stuck in place without being able to have family visitors to cheer them up. They must be so afraid.

Our mom is in her 90s, afraid and alone because we can't go see her. My sisters do face time with her when she can get an attendant to help her. It's not going to end well as we anticipate that she will be infected eventually and that will kill her. And none of us can be with her when that happens.

I cry with you too! :

Getting low on items and cannot go out and no help of course.

I rather be gone that live like this! It simply is not worth it and not-sustainable for any great length of time.

Give your mom a if you are able to do so!

I moved into moms apartment over the garage, she is in my sisters house. We are doing the best to keep her safe. Cancelled all the hospice care last week along with a caregiver. They were only a few hours a week, yet bathed her. Now it is all on us.

Good part. She is fully aware, just weak and, yes dying. After all these years I am finally able to flip Donnie the finger and say FU without getting my mouth washed out. Lol!

Can you order groceries in? A pick up? We are doing that now. It is the local market, not one I shop at. Double what I usually pay but buy some things. Enough to get by for a bit.

Hugs and please stay well.

Is there no one who could pick up groceries for you? We are staying home for the most part, but we do make quick trips out for groceries and meds.

My husband is 83+ and high risk as well.

He is not going out either.

As it now stands we are on our own; no help for the disabled or the elderly (I am both). If we were broke, we might find help.

The only thing I have going for me is that I never messed around with the MS drugs which alter/suppress the immune system which I have never fooled with, as many of them have a Black Box warning on them and no, you cannot just stop using them as the highly corrupt Multiple Sclerosis Society is just now stating!

My god, what about those with MS that are using these drugs? Will they all die having an immune system that has been altered/suppressed? Why did they not tell persons with MS this fact, other than tell you that you simply must use these drugs which may or may not do a thing to help or kill you and cost thousands of dollars a month? I think we know that answer don't we?

Many of these drugs lack efficacy and studies are too often statistically flawed, hence the ominous Black Box warning. This lets the drug companies off the hook, that is the reality of this.

The other thing I (and others with an rh factor) may have going for me is a rare blood type, a blood type that seems to be perhaps protective against the flu and other viruses (B rh-) for some reason. Otherwise, those with an rh factor tend to be a sickly lot. An rh factor means you have an extra layer of protein that surrounds the red blood cells. It is aka "The Celtic Curse" because bearing children can be deadly event.

RhoGam is an injection made up of antibodies called immunoglobulin, that help protect a fetus from its mother's antibodies. "RhoGAM prevents the Rh-negative mother from making antibodies during her pregnancy and this is administered to women bearing a child (or even after an abortion).

Diagnosed 2014 at 50 yo. I’m just getting worse. Multiple Sclerosis has been around too long there has to be a cure. I believe there is and it’s all hush hush. Too much $$ to be made for a cure. A cure means patients lost.

I was taking Gilenya first then stopped to start Ocrevus which I completely hated (infusion). I had bad progression from stopping G, like rebound. After Ocrevus fiasco now I take Mayzent/Siponimod which I wanted and had to wait for drug approval. It’s all such guessing game and the doctors don’t know as it’s all new stuff. We are all tested on. It’s like we are given stuff to hook us so we can’t stop. Treat the CAUSE not the SYMPTOMS. I’m worried about the virus killing me with ms. Then I think it might be best better off. It’s not even mentioned as a risk anywhere. Still I do all I can to not get Coronavirus. Thanks for reading my vent! We all need safe hugs.

During that time he has had multiple MRIs which show no progression of the disease. And his brain is a mess, with cerebral atrophy, multiple plaques, black holes etc. He has secondary progressive MS, which was upgraded to relapsing remitting because of the lack of advancement. It’s been over the last year or so his mobility has begun to falter, and only the last month or so concerning memory issues appeared.

Tysobry eventually kills, so it needs to be closely monitored. My husband is very high risk for PML right now. If he gets the covid-19 virus, it could kill him.

Before the pandemic, we were going to switch his MS medication. Going without is not an option in his case. It never was, given his disease progression. He still drives and functions well. He’s only 62.

I don’t believe the MS society is “highly corrupt” but I also don’t pay much attention to them. Rather, I listen to his neurologist, who specializes in MS and is well respected.

give your mom a hug for me.

Care for my mama during this. Thank,you for reminding us to care for each other.

DU is my cyber family. I can't get the virus from any of you. We have to steer clear of family to protect mom. Sis and I are in the vulnerable category as well, we are in our late sixties.

My niece is caring for virus victims in CCU and I cannot even see her.

❤️

Please keep in touch, Niyad, it is important.

Please keep in touch.

We need that.

I miss them terribly and yet I’m happy that they aren’t here to try and survive this. Love to you and your mama. Hold her tight while you can.

I have an N99 mask still in its package with 8 filters.
I gave to my friend to give to his wife.
I figured that she needed it more than I did.
I’ll get another one later.

I know how you felt

Another guy at work went to Mexico and brought back about 2000 N95 masks.
We can’t get them here, we have to go to Mexico to get them.
And we have the best health care in the world, my a$$ !

Today, I heard "I wanna hold your hand" sung as "I gotta wash my hands."

Hm.

and takes her temperature twice a day.

You and yours.

You warmed my heart. Thank you.