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Rorey

(8,445 posts)
Mon May 4, 2020, 01:31 PM May 2020

Testing my grandson UPDATE - looking like it's NOT COVID

UPDATE:

My grandson is still in the ICU, but three swabs and the antibody test have all come back negative for COVID. We're not sure yet what's going on, but I think it (hopefully) not being COVID is a great thing because of the potential long term effects.

It's his birthday today, and everyone there sang to him. My son sent a video. Grandson is trying to force himself to eat and drink. He's on an AVAP, whatever that is. I've got some research to do.

Thank you to all. Hopefully false alarm on COVID-19.




Because my last post was getting too cumbersome, I'm going to apologize and start another one.

[link:https://www.democraticunderground.com/100213380980|

He's still in the ICU at Children's Hospital. They took him off of COVID-19 protocol for a little over a day, and now decided to test him again and do the negative pressure thing in his room again. He's still on the bipap, but seemed a little more alert this morning. Yesterday he alternated between being completely out of it and being lucid. My son said sometimes it was as if he was watching him die before his eyes. He said the only time he took his own mask off was to wipe his tears. It's just killing me that we can't all be there to support them both.

72 replies = new reply since forum marked as read
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Testing my grandson UPDATE - looking like it's NOT COVID (Original Post) Rorey May 2020 OP
I'm so sorry, Rorey. In_The_Wind May 2020 #1
At least he seems a little better this morning Rorey May 2020 #5
It's a day by day of learning what to do. In_The_Wind May 2020 #16
Sending 💕💕💕💕 to your grandson and your whole family MLAA May 2020 #2
This repeated testing thing makes me even more convinced that these tests are bogus Rorey May 2020 #7
I hear you. MLAA May 2020 #8
viral tests in general are tricky, we still don't have a particularly good test for influenza B Amishman May 2020 #31
OMG... so sorry FirstLight May 2020 #3
With technology we can communicate Rorey May 2020 #12
So sorry. Hoping for the best. sinkingfeeling May 2020 #4
Thank you. Rorey May 2020 #25
Sending you a hug and positive thoughts for healing for livetohike May 2020 #6
Thank you Rorey May 2020 #22
If he's anything like you malaise May 2020 #9
He has always been super active Rorey May 2020 #15
I was and am no angel malaise May 2020 #20
Praying for your entire family. 🙏🏽Nt helpisontheway May 2020 #10
I appreciate it Rorey May 2020 #26
I shed a couple of my own reading that. hlthe2b May 2020 #11
I'm glad he's back on the protocol Rorey May 2020 #27
So very difficult. I will keep all of you in my thoughts. hlthe2b May 2020 #35
Rorey 2golddogs May 2020 #13
I kinda feel a little selfish taking up space here Rorey May 2020 #19
Rorey 2golddogs May 2020 #21
That is great news about your brother NT Rorey May 2020 #23
Thank you kindly NT 2golddogs May 2020 #24
Praying your grandson is through the worst of it and begins transitioning today to recovery. MerryBlooms May 2020 #14
Thank you Rorey May 2020 #28
After my accident in 2006, my son was by my side through my darkest days. MerryBlooms May 2020 #55
Your amazing story, and amazing words about my son, have touched my heart Rorey May 2020 #56
You are also amazing. Hang in there, and I know it's not easy, but, try to get some rest. MerryBlooms May 2020 #61
My thoughts are with you and yours, Rorey. sheshe2 May 2020 #17
Thank you Rorey May 2020 #29
🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻 Strength and healing to your sweet boy, and the family. onecaliberal May 2020 #18
Thank you Rorey May 2020 #30
Sounds like he's fighting it with all his might... onecaliberal May 2020 #32
May I ask how old he is? lostnfound May 2020 #33
He'll be 17 on Thursday Rorey May 2020 #47
Oh my gosh, you all must be so scared Rae May 2020 #34
I just don't even know how to feel Rorey May 2020 #48
I am so very sorry, Rorey. Holding you and your family in light and love. niyad May 2020 #36
It really does mean a lot to me that you all care. Rorey May 2020 #49
Sent up a prayer for your grandson. Be strong and exercise that power of positive thinking. nt iluvtennis May 2020 #37
Everything helps Rorey May 2020 #50
I have no words. I am so sorry your family... OneGrassRoot May 2020 #38
I feel like we're probably all going to go through this at some point Rorey May 2020 #51
any news? Demovictory9 May 2020 #68
Just a little Rorey May 2020 #70
sending many good vibes your way. Demovictory9 May 2020 #72
I am really, really, really sorry. He's hoping the young man pulls through. NNadir May 2020 #39
I have a lot of hope right now Rorey May 2020 #52
He could not be in a better hospital curlyred May 2020 #40
That's what I'm thinking, other than maybe the Mayo clinic Rorey May 2020 #46
So sorry hoping he recovers soon🙏🏻 He is a fighter Meowmee May 2020 #41
I'm so sorry. What an ordeal! Rorey May 2020 #44
Thanks💕 Meowmee May 2020 #67
It's been a lot of years Rorey May 2020 #69
So sorry Meowmee May 2020 #71
I told you about my brother. He tested negative...many with blood clot issues do. He did test Demsrule86 May 2020 #42
There's not a doubt in my mind that the rate of infection is way higher than we know Rorey May 2020 #45
I had never heard of it...I was told that Doctors would attempt immediate surgery only to find it Demsrule86 May 2020 #54
I am praying for you and your beloved Grandson... Demsrule86 May 2020 #57
Thank you Rorey May 2020 #58
OMGosh-missed your earlier thread Alliepoo May 2020 #43
He has always been so full of energy Rorey May 2020 #53
Prayers for him tavernier May 2020 #59
Thank you for both Rorey May 2020 #60
I hope there are answers soon. EllieBC May 2020 #62
The last I heard, he wasn't doing too bad Rorey May 2020 #63
I'm glad he's doing better. mzmolly May 2020 #64
Not getting out of the ICU Rorey May 2020 #65
Oh no. mzmolly May 2020 #66

