Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

marble falls

(57,099 posts)
Tue Apr 9, 2019, 11:40 PM Apr 2019

For everyone who is interested in my surgical cancer journey ...

The good news is I didn't wake up with a catheter and bag this time ...but there were cancer cells in my urine, they took a tumor and some surface lesions and my surgeon Dr Wang (seriously, that is his name) thinks the cancer has broken through the wall of my bladder. In two weeks after the biopsies come back, I have an appointment to go through my options: a resection to remove the section of the bladder where the cancer is, removal of my prostate or a removal of the bladder and prostate. If you take a bladder, the prostate has to go with it.

I've been fighting this thing to a draw but the stakes are increasing.

Thank G*d I'm part of one one of the largest socialist health care system in the world: VA. Thank G*d it is really a good program. I think VA is a wonderful model of what every single American should have.

64 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
For everyone who is interested in my surgical cancer journey ... (Original Post) marble falls Apr 2019 OP
((marble falls)) blm Apr 2019 #1
Thankyou for your good energy. marble falls Apr 2019 #13
I am so glad you wrote. Been thinking about you. You are one of the kindest, Laura PourMeADrink Apr 2019 #2
Live right here in Marble Falls, Texas. The Temple/Waco/Austin Clinic are rated about the best ... marble falls Apr 2019 #3
Wow. That's fantastic. Sure you are probably still doped up. Can't wait to Laura PourMeADrink Apr 2019 #9
Glad the VA is helping you, marble falls. democrank Apr 2019 #4
I sent you a reply in that very long thread. Dem2theMax Apr 2019 #5
Already read and very much appreciated!! marble falls Apr 2019 #8
Whatever it takes to get healthy. . ❤ Karadeniz Apr 2019 #6
My DU family has really lifted my spirits. marble falls Apr 2019 #11
Stay Encouraged, marble falls! nt littlemissmartypants Apr 2019 #7
I'm ready for a cure and I'll stay on top of it no matter what. marble falls Apr 2019 #10
Best wishes! cilla4progress Apr 2019 #12
I'm not letting the RW steal "thoughts and prayers" from us. Thankyou for your kindness. marble falls Apr 2019 #14
I'm so glad you have good health care! renate Apr 2019 #15
Like Tom Petty sang - the wa-a-a-iting is the hardest part! marble falls Apr 2019 #21
Glad you have VA and its working for you Hamlette Apr 2019 #16
Its a long story .... marble falls Apr 2019 #24
Lots of us here are sending you positive energy! Desert grandma Apr 2019 #61
Thoughts and prayers do work and they're working for me. Thanks for you're good vibes ... marble falls Apr 2019 #63
Hugs to you and wishing you the best. Solly Mack Apr 2019 #17
I Went Through All of It The River Apr 2019 #18
A friend of mine had bladder cancer a few years ago DFW Apr 2019 #19
Vertical beats horizontal on almost any given day. Pass my thumbs up to your friend! marble falls Apr 2019 #29
Be happy to! DFW Apr 2019 #30
Thanks for doing that for me, enjoy the stay! marble falls Apr 2019 #31
One third family, two thirds work DFW Apr 2019 #32
TV and the internet can get on top of us if we don't activly limit it. I've taken up teaching ... marble falls Apr 2019 #36
My Dad's idea of retirement was go up to Washington four days a week instead of five. DFW Apr 2019 #41
All the long satisfying busy days to you that you want, my friend! marble falls Apr 2019 #42
The VA MFM008 Apr 2019 #20
Hang tough, marble falls... LuckyCharms Apr 2019 #22
This all has actually been good for me. I can make it no matter the outcome. marble falls Apr 2019 #28
Sorry to hear it. What an ordeal to go through. Hang in there. Vinca Apr 2019 #23
One step at a time Maeve Apr 2019 #25
I appreciate DUers just about as much. Everyone is making me stronger. marble falls Apr 2019 #27
Good vibes my friend.... spanone Apr 2019 #26
Brst wishes. You are strong and brave. panader0 Apr 2019 #33
Oh dear! 2naSalit Apr 2019 #34
Gonna be alright no matter what. I can lean into a load, sometimes its all that keeps you on ... marble falls Apr 2019 #37
I'm glad 2naSalit Apr 2019 #39
Like Ian Anderson sang on the Benefit album: "with you there behind me, I probably will." ... marble falls Apr 2019 #40
Strength to you, as you make decisions. MineralMan Apr 2019 #35
Limited options makes decisions easier. Sometimes thats a good thing. I'm gonna be alright. marble falls Apr 2019 #38
Wishes for a great decision by you. pazzyanne Apr 2019 #43
Thanks for the update. Yonnie3 Apr 2019 #44
When I know more in a couple of weeks, you're going to be one of my goto guys for input ... marble falls Apr 2019 #45
My BIL got news today he has prostate cancer blueinredohio Apr 2019 #46
Jeez that's rough news. Hows he holding up? if I could help in any way, he's welcome to ... marble falls Apr 2019 #48
Give him the somewhat good news... at140 Apr 2019 #51
Lots of us are interested malaise Apr 2019 #47
I've been amazed how everyone has been so kind and interested. Its a real blessing. marble falls Apr 2019 #49
Best of luck to you marble falls! smirkymonkey Apr 2019 #50
It makes me more determined than ever to agitate even harder for universal health care ... marble falls Apr 2019 #52
you have great health care and now you have all our well wishes... samnsara Apr 2019 #53
Like being dealt a spades royal straight. Just can't lose. marble falls Apr 2019 #54
TY for the update bluestarone Apr 2019 #55
My husband loves the Denver VA mountain grammy Apr 2019 #56
Fellow Texan wishing you the best. Lonestarblue Apr 2019 #57
The Austin VA clinic is where my primary care physician is. Its just a great place. I'm going to ... marble falls Apr 2019 #59
May all the healing energy of of the universe wendyb-NC Apr 2019 #58
I accept your gift with no reservations. Thoughts and prayers do work. marble falls Apr 2019 #60
my thoughts are with you. deek Apr 2019 #62
Thanks. This has been so good for me, thoughts and prayers do work. marble falls Apr 2019 #64
 

