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EJSTES2005

(268 posts)
Fri Dec 7, 2012, 04:04 AM Dec 2012

I Need Your Help!!

I have been an avid daily reader here on DU for a long time. Sadly I have not posted in a long time. Earlier this year my 5yo son Trevor was diagnosed with stage IV Alveolar Rhabdomyosarcoma. It is a very aggressive cancer and by the time it was diagnosed it had spread thru his lymph nodes from the main mass in his calf up to his groin. We are currently in week 32 of 54 of our treatment roadmap. My son has had 7 different chemos and countless other meds so far including almost nightly injections of neupogen to boost his white blood count. I hold him down while my wife injects him and our 7yo daughter wishes she could help comfort him as his screams pierce the entire house but nothing seems to calm a 5yo about to have a needle ........... We go in on 12/21 for our first set of CT/PT & MRI scans since radiation was completed in Oct and are hoping the tumors continue to shrink.........Tonight was was one of the worst days for me and my wife since the first few weeks of initial diagnosis. One of the families we have got to know and love over the past few months was given the worst news. 3 Days ago their 1yo son was in remission after his second relapse and their 3yo daughter who is a perfect bone marrow match candidate was hopefully going to be able to save his life. Today they told them the blasts were back and there was no longer anything they could do for him. They told them they should go home and celebrate Christmas early while he was still feeling good as he might not make it until then..... These past few months have been hard to sy the least. I have always felt as an activist at heart and thought this would be the best place to post this. The youtube video and website I am linking below have been in the making for a long time and just so happened to finally be released today. I am writing tonight to ask for your support to help increase federal funding for childhood cancer research. Please watch the video below and go to their site and sign petitions and get involved to help find cures for childhood cancers. 2500 American children alone die every year from childhood cancers...In FY 2012 only 4% of the measly $5.2B in NIH funding designated to the National Cancer Institute (NCI) was spent on childhood cancer research. This is less then 0.25 Billion a year. We spend more on toilet paper in this country. WTF??? Please help. LOG ON. SIGN UP. SIGN THE PETITIONS!!!! PLEASE!!!!!!!!!!!!!! I love you all.

http://www.thetruth365.org/

&feature=youtu.be
7 replies = new reply since forum marked as read
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I Need Your Help!! (Original Post) EJSTES2005 Dec 2012 OP
 Make7 Dec 2012 #1
Will do. Thank you for sharing your story, and I will keep your family in my thoughts catbyte Dec 2012 #2
Thank you very much EJSTES2005 Dec 2012 #6
Some alerter called this a "Returning spam troll". What's up with that? Electric Monk Dec 2012 #3
I was confused too, so googled some, and this has been posted here several times recently. mahina Dec 2012 #4
The main reason their are probably multiple posts EJSTES2005 Dec 2012 #5
k and r nt AnotherDreamWeaver Dec 2012 #7
 

Electric Monk

(13,869 posts)
3. Some alerter called this a "Returning spam troll". What's up with that?
Fri Dec 7, 2012, 05:22 AM
Dec 2012

Why do they hate kids with cancer?

I'm confused by that alert

mahina

(17,669 posts)
4. I was confused too, so googled some, and this has been posted here several times recently.
Fri Dec 7, 2012, 06:40 AM
Dec 2012
http://sync.democraticunderground.com/1011454 Thu Dec 6, 2012, 09:58 PM

http://election.democraticunderground.com/1011454 Fri Dec 7, 2012, 02:58 AM

http://election.democraticunderground.com/10021940382 Fri Dec 7, 2012, 03:04 AM

I'm not pretending to understand, and def. wish for better funding for research for cancer asap, kids and all.

Good luck OP, hope your son is well soon, assuming.




EJSTES2005

(268 posts)
5. The main reason their are probably multiple posts
Fri Dec 7, 2012, 08:06 PM
Dec 2012

is because the video has been in the works for a long time. It was finally uploaded to youtube this week. It's a good cause and doesnt take much effort to help in a big way. I truly thought the video would be shared a lot more by now. I also thought more people would have singed this petition...

https://petitions.whitehouse.gov/petition/appoint-pediatric-oncologist-national-cancer-advisory-board/gLhGbXQ9

Thank you to all of you who K&R and posted. I appreciate your thoughts and comments.

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