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Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsTesting my grandson UPDATE - looking like it's NOT COVID
UPDATE:
My grandson is still in the ICU, but three swabs and the antibody test have all come back negative for COVID. We're not sure yet what's going on, but I think it (hopefully) not being COVID is a great thing because of the potential long term effects.
It's his birthday today, and everyone there sang to him. My son sent a video. Grandson is trying to force himself to eat and drink. He's on an AVAP, whatever that is. I've got some research to do.
Thank you to all. Hopefully false alarm on COVID-19.
Because my last post was getting too cumbersome, I'm going to apologize and start another one.
[link:https://www.democraticunderground.com/100213380980|
He's still in the ICU at Children's Hospital. They took him off of COVID-19 protocol for a little over a day, and now decided to test him again and do the negative pressure thing in his room again. He's still on the bipap, but seemed a little more alert this morning. Yesterday he alternated between being completely out of it and being lucid. My son said sometimes it was as if he was watching him die before his eyes. He said the only time he took his own mask off was to wipe his tears. It's just killing me that we can't all be there to support them both.
In_The_Wind
(72,300 posts)My prayers are with you.
Rorey
(8,445 posts)But I'm wondering why they're testing again, unless that was always the plan. I just thought it was weird that they took off the negative pressure thing in the room.
And thank you.
In_The_Wind
(72,300 posts)I couldn't begin to guess about the testing. If they are coming back negative that sounds good. But they obviously still have questions about 'why is he sick'.
You are welcome.
MLAA
(17,289 posts)Rorey
(8,445 posts)My grandson's aunt (mom's side) is an RN and says the tests are garbage.
The only thing worse than no data is bad data
Amishman
(5,557 posts)The best flu tests still have a high false negative rate on B strains, and we've been working on them for decades
FirstLight
(13,360 posts)That's gotta be one of the hardest things about this is not being able to be close when a loved one is ill.
Hoping he pulls through, I wish my words could do more
Rorey
(8,445 posts)We can get real-time updates because my son is there with him because he's a minor. But for people who have nobody there, or who can't be there......just a nightmare.
Thank you.
sinkingfeeling
(51,457 posts)Rorey
(8,445 posts)I'm just astounded that they'd take him off of the protocol for a period of time and then put him back on. Maybe someone realized what a stupid move it was to take him off the protocol.
livetohike
(22,144 posts)your Grandson and strength for you and the family .
I'm trying to maintain confidence that he'll be okay, but I have to admit I'm terrified.
malaise
(268,999 posts)He'll fight his way out of this horrible virus
Rorey
(8,445 posts)He's very physically active. Didn't get to ski this year, which sucks.
This is the kid who is always dancing. Before I even realized he was sick I was in a store and a song came on that I always used to make him dance to. He's just a super kid. I mean, don't get me wrong, he's no angel. But he's definitely my angel. He always makes me laugh.
Thank you for your kind words.
malaise
(268,999 posts)helpisontheway
(5,008 posts)Rorey
(8,445 posts)Honestly, my heart was already breaking at what so many have been going through.
hlthe2b
(102,276 posts)All my hopes to you and your family, that you may see an improvement toward full recovery SOON>
Rorey
(8,445 posts)I think it was very careless to take him off. What that meant was that the personnel who came into his room weren't wearing the same PPE. My son has been with my grandson since the second hospital. At the hospital in our town, there was a glass partition. My son is sure that he's also got it, so hopefully they'll be allowing him to get tested. We're going to have to figure out living arrangements so that we can keep everyone as safe as possible. I think I'm getting some roommates (my daughter-in-law and three-year-old grandson), and I sure don't mind having them here, but it's going to be hard on my son and his family to have to be separated.
hlthe2b
(102,276 posts)I missed your other thread, Im so sorry for all you and your family are going through right now with so much happening at once. {{Hugs}} from a stranger
Rorey
(8,445 posts)I am afraid this nightmare is going to get real for a lot of us here, especially because all of the idiots who can't be bothered to follow rules.
I know it's unrealistic to think that we can hide indefinitely from this awful virus, but slowing it down is going to save lives. I'm so thankful that my grandson is in what is possibly the best hospital for him to be in in Colorado.
You absolutely shouldnt feel selfish for whatever you say here. The way I see it, the best thing about an internet community is its ability to give people a safe place to express things. It may be the tiniest bit easier to put on your brave face in real life because of the opportunity to vent and the kind words of support here. Thats the internet at its finest, what it should be.
eta: My brother is now about to go back to work after having it, a good outcome is always worth believing in.
Rorey
(8,445 posts)2golddogs
(107 posts)MerryBlooms
(11,769 posts)Hang in there.
Rorey
(8,445 posts)I know my son is putting on a brave front. I'm so proud of him.