Laura PourMeADrink

(42,770 posts)
2. I am so glad you wrote. Been thinking about you. You are one of the kindest,
Tue Apr 9, 2019, 11:45 PM
Apr 2019

even keeled people here. Always thought you lived in Texas - Marble Falls but you don't, right? I have heard some VA facilities are primo.

marble falls

(57,099 posts)
3. Live right here in Marble Falls, Texas. The Temple/Waco/Austin Clinic are rated about the best ...
Tue Apr 9, 2019, 11:57 PM
Apr 2019

in the whole system. I read somewhere that only one healthcare system has a better "customer satisfaction" rating than the VA - the Mayo Clinic system.

 

Laura PourMeADrink

(42,770 posts)
9. Wow. That's fantastic. Sure you are probably still doped up. Can't wait to
Wed Apr 10, 2019, 12:50 AM
Apr 2019

read your post tomorrow. Sweet dreams.

Dem2theMax

(9,651 posts)
5. I sent you a reply in that very long thread.
Wed Apr 10, 2019, 12:24 AM
Apr 2019

So you have to go read it there because I don't know how to cut and paste on my phone.

renate

(13,776 posts)
15. I'm so glad you have good health care!
Wed Apr 10, 2019, 01:20 AM
Apr 2019

It must be so hard to have to wait to decide on your options. Please keep us posted, and thank you for this update!

Hamlette

(15,412 posts)
16. Glad you have VA and its working for you
Wed Apr 10, 2019, 01:35 AM
Apr 2019

What you are going through is hard as hell and to add financial problems to it makes it so much worse.

