Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

question everything

(47,517 posts)
Mon Feb 17, 2014, 04:21 PM Feb 2014

Mammograms - DO IT!

Another report, yet, about the futility of mammograms.

If you are a woman, or have women that you care about in your life, don't listen to these reports.

"They" say that mammograms are as good as detecting something suspicious by touch. Yes, tell this to a woman whose cancer was just below her nipple. No one could feel it. Not the nurse, not the doctor, not the surgeon. And once she underwent the lumpectomy, she found out that it was a triple positive cancer. Receptors to estrogen and progesterone, but also elevation amount of a a nasty growth factor called HER2 that has been associated with a more frequent recurrence.

Tell this to a a woman whose cancer was located deep in her tissue, close to her rib cage. She forgot to schedule her annual mammogram once. But the reports tell us to schedule one every two years... When she was diagnosed, the cancer had already spread to some of her lymph nodes under her arm.

What most riles me, are three arguments that accompany such "reports."

The first, that really, only older women - older than 50 - should even get mammograms. Younger women do get breast cancer and in many cases - some may correct me here - it is often more aggressive with younger women - mid 30s.

Second, in many cases, the cancer that was found and removed would not have killed the woman. How do they know?

To the best of my knowledge - again, correct me if you know better - there are no specific markers, enzymes, metabolites, or other molecules that determine whether a cancer is a killer one or not. Either way, one has to find it, first, and remove it. They may be talking about DCIS but I am not aware of any further treatment - radiation or chemo - of DCIS cancer.

Last - the concern about "false positive:" A woman has to go through biopsy only to find out that that suspicious image was not cancer, after all. All the while being worried sick. Hey! This kind of patronizing attitude belonged - maybe - in the 1950s. Women are big girls. They can handle it. They should be allowed to make their own decisions.

OK, done with the rant. Just do it.

Oh, and if the woman has an Eastern European Jewish ancestry, consider being tested for the BRCA genes. The complete test is expensive - about $3,500 - paid by the insurance if family members were affected. But there is a cheaper test - about $600 - aimed to detect only three mutations that are most common among men and women with Eastern European Jewish ancestry.

Now I am done.

Phew!

42 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Mammograms - DO IT! (Original Post) question everything Feb 2014 OP
No thanks... ohheckyeah Feb 2014 #1
OK. I've heard objections to ultraound and thermography but still, question everything Feb 2014 #6
I've done a lot of research but I don't claim to be an expert. ohheckyeah Feb 2014 #14
I'm intimately familiar with similar harms from mammograms zazen Feb 2014 #29
As somebody who was detected before 49 and whose tumor was caught very early on by mammogram and MRI Mass Feb 2014 #2
This is great! Glad that so far so good question everything Feb 2014 #8
I should be getting one soon shenmue Feb 2014 #3
The study was a long term (25 year) study of 90,000 people. Warren Stupidity Feb 2014 #4
What if that "anecdotal data" includes you or a woman you love? question everything Feb 2014 #5
How would you suggest evaluating medical procedures? Warren Stupidity Feb 2014 #7
By real observation. Probably a dream question everything Feb 2014 #9
I have no idea what "real observation" is that is not contained within Warren Stupidity Feb 2014 #12
What if the woman who gets breast cancer ohheckyeah Feb 2014 #16
If you or a woman you love had a tiny cancer removed that was slow growing pnwmom Feb 2014 #32
There are questions about the design of this study. LisaL Feb 2014 #11
Good. Somebody should design and conduct an even better study. Warren Stupidity Feb 2014 #13
No, but a good study will see whether better equipment makes a difference. Mass Feb 2014 #17
What is dishonest about it? It is a fact that the equipment that was in use at the time kcr Feb 2014 #36
Any long term study will have this quality. Warren Stupidity Feb 2014 #39
It depends on the study and what data is being used kcr Feb 2014 #40
I don't think any medical people are suggesting that mammograms be given up. pnwmom Feb 2014 #33
23andme tested me for $99 Sienna86 Feb 2014 #10
That's great! question everything Feb 2014 #22
And for those who choose to get a mammogram... Contrary1 Feb 2014 #15
Great advice! question everything Feb 2014 #23
My mother died last week of breast cancer Beaverhausen Feb 2014 #18
I am so sorry for your loss question everything Feb 2014 #24
Rec'd highly and babylonsister Feb 2014 #19
Looks like you beat it! This is great! question everything Feb 2014 #25
DCIS here! I agree with you! phylny Feb 2014 #20
Good luck! question everything Feb 2014 #27
I had my first mammogram ever recently RainDog Feb 2014 #21
Not to worry you but most women who get it have no family history... Phentex Feb 2014 #26
I've heard a similar story about a young woman question everything Feb 2014 #28
I'm getting my annual PasadenaTrudy Feb 2014 #30
If you're under 50 and without family history, many doctors no longer recommend it. pnwmom Feb 2014 #31
Mammograms aren't perfect but Cairycat Feb 2014 #34
Thank you for a first person story question everything Feb 2014 #37
OK! I had to cancel last Fridays appt. due to snow.. Walk away Feb 2014 #35
Good luck. And try to follow the advice of Contrary1, above #15 question everything Feb 2014 #38
Thank you for posting this Ruby the Liberal Feb 2014 #41
Glad it was caught on time question everything Feb 2014 #42