Rorey

(8,445 posts)
5. At least he seems a little better this morning
Mon May 4, 2020, 01:37 PM
May 2020

But I'm wondering why they're testing again, unless that was always the plan. I just thought it was weird that they took off the negative pressure thing in the room.

And thank you.

In_The_Wind

(72,300 posts)
16. It's a day by day of learning what to do.
Mon May 4, 2020, 01:48 PM
May 2020

I couldn't begin to guess about the testing. If they are coming back negative that sounds good. But they obviously still have questions about 'why is he sick'.

You are welcome.

Rorey

(8,445 posts)
7. This repeated testing thing makes me even more convinced that these tests are bogus
Mon May 4, 2020, 01:39 PM
May 2020

My grandson's aunt (mom's side) is an RN and says the tests are garbage.

Amishman

(5,557 posts)
31. viral tests in general are tricky, we still don't have a particularly good test for influenza B
Mon May 4, 2020, 02:25 PM
May 2020

The best flu tests still have a high false negative rate on B strains, and we've been working on them for decades

FirstLight

(13,360 posts)
3. OMG... so sorry
Mon May 4, 2020, 01:36 PM
May 2020

That's gotta be one of the hardest things about this is not being able to be close when a loved one is ill.

Hoping he pulls through, I wish my words could do more

Rorey

(8,445 posts)
12. With technology we can communicate
Mon May 4, 2020, 01:41 PM
May 2020

We can get real-time updates because my son is there with him because he's a minor. But for people who have nobody there, or who can't be there......just a nightmare.

Thank you.

