other than the fear of missing work, (my classroom is probably a wreck) I don't have to worry about when to go to the hospital. My GI and Gen Docs know I know the symptoms and what is going on so I just have to call them...if it is weekend, their service and by the time I am packed and showered my admit papers are waiting for our arrival.

just ask for help if you need us to take some load off you...

Palliative care (from Latin palliare, to cloak) is an area of healthcare that focuses on relieving and preventing the suffering of patients. Unlike hospice care, palliative medicine is appropriate for patients in all disease stages, including those undergoing treatment for curable illnesses and those living with chronic diseases, as well as patients who are nearing the end of life. Palliative medicine utilizes a multidisciplinary approach to patient care, relying on input from physicians, pharmacists, nurses, chaplains, social workers, psychologists, and other allied health professionals in formulating a plan of care to relieve suffering in all areas of a patient's life. This multidisciplinary approach allows the palliative care team to address physical, emotional, spiritual, and social concerns that arise with advanced illness.

Medications and treatments are said to have a palliative effect if they relieve symptoms without having a curative effect on the underlying disease or cause. This can include treating nausea related to chemotherapy or something as simple as morphine to treat a broken leg or ibuprofen to treat aching related to an influenza (flu) infection.

Although the concept of palliative care is not new, most physicians have traditionally concentrated on trying to cure patients. Treatments for the alleviation of symptoms were viewed as hazardous and seen as inviting addiction and other unwanted side effects.[1]

The focus on a patient's quality of life has increased greatly during the past twenty years. In the United States today, 55% of hospitals with more than 100 beds offer a palliative-care program,[2] and nearly one-fifth of community hospitals have palliative-care programs.[3] A relatively recent development is the concept of a dedicated health care team that is entirely geared toward palliative treatment: a palliative-care team.

Wishing you well. You're in my thoughts.

it must be after dealing with an illness for so long. I'm so glad you don't have to worry about your insurance paying for your care, demtenjeep.

I know it's scary from experience..Wishing the Best!

Remember the poem: "Do not go gentle into that good night. Rage, rage against the dying of the light."

I'm sending you thoughts of strength and courage.

Hope there will be better days ahead..



Tikki

I know so many people living with and battling this horrid disease. I hope with all my heart that you find the right meds and find the strength to keep fighting. As someone else said, we -- and the world -- need(s) you.

Please be strong and keep an eye on the positive around you.

Hang in there. You have a lot of people rooting for you.

music and doing relaxation routines, in order to relieve some of the stress of fighting the disease and to help conserve your physical strength.

If you don't know about these things, you could ask your doctor or for these services when you are in the hospital.

I will ask my doc when he comes in doing rounds on some relaxation routines.

Thank you

routines are actually very basic bio-mechanics built upon deep breathing. You are talking to your body in a very purposeful way to get it to ease up on itself and create space for something other than the struggle.

Please seek the right music for yourself diligently, because it will help put your mind into neutral inside of a good space for you.

AllOne be with you, demtenjeep!!!

Hang in there. You are in my prayers.

may you have some peace.

I am just so tired



and so discouraged.

sending you healing thoughts.

I am sorry for your situation.

I wish the best for you.

and I hope you get better soon.

Fight on!

sense is one of our most primitive (deeply "wired&quot modalities.

I know how I feel every time I smell dill, which evokes memories of sunny summer days and the baskets of cucumbers and dill that my mother used to buy from the gardener who used to also let us pick grapes in his vineyard, where I'd encounter bees with fat yellow legs laden with pollen, hovering peacefully amongst the fragrant vines. I mention this as an example of what scent can do for you, so someone who can help you with any special smell you may have experienced might also help ease the fight for you and help you conserve your strength.

Perhaps you should also find out if you could be a candidate for medical cannabis??? I also remember from the day back when that pot lightened my tension just enough that, instead of the lassitude that some people claim, I felt motivation and energy when high. That may just have been my particular chemistry and I have no idea how one goes about finding about such things, but it couldn't hurt to ask. Also, there are national level medical cannabis organizations now, who could advise your doctor about his/her questions.

Namaste, demtenjeep!

seems to help settle my stomach

it's ginger root so it has a hotness to it that is balanced by the sugar-crystallization. Most grocery bulk-sections have crystallized ginger root these days, or might get it for you if you ask.

I have to be careful around crystalized ginger, not to eat too much of it, because it affects my sleep, keeps me awake. Best kept to mornings, so that the effect can wear off.

Ginger is soothing to the stomach

Nobody should face serious illness without access to cannabis. It can really help with nausea and appetite issues.

please keep fighting!

If you ever want to email a private message, please do so, I found in the darkest days is when I needed to write or talk most, and talking to family wasn't so helpful, it was more upsetting to them.

if ya need some help you know ya can find it here.

Remember its always darkest before the dawn. Have you considered getting a massage? It can do wonders in terms of relaxing you and helping you "feel" calmer. Personally we've had good luck with acupuncture as well during some of our darkest health crisis.