I know I don't know much about the VA but I was surprised by the hoopla about how bad it is. I worked with patients at the VA for a few years doing mental commitment hearings. Interacted with 3 providers and was impressed by the VA. My Dad also had VA through one of those long awful goodbyes and my mother loved the help she got through VA. It's my understanding that they can negotiate for drug prices but that might be a myth. Anyway, I'm not sure Americans understand what a great service they provide. Glad you are hooked up.

Best of luck.

marble falls

(57,099 posts)
24. Its a long story ....
Wed Apr 10, 2019, 08:48 AM
Apr 2019

When I was young I worked for my dad as a mason's laborer. One summer day when I was 14 or 15 we picked up one of his masons, Turk Turkovic at his home and Turk came out in not in work clothes carrying a large shopping bag folded like a giant lunch bag. When he got in the truck, (me in the middle) there was very little conversation and we drove off for an hour from Akron to Cleveland with no conversation until we got to Wade Park VA Hospital(now Carl Stokes Memorial VA Hospital) where we dropped Turk off with not much goodbyes.

When my dad started to drive off, I asked him how Turk was going to get back and my dad told me simply that he wasn't coming back.

It tool a while for that to sink in but I finally got it: VA was the final refuge for Vets. It was a place to go die.

Not so many tears later, maybe ten, when I got out of the Navy I got a job at Brecksville VA, the first night home I told my wife that no matter what happened to me to not let me be put into a VA hospital. And I remembered something my grandfather once said - when he was nearing the end and there was discussion of whether he should go to VA or not - "put a ham bone up my ass and let the hounds drag me into the woods". Brecksville was a snake pit and featured in a lot of news exposes including 60 Minutes and in '70 had been the place where Hubert Humprey's Congressional Committee went to hold hearings after it was reported Tat vet's were prescribed 5 or more times the Thorazine than necessary and were being posy tied to chair and allowed to piss and shit themselves.

My life went on and got better and most of the time I had cadillac insurence and VA was just a collection of bad memory.

After my dad died needlessly of colon cancer, he didn't tell anyone until it was too late - WAY too late, I started regular colonoscopies. After I turned 55 or so just before a scheduled 'scoping, I found out my insurance had been canceled.

My wife "compelled" me to go to VA by filling out the papers and I went to satisfy her and I knew I needed to get that 'scope.

Man oh man what a change. It was eye opening.

If Congress would keep out of it, like when W closed three or four hospitals around here, things would be even better. A lot of the problem are claimed by non vets who truly believe they are advocating for us because of the past history, and because as a group Viet Vets ... well a lot of us were treated bad in the past and a lot of us weren't treated for things like agent orange,
PTSD, mesothelioma etc. Also a lot of us don't keep appointments, yell a lot and get angry, frustrated and do not comply with a treatment plan.

And a lot of that had to do with the Pentagon denying there were any such problems. If the Army said burn barrels were safe, how could VA treat it? If the Navy said no blue water sailors were exposed to Agent Orange, how could VA treat it? If the Air Force said polyflourides were safe, how could VA treat it? If the Marines said PSTD was malingering .... and for PSTD when the military finally decided it might be a thing, a serviceman had to start his claim while still in uniform. Its only been in last five or six years that a claim could be initiated at the VA, and the rest of the exposures I mentioned have only been recognized since PSTD was recognized. Meanwhile some vets have been fighting for decades for recognition of their service related damages and a lot died waiting, a significant number by their own hand.

VA also if very actively fighting suicide and homelessness. There are homes for vets and jobs for them at VA.

I live far enough from Temple I could use the brand new Scott and White Hospital. Its good but I'd rather be around vets. Its well worth the drive. And as good as the treatment is a Scott and White and it ts very good - VA is better at least for me as a vet.