Rorey

(8,445 posts)
25. Thank you.
Mon May 4, 2020, 02:03 PM
May 2020

I'm just astounded that they'd take him off of the protocol for a period of time and then put him back on. Maybe someone realized what a stupid move it was to take him off the protocol.

livetohike

(22,144 posts)
6. Sending you a hug and positive thoughts for healing for
Mon May 4, 2020, 01:37 PM
May 2020

your Grandson and strength for you and the family .

Rorey

(8,445 posts)
22. Thank you
Mon May 4, 2020, 02:00 PM
May 2020

I'm trying to maintain confidence that he'll be okay, but I have to admit I'm terrified.


Rorey

(8,445 posts)
15. He has always been super active
Mon May 4, 2020, 01:45 PM
May 2020

He's very physically active. Didn't get to ski this year, which sucks.

This is the kid who is always dancing. Before I even realized he was sick I was in a store and a song came on that I always used to make him dance to. He's just a super kid. I mean, don't get me wrong, he's no angel. But he's definitely my angel. He always makes me laugh.

Thank you for your kind words.

hlthe2b

(102,276 posts)
11. I shed a couple of my own reading that.
Mon May 4, 2020, 01:41 PM
May 2020

All my hopes to you and your family, that you may see an improvement toward full recovery SOON>

Rorey

(8,445 posts)
27. I'm glad he's back on the protocol
Mon May 4, 2020, 02:11 PM
May 2020

I think it was very careless to take him off. What that meant was that the personnel who came into his room weren't wearing the same PPE. My son has been with my grandson since the second hospital. At the hospital in our town, there was a glass partition. My son is sure that he's also got it, so hopefully they'll be allowing him to get tested. We're going to have to figure out living arrangements so that we can keep everyone as safe as possible. I think I'm getting some roommates (my daughter-in-law and three-year-old grandson), and I sure don't mind having them here, but it's going to be hard on my son and his family to have to be separated.

2golddogs

(107 posts)
13. Rorey
Mon May 4, 2020, 01:42 PM
May 2020

I missed your other thread, I’m so sorry for all you and your family are going through right now with so much happening at once. {{Hugs}} from a stranger

Rorey

(8,445 posts)
19. I kinda feel a little selfish taking up space here
Mon May 4, 2020, 01:51 PM
May 2020

I am afraid this nightmare is going to get real for a lot of us here, especially because all of the idiots who can't be bothered to follow rules.

I know it's unrealistic to think that we can hide indefinitely from this awful virus, but slowing it down is going to save lives. I'm so thankful that my grandson is in what is possibly the best hospital for him to be in in Colorado.

2golddogs

(107 posts)
21. Rorey
Mon May 4, 2020, 01:56 PM
May 2020

You absolutely shouldn’t feel selfish for whatever you say here. The way I see it, the best thing about an internet community is its ability to give people a safe place to express things. It may be the tiniest bit easier to put on your brave face in real life because of the opportunity to vent and the kind words of support here. That’s the internet at its finest, what it should be.

eta: My brother is now about to go back to work after having it, a good outcome is always worth believing in.

MerryBlooms

(11,769 posts)
14. Praying your grandson is through the worst of it and begins transitioning today to recovery.
Mon May 4, 2020, 01:43 PM
May 2020

Hang in there.

MerryBlooms

(11,769 posts)
55. After my accident in 2006, my son was by my side through my darkest days.
Mon May 4, 2020, 10:59 PM
May 2020

The doctors encouraged him to let me go, but he stood his ground and was by my side for 5 months while I was in the hospital the first time and by my side the second time for 4 months. I was on a vent for 3 months or so total the first time, and not sure how many times the doctors told him they weren't sure if I would be the same person he knew. But, my son was there and believed in me, and I was strong. He fought for my life, and I fought equally hard. I don't know why I'm still here, but I am. I can relate to so much of what's going on now, I have the scars... And the scars still hurt when I swallow and I see them every day when I look in the mirror.

