrying a heavy load. Wishing you strength and her healing. nolabear Oct 2018 #25
We are here for you any time! (((hugs))) samnsara Oct 2018 #26
Hope the hospital can refer you to some good support groups. vlyons Oct 2018 #27
I'm so sorry you've been going through this Nevilledog, and that the rest of the family pnwmom Oct 2018 #28
It was so good to read that she's responding and Hortensis Oct 2018 #29
To her strength in recovering, and to yours as well benld74 Oct 2018 #30
You and your mother have been dealt a big load and I hope you have help to handle it. Frustratedlady Oct 2018 #31
Best wish's bluestarone Oct 2018 #32
Sounds like you're going through a really tough spell sweetroxie Oct 2018 #33
Sending healing hugs to your Mom. gademocrat7 Oct 2018 #34
Hoping for the best Omaha Steve Oct 2018 #35
All the best to you, your mom and your family, Nevilledog! Different Drummer Oct 2018 #37
The best to you and your Mom. Don't give up and yes, one day at a time. Hugs LoisB Oct 2018 #38
I'm sorry for this terrible news FakeNoose Oct 2018 #39
I wish you and your mom the best during this hard time. It was just over a year ago that Maraya1969 Oct 2018 #40
🙏🏽 for your mom! Nt helpisontheway Oct 2018 #41

FM123

(10,054 posts)
8. I'm so sorry for what she had to go through, and you too..
Wed Oct 3, 2018, 07:28 PM
Oct 2018

Yes, one day at a time. Don't give up, hang in there we are all rooting for you & your mom.

MineralMan

(146,331 posts)
9. I'll keep her in my thoughts.
Wed Oct 3, 2018, 07:31 PM
Oct 2018

My father had a serious brain bleed several years ago. He almost didn't make it, but recovered fully. I hope for the best for your mother!

CaliforniaPeggy

(149,702 posts)
11. As a former critical care nurse, I understand about platelets.
Wed Oct 3, 2018, 07:34 PM
Oct 2018

The hospital was hugely negligent in letting her go home. You need good legal advice!

All my best vibes to you, your mom and your entire family. You have been through a great deal and I feel very sad for all of you.

Please hang in there and know we all have your back.

Nevilledog

(51,197 posts)
17. I'm a lawyer.
Wed Oct 3, 2018, 08:09 PM
Oct 2018

Hospital is already investigating.

Much admiring for your work as a critical care nurse. Her nurses have been phenomenal.

CaliforniaPeggy

(149,702 posts)
36. Thank you so much for your kind remarks!
Wed Oct 3, 2018, 09:46 PM
Oct 2018

How lucky that you're a lawyer. Even if this isn't your field, you know where to go and who to talk to.

All the best!

mercuryblues

(14,537 posts)
12. I hope your Mom recovers fully from her surgery
Wed Oct 3, 2018, 07:35 PM
Oct 2018

So she has the strength to fight on. Don't forget to give yourself some down time.

nocoincidences

(2,229 posts)
13. Hospital ERs are becoming deadly with their obvious inadequate diagnoses.
Wed Oct 3, 2018, 07:36 PM
Oct 2018

I'm so sorry your mother has had such a tragic encounter with one.

Hang tough for as long as you can but lean on someone when you need to. :hugs:

diva77

(7,656 posts)
18. I am so very sorry
Wed Oct 3, 2018, 08:19 PM
Oct 2018

I am glad that she is at least responding to verbal commands.

Yes, one day at a time.

grantcart

(53,061 posts)
21. Hoping that this terribly challenging time will find your family strengthening all of the family
Wed Oct 3, 2018, 08:26 PM
Oct 2018

bonds that your mother invested so much of her life in.

marble falls

(57,208 posts)
22. Prayers do work. Energy from a bunch of well meaning folks all over the planet can do nothing ...
Wed Oct 3, 2018, 08:27 PM
Oct 2018

but work.

vlyons

(10,252 posts)
27. Hope the hospital can refer you to some good support groups.
Wed Oct 3, 2018, 08:43 PM
Oct 2018

Both where your mother lives, and where you live.

pnwmom

(108,995 posts)
28. I'm so sorry you've been going through this Nevilledog, and that the rest of the family
Wed Oct 3, 2018, 08:50 PM
Oct 2018

is living far away. I hope you have some support from people who are closer. This must be terrifying.

We're all keeping you and your mother in our thoughts and prayers.

Hortensis

(58,785 posts)
29. It was so good to read that she's responding and
Wed Oct 3, 2018, 09:02 PM
Oct 2018

recognizing those who love her. Fingers crossed for no brain damage and one of the most treatable lymphoma.

Frustratedlady

(16,254 posts)
31. You and your mother have been dealt a big load and I hope you have help to handle it.
Wed Oct 3, 2018, 09:22 PM
Oct 2018

You are right on the one day at a time. If at all possible, take care of yourself so you will be able to take care of her when she regains consciousness.

Know that we are here for you if you need to vent. If we're lucky, we don't have to learn how to maneuver through the medical arena, but when it happens knowing there are others ready to support us is a big help.

sweetroxie

(776 posts)
33. Sounds like you're going through a really tough spell
Wed Oct 3, 2018, 09:25 PM
Oct 2018

I hope things improve really soon for you and your family.

FakeNoose

(32,749 posts)
39. I'm sorry for this terrible news
Wed Oct 3, 2018, 10:20 PM
Oct 2018

Nevilledog, I hope you can reach out to your family for moral support.
I'm sending healing thoughts are prayers to you and your Mom.





Maraya1969

(22,497 posts)
40. I wish you and your mom the best during this hard time. It was just over a year ago that
Thu Oct 4, 2018, 06:03 PM
Oct 2018

I wrote on here about my mom falling while we were waiting to get into a shelter because of Hurricane Irma. She had a brain bleed too. She has been in about 5 different hospitals and rehab facilities, (including a 2 month stint living with me) since then. Now she is in an assisted living facility and I think this is where she will stay now.

I'm not going to lie; it is really hard. But you do what you have to do. And the funny thing now is I am so close to my mother after all of this. I hate that she has to go through it all but I do believe there is some Divine reason for it.

My mom is 86. That is quite old. Right before this happened we found out that she had breast cancer. I remember years ago her telling me once that if she ever found out she had cancer she wouldn't do anything about it. And that has come to pass mostly because of her fall. You can see the cancer growing on her breast but it seems to be localized there and it doesn't hurt her.

Find the beauty.

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