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demmiblue

(36,896 posts)
Sat May 23, 2020, 02:37 PM May 2020

It's been 1yr since I cuddled my child as she took her last breath, 12months since I held her, 52wk

It's been 1yr since I cuddled my child as she took her last breath, 12months since I held her, 52wks since I heard her giggle, 365days since I kissed her, 8760hrs since we held hands & 525,600 minutes since I whispered in her ear that she’s the most beautiful girl in the world



It feels like an eternity, but knowing I have decades more to live without her makes this feel like no time at all. I will continue to fight for my strength so I can honor her life, keep her story and impact alive, and change this world for the better, in her name. ⁣



#SweetSophia is forever in our hearts & souls. Please continue to share our messages of awareness & acceptance. Please commit to helping us normalize facial differences & profound disabilities. Go to http://sophias-voice.com to donate.



Thank you to those that have supported me and stayed by my side. #SweetSophia #Grief #ChildLoss #NormalizeFacialDifferences #facialdifference #disabilityawareness #disability



Here’s the video of her first weeks being in this world. It makes me happy. She was a life changer.





Aww, fuck.
22 replies = new reply since forum marked as read
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It's been 1yr since I cuddled my child as she took her last breath, 12months since I held her, 52wk (Original Post) demmiblue May 2020 OP
May they both find peace... hlthe2b May 2020 #1
Very sad ... sorry for her loss ... mr_lebowski May 2020 #2
Rett syndrome, plus other deformities. BusyBeingBest May 2020 #7
. DarthDem May 2020 #3
You can learn more about this remarkable child and mother here. Alex4Martinez May 2020 #4
Thank you for adding that. demmiblue May 2020 #8
Very sad. Stuart G May 2020 #5
.. roamer65 May 2020 #6
Hard to believe how cruel people can be-- BusyBeingBest May 2020 #9
What incredibly strong people they are. coti May 2020 #10
The more they need you, the deeper you love them. Laffy Kat May 2020 #11
What a beautiful and heartbreaking story. Fla Dem May 2020 #12
That was wonderful! Thanks for giving us the chance to experience this! Karadeniz May 2020 #13
Such a beautiful family! And she has her mommy's gorgeous eyes. Native May 2020 #14
Beautiful blue eyes. Scarsdale May 2020 #17
Peace to both mother and daughter! pazzyanne May 2020 #15
.. cate94 May 2020 #16
Wishing you peace n/t Kitchari May 2020 #18
She is and was BittyJenkins May 2020 #19
Lagrimas, tears of a mother there is no palabra, words that express the immense pain..so I'll send RestoreAmerica2020 May 2020 #20
Such a sad loss of a precious child. wendyb-NC May 2020 #21
Wishing you solace GeoWilliam750 May 2020 #22

BusyBeingBest

(8,059 posts)
9. Hard to believe how cruel people can be--
Sat May 23, 2020, 02:54 PM
May 2020

to target a family that's already bearing a heavy, sad burden for further abuse. Sick society.

coti

(4,612 posts)
10. What incredibly strong people they are.
Sat May 23, 2020, 03:23 PM
May 2020

Thank you for showing us what it is to be good, strong people, and to love, Weaver family.

Scarsdale

(9,426 posts)
17. Beautiful blue eyes.
Sat May 23, 2020, 05:21 PM
May 2020

Born into just the right family who loved her completely. So very sorry for your loss. I know the heartbreak of losing a child. R.I.P. Sophia.

RestoreAmerica2020

(3,439 posts)
20. Lagrimas, tears of a mother there is no palabra, words that express the immense pain..so I'll send
Sat May 23, 2020, 05:47 PM
May 2020

..you a big hug. Paz.


PS. My baby grandaughter died after 10 days, she was born premature her lungs were not yet developed..I was in room as her mother held her as she took her last breadth..that was heart wrenching experience to watch her child as she took her last breadth. [ me, my mothe, grandmother all got to hold baby ana ] my daughter in law was devastated, ill never for her lagrimas as we laid her to rest, that was 23 yrs ago. Today, I went to cemetery today to take flowers, still very sad. It took my son and daughter in law ten years to decide to try gain and now we have Olivia she is 12--she is my joy. Take care amiga. Peace, joy and love.

wendyb-NC

(3,330 posts)
21. Such a sad loss of a precious child.
Sat May 23, 2020, 05:47 PM
May 2020

May she rest in peace, and may you find a renewed strength and inspiration, to honor and celebrate Sophia's life, and memory in a very meaningful and beneficial way.

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