Without my son, I would be dead and just remembered. I owe him my life. Your son is like my son. It's not a brave front, he IS brave and lending you part of his strength, he's made from very special cloth. His strength is something very rare and extraordinary. Celebrate his strength, find peace in his strength and trust.

Rorey

(8,445 posts)
56. Your amazing story, and amazing words about my son, have touched my heart
Mon May 4, 2020, 11:10 PM
May 2020

And you are amazing.



Thank you.

Rorey

(8,445 posts)
29. Thank you
Mon May 4, 2020, 02:15 PM
May 2020

I honestly know that getting through this whole nightmare - for the last couple of months - is easier because I have a kinship with "my people" here at DU.

Really, the last 3 1/2 years......

onecaliberal

(32,861 posts)
18. 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻 Strength and healing to your sweet boy, and the family.
Mon May 4, 2020, 01:51 PM
May 2020

Rorey

(8,445 posts)
30. Thank you
Mon May 4, 2020, 02:18 PM
May 2020

He really is a sweet guy. My son told me that he's been talking to his girlfriend and to the rest of us in his sleep.

onecaliberal

(32,861 posts)
32. Sounds like he's fighting it with all his might...
Mon May 4, 2020, 02:30 PM
May 2020

We will continue to keep you all lifted up. We wish him every good vibe and all the strength in the world. 💕

 

Rae

(84 posts)
34. Oh my gosh, you all must be so scared
Mon May 4, 2020, 03:33 PM
May 2020

I'm so sorry. Prayers for a quick recovery. He's young and strong. xoxo

Rorey

(8,445 posts)
48. I just don't even know how to feel
Mon May 4, 2020, 07:18 PM
May 2020

He says he's feeling good right now, but apparently, for some reason, they're going to put a tube in through his nose to feed him. I don't understand. My daughter-in-law, his step-mom, just told me that he's not able to eat.

Rorey

(8,445 posts)
50. Everything helps
Mon May 4, 2020, 07:21 PM
May 2020

We're all trying to stay positive. My daughter-in-law just told me that my grandson's mom is there to relieve my son so he could leave for a bit. He's just sitting in his truck in the parking lot.

Rorey

(8,445 posts)
51. I feel like we're probably all going to go through this at some point
Mon May 4, 2020, 07:24 PM
May 2020

I was really hoping that if any of the grandkids got it, they'd skate right through it.

Of course, I'm just assuming that it's COVID-19. We're waiting for the results of the third test after two negative tests.

And thank you.

Rorey

(8,445 posts)
70. Just a little
Wed May 6, 2020, 08:14 AM
May 2020

The doctor told my son yesterday that they expect my grandson to be in the ICU for another week, give or take a day or two. My daughter-in-law told me that they also did an antibody test and the results take two weeks. Three of the swab tests all came back negative. I have a lot to learn about these tests. I hear so much about false negatives on the swab tests.

My grandson actually ate a little jello yesterday. They had put in a tube through his nose to give him nutrition. It took three painful tries to get it in, and then he pulled it out in his sleep. My son sent a pic of him sitting up, and he looked pretty sick. He still has the bipap. I sent my grandson an "I love you" text yesterday, but he didn't reply. That's okay. I just wanted to say it to him.

I'm getting ready to drive up to take my son some clothes and such. I won't get to go in to the hospital, of course. We just put things we bring him in his truck. I'm worried about my son too. This has got to be very exhausting for him, emotionally and physically. Plus he's there at a hospital with germs.

Thank you for asking.

NNadir

(33,518 posts)
39. I am really, really, really sorry. He's hoping the young man pulls through.
Mon May 4, 2020, 04:08 PM
May 2020

We need our young people more than ever.

Rorey

(8,445 posts)
52. I have a lot of hope right now
Mon May 4, 2020, 07:26 PM
May 2020

He's saying that he feels better than he has, but he can't eat. I'm still afraid because we hear so much about people feeling better and then going way down.