MerryBlooms
(11,769 posts)The doctors encouraged him to let me go, but he stood his ground and was by my side for 5 months while I was in the hospital the first time and by my side the second time for 4 months. I was on a vent for 3 months or so total the first time, and not sure how many times the doctors told him they weren't sure if I would be the same person he knew. But, my son was there and believed in me, and I was strong. He fought for my life, and I fought equally hard. I don't know why I'm still here, but I am. I can relate to so much of what's going on now, I have the scars... And the scars still hurt when I swallow and I see them every day when I look in the mirror.
Without my son, I would be dead and just remembered. I owe him my life. Your son is like my son. It's not a brave front, he IS brave and lending you part of his strength, he's made from very special cloth. His strength is something very rare and extraordinary. Celebrate his strength, find peace in his strength and trust.
Rorey
(8,445 posts)And you are amazing.
Thank you.
MerryBlooms
(11,769 posts)sheshe2
(83,770 posts)I honestly know that getting through this whole nightmare - for the last couple of months - is easier because I have a kinship with "my people" here at DU.
Really, the last 3 1/2 years......
onecaliberal
(32,861 posts)Rorey
(8,445 posts)He really is a sweet guy. My son told me that he's been talking to his girlfriend and to the rest of us in his sleep.
onecaliberal
(32,861 posts)We will continue to keep you all lifted up. We wish him every good vibe and all the strength in the world. 💕
lostnfound
(16,179 posts)I hope he feels better soon.
Rorey
(8,445 posts)And thank you.
He's been awake a little more today.
Rae
(84 posts)I'm so sorry. Prayers for a quick recovery. He's young and strong. xoxo
Rorey
(8,445 posts)He says he's feeling good right now, but apparently, for some reason, they're going to put a tube in through his nose to feed him. I don't understand. My daughter-in-law, his step-mom, just told me that he's not able to eat.
niyad
(113,306 posts)Rorey
(8,445 posts)Thank you.
iluvtennis
(19,858 posts)Rorey
(8,445 posts)We're all trying to stay positive. My daughter-in-law just told me that my grandson's mom is there to relieve my son so he could leave for a bit. He's just sitting in his truck in the parking lot.
OneGrassRoot
(22,920 posts)is going through this.
Rorey
(8,445 posts)I was really hoping that if any of the grandkids got it, they'd skate right through it.
Of course, I'm just assuming that it's COVID-19. We're waiting for the results of the third test after two negative tests.
And thank you.
Demovictory9
(32,456 posts)Rorey
(8,445 posts)The doctor told my son yesterday that they expect my grandson to be in the ICU for another week, give or take a day or two. My daughter-in-law told me that they also did an antibody test and the results take two weeks. Three of the swab tests all came back negative. I have a lot to learn about these tests. I hear so much about false negatives on the swab tests.
My grandson actually ate a little jello yesterday. They had put in a tube through his nose to give him nutrition. It took three painful tries to get it in, and then he pulled it out in his sleep. My son sent a pic of him sitting up, and he looked pretty sick. He still has the bipap. I sent my grandson an "I love you" text yesterday, but he didn't reply. That's okay. I just wanted to say it to him.
I'm getting ready to drive up to take my son some clothes and such. I won't get to go in to the hospital, of course. We just put things we bring him in his truck. I'm worried about my son too. This has got to be very exhausting for him, emotionally and physically. Plus he's there at a hospital with germs.
Thank you for asking.
Demovictory9
(32,456 posts)NNadir
(33,518 posts)We need our young people more than ever.
Rorey
(8,445 posts)He's saying that he feels better than he has, but he can't eat. I'm still afraid because we hear so much about people feeling better and then going way down.
Thank you so much.
curlyred
(1,879 posts)But I know your heart is breaking.
Rorey
(8,445 posts)Even though it's a hundred miles away, I'm glad he's there.
We're waiting for the results of the 3rd COVID test now.
Meowmee
(5,164 posts)This must be so incredibly hard for you and your son
I agree it was very dumb to take him off any protocol. I also had a neg test but my doc said it is false neg and told me I have to isolate from my family until I have no more symptoms. The tests have a high false neg rate. I am almost 4 weeks in with double pneumonia, I have been self monitoring at home- still having a lot of pain etc. I would not have anyone come to live with you who could have been exposed. I am very worried I have already exposed my family early on- I am wearing a mask and gloves etc. whenever I am in the general areas. The most contagious phase is supposedly at the beginning. My father thinks he has it now too with mostly neurological symptoms. Tg he does not seem to be getting worse.
Low oxygen and blood thinning treatments are being used for many covid patients who seem to be getting something like high altitude sickness and blood clots.
Rorey
(8,445 posts)I'm so sorry for the pain you're enduring. I've never had pneumonia, but my son and his dad both did. My son did well and didn't have to be hospitalized. His dad didn't recover.
