General Discussion
Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsUPDATE on my mom after her brain surgery.
Last edited Wed Oct 3, 2018, 08:20 PM - Edit history (1)
I want to start by expressing how deeply affected I was by all the DUer's kind thoughts for my mom and my family. It was very comforting to me while I was feeling so alone until I could physically get to my mom.
I won't go into great details about what led to my mom ending up with the brain bleed except to say it was a case of negligence on behalf of the hospital when they released her from the ER. The negligence was releasing my mother while ignoring that her platelets were at 31. Without bringing out all the medical implications, that's really bad, and was the reason for the excessive weakness she was feeling that was the basis for the ER visit in the first place. Three hours after she was released from the ER she fell, hitting her head on the closet door. Back to the ER and lapse into unconsciousness, emergency surgery for a brain bleed.
She's still in the Neuro ICU. Today is the first day I would say she's showing sign of regaining consciousness, eyes open and focusing, responding to verbal commands, able to answer questions by blinking her eyes or gripping your hand.
Here's the fucking nightmare though..... The reason her platelets were so low is because she has lymphoma. They have not been able to determine what type at this point due to concerns about doing a bone marrow test until she's stronger. Now we are faced with hoping our mother regains coherence, only to be faced with having to tell her she has cancer.
One day at a time, one day at a time.
Sorry it took me a bit to update, just wasn't ready to write about it.
Edited to add:. It's been hard telling family (all living very far away) what's going on with mom. We've told them about the brain surgery, but not that they found cancer. It feels wrong to tell them before my mom is told.
mythology
(9,527 posts)Good luck and don't be afraid to get help for yourself.
InAbLuEsTaTe
(24,122 posts)redwitch
(14,947 posts)Tough times indeed, hope you and your mom get better news soon.
🙏🏼
moriah
(8,311 posts)Hugs from here...we're always willing to listen if you need to write.
sheshe2
(83,900 posts)So sorry l missed your first post. Hugs to you and yours, Nevilledog.
mobeau69
(11,156 posts)Never give up.
FM123
(10,054 posts)Yes, one day at a time. Don't give up, hang in there we are all rooting for you & your mom.
MineralMan
(146,331 posts)My father had a serious brain bleed several years ago. He almost didn't make it, but recovered fully. I hope for the best for your mother!
JudyM
(29,277 posts)CaliforniaPeggy
(149,702 posts)The hospital was hugely negligent in letting her go home. You need good legal advice!
All my best vibes to you, your mom and your entire family. You have been through a great deal and I feel very sad for all of you.
Please hang in there and know we all have your back.
Nevilledog
(51,197 posts)Hospital is already investigating.
Much admiring for your work as a critical care nurse. Her nurses have been phenomenal.
CaliforniaPeggy
(149,702 posts)How lucky that you're a lawyer. Even if this isn't your field, you know where to go and who to talk to.
All the best!
mercuryblues
(14,537 posts)So she has the strength to fight on. Don't forget to give yourself some down time.
nocoincidences
(2,229 posts)I'm so sorry your mother has had such a tragic encounter with one.
Hang tough for as long as you can but lean on someone when you need to. :hugs:
malaise
(269,157 posts)skylucy
(3,743 posts)samplegirl
(11,502 posts)You and your Mother and family.
diva77
(7,656 posts)I am glad that she is at least responding to verbal commands.
Yes, one day at a time.
alwaysinasnit
(5,072 posts)DesertRat
(27,995 posts)grantcart
(53,061 posts)bonds that your mother invested so much of her life in.
marble falls
(57,208 posts)but work.
csziggy
(34,137 posts)Take care of yourself.
Glimmer of Hope
(5,823 posts)well.
nolabear
(41,991 posts)samnsara
(17,635 posts)vlyons
(10,252 posts)Both where your mother lives, and where you live.
pnwmom
(108,995 posts)is living far away. I hope you have some support from people who are closer. This must be terrifying.
We're all keeping you and your mother in our thoughts and prayers.
Hortensis
(58,785 posts)recognizing those who love her. Fingers crossed for no brain damage and one of the most treatable lymphoma.
benld74
(9,909 posts)Frustratedlady
(16,254 posts)You are right on the one day at a time. If at all possible, take care of yourself so you will be able to take care of her when she regains consciousness.
Know that we are here for you if you need to vent. If we're lucky, we don't have to learn how to maneuver through the medical arena, but when it happens knowing there are others ready to support us is a big help.
bluestarone
(17,030 posts)To you whole family!! Hoping for the best for you!!
sweetroxie
(776 posts)I hope things improve really soon for you and your family.
gademocrat7
(10,669 posts)Take care.
Omaha Steve
(99,714 posts)Different Drummer
(7,642 posts)LoisB
(7,231 posts)FakeNoose
(32,749 posts)Nevilledog, I hope you can reach out to your family for moral support.
I'm sending healing thoughts are prayers to you and your Mom.
Maraya1969
(22,497 posts)I wrote on here about my mom falling while we were waiting to get into a shelter because of Hurricane Irma. She had a brain bleed too. She has been in about 5 different hospitals and rehab facilities, (including a 2 month stint living with me) since then. Now she is in an assisted living facility and I think this is where she will stay now.
I'm not going to lie; it is really hard. But you do what you have to do. And the funny thing now is I am so close to my mother after all of this. I hate that she has to go through it all but I do believe there is some Divine reason for it.
My mom is 86. That is quite old. Right before this happened we found out that she had breast cancer. I remember years ago her telling me once that if she ever found out she had cancer she wouldn't do anything about it. And that has come to pass mostly because of her fall. You can see the cancer growing on her breast but it seems to be localized there and it doesn't hurt her.
Find the beauty.