ohheckyeah

(9,314 posts)
1. No thanks...
Mon Feb 17, 2014, 04:28 PM
Feb 2014

there are safer ways of detecting breast cancer including ultrasound and thermography.

And that's from the daughter of a woman who had a needless mastectomy.

question everything

(47,517 posts)
6. OK. I've heard objections to ultraound and thermography but still,
Mon Feb 17, 2014, 04:59 PM
Feb 2014

you are not objecting to using some sort of scanning.

I don't want to pry but a "needless mastectomy" is harsh. If something was suspicious, additional scanning should have been done, as well, as a biopsy.

And, of course, today lumpectomy is an alternative. And many observe that not enough women choose this option.

ohheckyeah

(9,314 posts)
14. I've done a lot of research but I don't claim to be an expert.
Mon Feb 17, 2014, 05:08 PM
Feb 2014

We KNOW that mammograms can and do cause cancer. I had one and that's all I intend to have.

The doctor who did the mastectomy on my mother later told her that the type of cancer she had never spreads. It would never have been found without a mammogram and it should have been left alone. It was contained and would have stayed contained in the milk duct. So, not, it's not harsh and further scanning and a biopsy WERE done.

There are way too many women getting false positives and having unnecessary treatments that are, in and of themselves, hazardous to their health.

If you see value in smashing a woman's breast and radiating it, that's your choice. I don't.

zazen

(2,978 posts)
29. I'm intimately familiar with similar harms from mammograms
Mon Feb 17, 2014, 09:50 PM
Feb 2014

I believe the doctors are doing this in good faith, but just ONE area in which they may be causing overdiagnosis (beyond those situations where the radiation of BRCA gene carriers may make things worse) is with women with dense breasts and connective tissue disease. Connective tissue disease may lead to a lot of calcifications that look like necrosis/DCIS, so too many biopsies are done. In this case, MRI is much better (according to my world-class oncologist). MRI and US may be much better for women with dense breasts in general.

I guess there's the issue of screening in general as leading to overdiagnosis vs the means of screening. I'm not going to get into that debate, but I do think the Komen, et al, push to have annual mammograms needs to be dialed back.


Mass

(27,315 posts)
2. As somebody who was detected before 49 and whose tumor was caught very early on by mammogram and MRI
Mon Feb 17, 2014, 04:28 PM
Feb 2014

I could not agree more.

The tumor was not palpable as it was too deep in the tissue. I just passed the 4 year date and hope all will be fine and I will be considered cured next year, but without the exams, who know what could have happened.

There is a huge confusion, as often, between averages and the individual cases. Sorry a person is not an average.

question everything

(47,517 posts)
8. This is great! Glad that so far so good
Mon Feb 17, 2014, 05:01 PM
Feb 2014

and, yes, I agree that a person is not an average. Not a statistics deviation.



 

Warren Stupidity

(48,181 posts)
4. The study was a long term (25 year) study of 90,000 people.
Mon Feb 17, 2014, 04:42 PM
Feb 2014

This is actually about as good as a medical statistical analysis can get. Anecdotal data is not a good counter argument.

Here is a pretty good analysis of the study:
http://thinkprogress.org/health/2014/02/12/3281871/massive-study-doubts-mammogram-effectiveness/

question everything

(47,517 posts)
5. What if that "anecdotal data" includes you or a woman you love?
Mon Feb 17, 2014, 04:55 PM
Feb 2014

This is what I have always hated about the statistics used to determine efficacy of treatments. It has to pass a certain threshold. Thus, if only 3% benefit, the treatment will not be approved or further developed. What if you, or a loved one, is in that 3% positive? And this is the only treatment that can actually save your life? And you are still young? (I disagree with using heroic measures to save a 90 years old person...)

Also, I've read that the radiation equipment used is now almost obsolete in this country.

question everything

(47,517 posts)
9. By real observation. Probably a dream
Mon Feb 17, 2014, 05:03 PM
Feb 2014

But the patients and the doctors know better when something works.