I think the plan will be for my daughter-in-law and three-year-old grandson to live with me until we're past the quarantine period. They've been super careful, and haven't been around my older grandson at all since this virus thing started. He's been staying at his mom's. It was a decision they all made so he wouldn't be going back and forth, possibly spreading anything if anyone caught it. My son hadn't seen my grandson face-to-face until the second hospital. Everyone has been video chatting.
We're just going to have to weigh options when it comes to living arrangements.
I am very sorry for your loss of your husband, that is terrible😿
I have never had it either, it is horrible. I hope I never do again. I am scared to say that today I was a bit better pain wise. Every time I say that I get terrible pain again a few hours later. I have my fingers crossed I have that crossed a bridge and my lungs are starting to heal now.
It sounds like they werent exposed to him so you should be ok.
🙏🏻 That your grandson improves soon.
Rorey
(8,445 posts)My husband who had pneumonia, and subsequently developed sepsis, was 38. This whole ordeal, and the reading I'm doing about this virus, are quite a stark reminder about everything he went through. His body was also throwing out those clots. I never got good answers about what was going on. They, meaning the medical professionals and scientists, didn't know as much then.
Yesterday the doctor told my son that they expect my grandson to be in the ICU for another week, give or take a day or two. I guess I don't understand all of this testing stuff. My grandson has had three of the swab tests, and all came back negative. He also had the antibody test in which they draw blood, and apparently that one takes two weeks.
I hope your recovery goes quickly and smoothly. It sounds like a living hell. Thank you for your kind words.
He passed so young. You were right they know so much more now than many years ago. That is very chilling his case had so many similarities. I am on a blood thinner because I have already had clots and I think that is probably helping me although I am still worried that I could have a clot from this as well as pneumonia so I want to find out some point if they can. I will have to be on different meds then. My doctor said I should go back and get another x-ray now so I have to go back to the freezing field hospital or some clinics here are now treating covid patients too.
I am so exhausted today, I guess from the relief of not having that horrible pain, I think Im just gonna wait till tomorrow.
I dont get that what is going on with the testing either, very confusing but obviously there are problems with a lot of these tests for various reasons. My doctor said to wait on the antibody test because she doesnt think they are good enough yet.
I hope he gets out of the icu soon and starts to recover💕
Demsrule86
(68,576 posts)positive eventually...but don't know how many test he took.
Rorey
(8,445 posts)I didn't know the correlation between false negatives and clot issues. Scary.
Demsrule86
(68,576 posts)Last edited Mon May 4, 2020, 09:16 PM - Edit history (1)
was clot not some sort of blockage so they changed the protocol. St. Vincent's in Bridgeport Connecticut has a very good cardiology department. My Dad had a valve replacement there in the 80's. Dad had rheumatic fever as a child so his heart was weakened.
Demsrule86
(68,576 posts)Rorey
(8,445 posts)The third test also came back negative, but for now they're still following the protocol for the virus. On the upside, he does seem to be a little better, so hopefully things will keep going in that direction.
Alliepoo
(2,221 posts)Last edited Mon May 4, 2020, 05:05 PM - Edit history (1)
Sending a gajillion good vibes to your sweet fella and wishing you and your family peace. Young people are strong and it sounds like hes receiving care in an excellent facility. Hope he recovers very soon! And heres a big ((HUG)) for you. Never worry about sharing your heart here with your DU family. Thats what were here for-weve got you!!
Rorey
(8,445 posts)I've hired my grandsons to do work for me at times so they could earn some cash. He's the one who never gets lazy.
I appreciate so much those good vibes.
tavernier
(12,388 posts)and a hug thrown in for you. Im a grandma. My heart hurts to read this.
Rorey
(8,445 posts)Being a grandma has been rewarding beyond measure, and the level of fear about something happening to them is also immeasurable, as you know.
Thank you
EllieBC
(3,014 posts)How is he this evening? I hope hes improving.
Rorey
(8,445 posts)My son called me around 7. He was worried about the night, as it always seems to be the worst. I'm anxiously waiting until it's late enough to text him. He's probably awake anyway, but I don't want to take a chance. The first night he slept in the same room as my grandson, but of course didn't really sleep. The second night he slept in a sleeping room there and had a better night.
In better times, there would be a group of us trading off being there with my grandson. My grandson's mom has been up a couple of times to relieve my son, but she's going to have a baby any day, so we can't expect too much. My son's wife - my daughter-in-law - is pregnant too, but not due until early August. She's having a hard time not being able to go up and see my grandson. She and their three year old have been completely isolating since this whole virus thing began.
Thank you.
mzmolly
(50,992 posts)My thoughts are with you and yours.
Rorey
(8,445 posts)Thank you for your kind words.
Last night they put in a nose tube to give him nutrition. It took three very painful tries, and then he pulled it out during the night without realizing. My son just texted that they're saying he'll be in the ICU for maybe another week, but didn't give details of why. I'm waiting for a better update.
I'm so sorry.
I can't imagine what you all are experiencing. My heart goes out to you, your family and you and your grandson remain in my thoughts.