People that need transplants are in bad shape otherwise they wouldn't be getting a new organ. The fact is she would be moving ahead of someone else if they out her on the adult list. I'd have to know more about how these decisions are made and why there are separate lists for kids and adults. I can guess why but they seem to be saying it makes no difference.

Awful

There are treatments that allow a desperately ill child to survive a long time, but unless the family of that child is important/rich/famous the end of the sustainable treatments comes, and unless super-solutions are available at the time they need them, the child will die.

Before the early treatments were available, for many of these children, their parents would have lost them as infants.

It's doubly cruel because often these kids suffer for such a long time before the inevitable catches up with them. It's a loss either way for the parents, because each year their child surpasses the "normal life expectancy" for their affliction it only gets harder..

While our son was undergoing 8 long years of surgery/treatments at Mayo Clinic, we met many parents (usually single Moms. ) who were there with their kids too, and over time, we lost so many of them.. One Mom we met had both of her kids there with CF.. One died at 5 and when we stopped going, her youngest was still hanging in there..He was 8.