Thank you so much.

Rorey

(8,445 posts)
46. That's what I'm thinking, other than maybe the Mayo clinic
Mon May 4, 2020, 06:35 PM
May 2020

Even though it's a hundred miles away, I'm glad he's there.

We're waiting for the results of the 3rd COVID test now.

Meowmee

(5,164 posts)
41. So sorry hoping he recovers soon🙏🏻 He is a fighter
Mon May 4, 2020, 04:16 PM
May 2020

This must be so incredibly hard for you and your son

I agree it was very dumb to take him off any protocol. I also had a neg test but my doc said it is false neg and told me I have to isolate from my family until I have no more symptoms. The tests have a high false neg rate. I am almost 4 weeks in with double pneumonia, I have been self monitoring at home- still having a lot of pain etc. I would not have anyone come to live with you who could have been exposed. I am very worried I have already exposed my family early on- I am wearing a mask and gloves etc. whenever I am in the general areas. The most contagious phase is supposedly at the beginning. My father thinks he has it now too with mostly neurological symptoms. Tg he does not seem to be getting worse.

Low oxygen and blood thinning treatments are being used for many covid patients who seem to be getting something like high altitude sickness and blood clots.

Rorey

(8,445 posts)
44. I'm so sorry. What an ordeal!
Mon May 4, 2020, 06:31 PM
May 2020

I'm so sorry for the pain you're enduring. I've never had pneumonia, but my son and his dad both did. My son did well and didn't have to be hospitalized. His dad didn't recover.

I think the plan will be for my daughter-in-law and three-year-old grandson to live with me until we're past the quarantine period. They've been super careful, and haven't been around my older grandson at all since this virus thing started. He's been staying at his mom's. It was a decision they all made so he wouldn't be going back and forth, possibly spreading anything if anyone caught it. My son hadn't seen my grandson face-to-face until the second hospital. Everyone has been video chatting.

We're just going to have to weigh options when it comes to living arrangements.


Meowmee

(5,164 posts)
67. Thanks💕
Wed May 6, 2020, 02:49 AM
May 2020

I am very sorry for your loss of your husband, that is terrible😿

I have never had it either, it is horrible. I hope I never do again. I am scared to say that today I was a bit better pain wise. Every time I say that I get terrible pain again a few hours later. I have my fingers crossed I have that crossed a bridge and my lungs are starting to heal now.
It sounds like they weren’t exposed to him so you should be ok.
🙏🏻 That your grandson improves soon.

Rorey

(8,445 posts)
69. It's been a lot of years
Wed May 6, 2020, 08:05 AM
May 2020

My husband who had pneumonia, and subsequently developed sepsis, was 38. This whole ordeal, and the reading I'm doing about this virus, are quite a stark reminder about everything he went through. His body was also throwing out those clots. I never got good answers about what was going on. They, meaning the medical professionals and scientists, didn't know as much then.

Yesterday the doctor told my son that they expect my grandson to be in the ICU for another week, give or take a day or two. I guess I don't understand all of this testing stuff. My grandson has had three of the swab tests, and all came back negative. He also had the antibody test in which they draw blood, and apparently that one takes two weeks.

I hope your recovery goes quickly and smoothly. It sounds like a living hell. Thank you for your kind words.


Meowmee

(5,164 posts)
71. So sorry
Wed May 6, 2020, 04:59 PM
May 2020

He passed so young. You were right they know so much more now than many years ago. That is very chilling his case had so many similarities. I am on a blood thinner because I have already had clots and I think that is probably helping me although I am still worried that I could have a clot from this as well as pneumonia so I want to find out some point if they can. I will have to be on different meds then. My doctor said I should go back and get another x-ray now so I have to go back to the freezing field hospital or some clinics here are now treating covid patients too.

I am so exhausted today, I guess from the relief of not having that horrible pain, I think I’m just gonna wait till tomorrow.