Desert grandma

(804 posts)
61. Lots of us here are sending you positive energy!
Wed Apr 10, 2019, 11:29 PM
Apr 2019

You are in great hands at the VA. My husband is a Vietnam vet and he chooses to go to the VA even though he does not have to. The care here in Albuquerque is top notch. A contributing factor is that employee satisfaction is very high too, according to my daughter who has worked at both the VAMC here in Albuquerque and the one in Fresno, Ca. You have an amazingly positive attitude marble falls. That is sure to help with your healing process.

marble falls

(57,099 posts)
63. Thoughts and prayers do work and they're working for me. Thanks for you're good vibes ...
Wed Apr 10, 2019, 11:52 PM
Apr 2019

its a surprising thing to me to realize how many vets and their families are on DU. Also: how completely satisfied everyone is with their VA hospitals and doctors.

I always ALWAYS feel I am the only person they are concerned with. My wife and I have made friends with so many people at the hospitals, its so strange to have so many people know my name ( I admit that being there pretty regularly over the last five years might have a part of it though it also shows that employees tend to stay on the job) and my wifes nickname there is the 'calendar lady'. We don't ever have to reschedule and we never miss an appointment she got it all under control.

I'm glad you and your hubby got a good hospital and I'm glad your daughter has been there to help us.

The River

(2,615 posts)
18. I Went Through All of It
Wed Apr 10, 2019, 02:32 AM
Apr 2019

at the VA 9 years ago. I've got some answers if you have any questions. Send me an mail.

DFW

(54,403 posts)
19. A friend of mine had bladder cancer a few years ago
Wed Apr 10, 2019, 03:27 AM
Apr 2019

It was too advanced to do anything but remove it. He is still around, has adjusted, and doesn't seem to have slowed down any. He has had the catheter and the bag ever since, but after three years, it's like second nature. It's amazing what one can get used to when the alternative is oblivion.

I'm really glad you have the VA support. I'll bet that's the difference between hope and despair at this point.

DFW

(54,403 posts)
30. Be happy to!
Wed Apr 10, 2019, 09:12 AM
Apr 2019

As a matter of fact, I am making a quick visit to the USA starting Friday, and expect to see him while I'm there, so I'll get to do exactly that.

DFW

(54,403 posts)
32. One third family, two thirds work
Wed Apr 10, 2019, 09:21 AM
Apr 2019

DC, Dallas, and some you-can't-get-there-from-here place in the Midwest, all in 2 weeks, and then back over here.

There's never a dull moment. Hell, there's never a moment, period. I know this pace will kill me at some point, but I've been doing this for 44 years now, and I'm pretty sure it beats dying of boredom.

marble falls

(57,099 posts)
36. TV and the internet can get on top of us if we don't activly limit it. I've taken up teaching ...
Wed Apr 10, 2019, 10:04 AM
Apr 2019

oil painting, hand dye fabric and weave.

I try to stay away from DFW (the area) as much as possible!

The pace is more likely to keep you alive longer as use it or lose finally becomes truer everyday.

DFW

(54,403 posts)
41. My Dad's idea of retirement was go up to Washington four days a week instead of five.
Wed Apr 10, 2019, 10:32 AM
Apr 2019

I think I've inherited the gene.

LuckyCharms

(17,444 posts)
22. Hang tough, marble falls...
Wed Apr 10, 2019, 07:55 AM
Apr 2019

I've been thinking about you since I read your other post on this subject.

I'm sending you good thoughts...I think you will come through this OK. It sounds like you have excellent medical support, and I think that you have strength. Please keep up the good fight, take of of yourself the best that you can, and continue to keep a good mindset. Your body tends to follow your mind when it can. Tell yourself you will get through this, no matter what the prognosis.

Please keep us updated on your progress. Stay strong and beat the cancer.

Maeve

(42,282 posts)
25. One step at a time
Wed Apr 10, 2019, 08:53 AM
Apr 2019

May you feel the strength of those who care as you walk this path. And know we are glad you have the VA, too!

2naSalit

(86,646 posts)
34. Oh dear!
Wed Apr 10, 2019, 09:25 AM
Apr 2019

I was not following this but I feel for you. Several of my friends have been dealing with cancer and all I can say is that I hope you have options that improve the quality of life. All of that is a really tough call.

marble falls

(57,099 posts)
37. Gonna be alright no matter what. I can lean into a load, sometimes its all that keeps you on ...
Wed Apr 10, 2019, 10:07 AM
Apr 2019

your feet.