And, do not discounted something that helps only a small percentage of people or "anecdotal evidence."

These are real. Let the patient decide.

 

Warren Stupidity

(48,181 posts)
12. I have no idea what "real observation" is that is not contained within
Mon Feb 17, 2014, 05:06 PM
Feb 2014

a study that observed 90,000 women over 25 years.

ohheckyeah

(9,314 posts)
16. What if the woman who gets breast cancer
Mon Feb 17, 2014, 05:09 PM
Feb 2014

from mammograms is someone you loved and encouraged to get mammograms?

pnwmom

(108,990 posts)
32. If you or a woman you love had a tiny cancer removed that was slow growing
Mon Feb 17, 2014, 11:14 PM
Feb 2014

(this can be identified at biopsy), then you might have gone through unnecessary treatment. If that's fine with you, great.

But there are risks with both radiation (especially, to the heart) and chemo, that some women would prefer not to go through if they didn't have to.

LisaL

(44,974 posts)
11. There are questions about the design of this study.
Mon Feb 17, 2014, 05:05 PM
Feb 2014

“The quality of mammograms in the 1980s was atrocious. Over-diagnosis is much less than people think. The study was poorly designed, there is nothing new,” he said. “We are moving in the direction of being more selective and giving higher-risk women mammograms, but we are not giving them up.”

http://www.jpost.com/Health-and-Science/Israeli-experts-dismiss-claim-mammography-screening-doesnt-significantly-save-lives-341394

 

Warren Stupidity

(48,181 posts)
13. Good. Somebody should design and conduct an even better study.
Mon Feb 17, 2014, 05:08 PM
Feb 2014

Science is great that way. Build on what we learn, learn even more.

On edit: ugh, complaining that a long term study contains data on equipment that was in use when the study began is, er, a bit dishonest. Should we conduct long term studies starting off with the equipment that will be in use when the study ends?

Mass

(27,315 posts)
17. No, but a good study will see whether better equipment makes a difference.
Mon Feb 17, 2014, 05:27 PM
Feb 2014

It is unclear from the article that they do.

kcr

(15,318 posts)
36. What is dishonest about it? It is a fact that the equipment that was in use at the time
Tue Feb 18, 2014, 03:33 PM
Feb 2014

did not yield the same quality of image that existing equipment does. That is a flaw in the data. Obviously it can't be helped that technology will advance. But that doesn't change facts. Pointing out that imaging is better now is relevant. Not dishonest.

 

Warren Stupidity

(48,181 posts)
39. Any long term study will have this quality.
Tue Feb 18, 2014, 04:08 PM
Feb 2014

There are huge advantages to long term large sample studies - they give very accurate statistical information, far better than any other method for evaluating medical procedures. They do suffer from distortions due to changes in methodology, but that is a given. The complaint that the study incorporates data from older mammography mechanisms without making it clear that the study had to have done that since it spanned 25 years, is a complaint that is less than honest.

It is quite possible that this huge data set can be further analyzed to look at the question of technology changes - or that follow on studies can resolve this issue, but at the moment it is the best data available, even if one doesn't like which way that data points.

kcr

(15,318 posts)
40. It depends on the study and what data is being used
Tue Feb 18, 2014, 05:56 PM
Feb 2014

Most studies aren't without their flaws. I'm not saying there is no value to long term studies, or even that there is no value to this study. I'm just saying that the point the poster was bringing up about the imagery was a valid one and one that other critics have pointed out. Multiple studies have shown that mammograms have reduced mortality, and the ACA still recommends them. The controversy isn't new, but there hasn't been a paradigm shift either.

pnwmom

(108,990 posts)
33. I don't think any medical people are suggesting that mammograms be given up.
Mon Feb 17, 2014, 11:15 PM
Feb 2014

Just that they might not save lives when they are routinely given to women under 50 with no particular risk factors.

Sienna86

(2,149 posts)
10. 23andme tested me for $99
Mon Feb 17, 2014, 05:04 PM
Feb 2014

Sadly, the FDA is causing them to at least temporarily not provide the genetic medical testing. Fortunately I did not have the BRCA genes.

question everything

(47,517 posts)
22. That's great!
Mon Feb 17, 2014, 09:08 PM
Feb 2014

Not to dampen your sigh of relief, but, I've heard about it: not having the BRCA gene does not mean that cancer will not be diagnosed at a later time.

I hope that 23 and me will manage to come back. I think that they can provide a real service, like the one you described. I think that this, again, is a patronizing attitude that the clients may need further genetic counseling. A different topic.