I don’t get that what is going on with the testing either, very confusing but obviously there are problems with a lot of these tests for various reasons. My doctor said to wait on the antibody test because she doesn’t think they are good enough yet.
I hope he gets out of the icu soon and starts to recover💕

Demsrule86

(68,576 posts)
42. I told you about my brother. He tested negative...many with blood clot issues do. He did test
Mon May 4, 2020, 04:17 PM
May 2020

positive eventually...but don't know how many test he took.

Rorey

(8,445 posts)
45. There's not a doubt in my mind that the rate of infection is way higher than we know
Mon May 4, 2020, 06:33 PM
May 2020

I didn't know the correlation between false negatives and clot issues. Scary.

Demsrule86

(68,576 posts)
54. I had never heard of it...I was told that Doctors would attempt immediate surgery only to find it
Mon May 4, 2020, 08:30 PM
May 2020

Last edited Mon May 4, 2020, 09:16 PM - Edit history (1)

was clot not some sort of blockage so they changed the protocol. St. Vincent's in Bridgeport Connecticut has a very good cardiology department. My Dad had a valve replacement there in the 80's. Dad had rheumatic fever as a child so his heart was weakened.

Rorey

(8,445 posts)
58. Thank you
Mon May 4, 2020, 11:17 PM
May 2020

The third test also came back negative, but for now they're still following the protocol for the virus. On the upside, he does seem to be a little better, so hopefully things will keep going in that direction.

Alliepoo

(2,221 posts)
43. OMGosh-missed your earlier thread
Mon May 4, 2020, 04:24 PM
May 2020

Last edited Mon May 4, 2020, 05:05 PM - Edit history (1)

Sending a gajillion good vibes to your sweet fella and wishing you and your family peace. Young people are strong and it sounds like he’s receiving care in an excellent facility. Hope he recovers very soon! And here’s a big ((HUG)) for you. Never worry about sharing your heart here with your DU family. That’s what we’re here for-we’ve got you!!

Rorey

(8,445 posts)
53. He has always been so full of energy
Mon May 4, 2020, 07:29 PM
May 2020

I've hired my grandsons to do work for me at times so they could earn some cash. He's the one who never gets lazy.

I appreciate so much those good vibes.

Rorey

(8,445 posts)
60. Thank you for both
Mon May 4, 2020, 11:25 PM
May 2020

Being a grandma has been rewarding beyond measure, and the level of fear about something happening to them is also immeasurable, as you know.
Thank you

Rorey

(8,445 posts)
63. The last I heard, he wasn't doing too bad
Tue May 5, 2020, 08:44 AM
May 2020

My son called me around 7. He was worried about the night, as it always seems to be the worst. I'm anxiously waiting until it's late enough to text him. He's probably awake anyway, but I don't want to take a chance. The first night he slept in the same room as my grandson, but of course didn't really sleep. The second night he slept in a sleeping room there and had a better night.

In better times, there would be a group of us trading off being there with my grandson. My grandson's mom has been up a couple of times to relieve my son, but she's going to have a baby any day, so we can't expect too much. My son's wife - my daughter-in-law - is pregnant too, but not due until early August. She's having a hard time not being able to go up and see my grandson. She and their three year old have been completely isolating since this whole virus thing began.

Thank you.

Rorey

(8,445 posts)
65. Not getting out of the ICU
Tue May 5, 2020, 11:27 AM
May 2020

Thank you for your kind words.

Last night they put in a nose tube to give him nutrition. It took three very painful tries, and then he pulled it out during the night without realizing. My son just texted that they're saying he'll be in the ICU for maybe another week, but didn't give details of why. I'm waiting for a better update.

mzmolly

(50,992 posts)
66. Oh no.
Tue May 5, 2020, 01:04 PM
May 2020

I'm so sorry.

I can't imagine what you all are experiencing. My heart goes out to you, your family and you and your grandson remain in my thoughts.

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