2naSalit

(86,646 posts)
39. I'm glad
Wed Apr 10, 2019, 10:10 AM
Apr 2019

to see you have a positive mindset about it! I sincerely wish you all the best on this journey.

marble falls

(57,099 posts)
40. Like Ian Anderson sang on the Benefit album: "with you there behind me, I probably will." ...
Wed Apr 10, 2019, 10:22 AM
Apr 2019

Being on DU has been the best therapy ever.

pazzyanne

(6,556 posts)
43. Wishes for a great decision by you.
Wed Apr 10, 2019, 11:35 AM
Apr 2019

Medical decisions can be difficult, until they aren't. Be wise, stay strong, and have a speedy recovery!

Yonnie3

(17,443 posts)
44. Thanks for the update.
Wed Apr 10, 2019, 01:32 PM
Apr 2019

That two weeks for the biopsy report always had me on edge.

I am so glad you have the VA. I had private market insurance so that the cost of premiums and deducible was more than twice what a full time minimum wage job paid. The ACA helped, but it was still very expensive.

I'm with you in spirit!

marble falls

(57,099 posts)
45. When I know more in a couple of weeks, you're going to be one of my goto guys for input ...
Wed Apr 10, 2019, 06:32 PM
Apr 2019

what absolutely drives me nuts is the health care isn't a Democrat vs Republican issue, its a conservative vs liberal issue. How health care is administered is a Democrat vs Republican issue. ACA was President Obama's attempt at bipartisanship with the GOP: using private insurance to effect heath care should have appealed to all those Republicans who claim they want to reform how health care is administered in this country. What President Obama should have done was force single payer down their throats and put the private health in insurance scams into the history books.

I sure do miss Barack and Michelle Obama.

blueinredohio

(6,797 posts)
46. My BIL got news today he has prostate cancer
Wed Apr 10, 2019, 06:32 PM
Apr 2019

and there's nothing they can do for him. Gave him a shot hoping to slow it down. He's 64.

marble falls

(57,099 posts)
48. Jeez that's rough news. Hows he holding up? if I could help in any way, he's welcome to ...
Wed Apr 10, 2019, 06:43 PM
Apr 2019

contact me, PM me if he's interested and I'll get you my contact information.

at140

(6,110 posts)
51. Give him the somewhat good news...
Wed Apr 10, 2019, 07:06 PM
Apr 2019

Most prostate cancers grow slowly, so chances are he will die of old age or other causes first.

 

smirkymonkey

(63,221 posts)
50. Best of luck to you marble falls!
Wed Apr 10, 2019, 06:54 PM
Apr 2019

I am glad you have great health care and you have a really good attitude which is important in fighting this thing.

marble falls

(57,099 posts)
52. It makes me more determined than ever to agitate even harder for universal health care ...
Wed Apr 10, 2019, 07:08 PM
Apr 2019

preferably single payer.

Lonestarblue

(10,011 posts)
57. Fellow Texan wishing you the best.
Wed Apr 10, 2019, 09:23 PM
Apr 2019

I’m in Austin, a really great place to live, so not far from Marble Falls. Wishing you a great outcome.

marble falls

(57,099 posts)
59. The Austin VA clinic is where my primary care physician is. Its just a great place. I'm going to ...
Wed Apr 10, 2019, 10:35 PM
Apr 2019

be fine, a little dinged and dented, missing a coupla pieces of original standard equipment but I'm going to be just fine.

wendyb-NC

(3,327 posts)
58. May all the healing energy of of the universe
Wed Apr 10, 2019, 10:16 PM
Apr 2019

surround you and bring you back to your native vital strength, and resilience. I send prayers, positive energy to loose this disease, completely. Peace.

Latest Discussions»General Discussion»For everyone who is inter...