Contrary1

(12,629 posts)
15. And for those who choose to get a mammogram...
Mon Feb 17, 2014, 05:09 PM
Feb 2014

Don't be shy about asking questions. Insist on seeing the films, and have them explained to you. Ask for a copy of the radiologist's report. You are entitled to this.

Keep a folder for the results. Learn the terminology. Do not just rely on the "all clear" postcard you may receive in the mail.

Do a breast self exam every month. That's how I found mine. It was on the mammogram six months earlier, it just didn't get written up.

I learned the lesson a bit late...you are your own best advocate.

question everything

(47,517 posts)
23. Great advice!
Mon Feb 17, 2014, 09:09 PM
Feb 2014

I hope that you still caught it at the early stage and that you are now at least in remission.



question everything

(47,517 posts)
24. I am so sorry for your loss
Mon Feb 17, 2014, 09:12 PM
Feb 2014

You and your family must have gone through hell in the last nine months!

I hope that she did not suffer at the end, that her last days were peaceful.

I hope that you and your family are left with memories that you can cherish, from when she was healthy. That some day you will even be able to smile, remembering a special fond event.



babylonsister

(171,079 posts)
19. Rec'd highly and
Mon Feb 17, 2014, 06:38 PM
Feb 2014

I was diagnosed with breast cancer when I was 27. It knows no age, and a mammogram confirmed the diagnosis.

Just do it!

phylny

(8,383 posts)
20. DCIS here! I agree with you!
Mon Feb 17, 2014, 07:44 PM
Feb 2014

Found by my yearly mammogram, and when my breast surgeon said, "Now, some people don't think this is cancer, but...." I said, "Yeah, yeah, I know - what are we going to do to cure me?"

My DCIS is a fast-growing one. I'm waiting to have my surgery scheduled, and waiting for the results of my genetic testing.

RainDog

(28,784 posts)
21. I had my first mammogram ever recently
Mon Feb 17, 2014, 07:56 PM
Feb 2014

And had to have another one...and ouch that thing is really painful, tho that shouldn't stop anyone.

And then they wanted to do an ultrasound. At the second mammogram visit someone told me that they try to see if they can break up a cyst - like one caused by drinking a lot of coffee (guilty) and that was why it was so painful. I don't know if that's true or not, or if I misunderstood.

Anyway, just to say that before someone would do a biopsy, they would probably now do an ultrasound first.

I'm fortunate, in terms of worry, tho, because no women in my family have ever had breast cancer.

Phentex

(16,334 posts)
26. Not to worry you but most women who get it have no family history...
Mon Feb 17, 2014, 09:19 PM
Feb 2014

but yes, the risks are there once there is a family history.

question everything

(47,517 posts)
28. I've heard a similar story about a young woman
Mon Feb 17, 2014, 09:23 PM
Feb 2014

she had a mammogram, her doctor called her, asked whether she could feel anything. Apparently it was large enough shadow to be felt. The woman did not. So they did schedule an ultrasound, did not see anything, and concluded that there may have been a serious of cysts lined up that created that image.

One hopes that an experienced radiologist would be able to distinguish between a solid tumor and a maybe and would recommend ultrasound.

pnwmom

(108,990 posts)
31. If you're under 50 and without family history, many doctors no longer recommend it.
Mon Feb 17, 2014, 11:10 PM
Feb 2014

And the 90,000 woman, 25 year study supports them.

Cairycat

(1,706 posts)
34. Mammograms aren't perfect but
Mon Feb 17, 2014, 11:23 PM
Feb 2014

they're readily available. Ultrasound is good for some things and not others. Don't know about thermography.

But my sister's life was saved by a mammogram. She had a tumor beneath the nipple, close to the chest. It would have killed her had she waited til it was palpable.

On the other hand, I found my tumor myself six weeks after having a mammogram where "everything was fine". My lump was near the surface.

Our mother died of breast cancer, and my sister's bout was nearly 10 years before mine. My insurance wouldn't pay for the BRCA test because I "didn't have enough first degree relatives who had breast cancer". Somehow I think enough to an insurance company is one more than you have.

I've never found mammograms particularly painful. It helps to have largish breasts and also not to have the mammogram in the week or so before your period.

My sister is a 12 year survivor and it has been three years for me. We're awfully glad to have each other around!

question everything

(47,517 posts)
37. Thank you for a first person story
Tue Feb 18, 2014, 04:01 PM
Feb 2014

For the "policy makers" this may sound "anecdotal," for you and your sister, this is real people.

I find it hard to accept the insurance company refusal. Can you appeal to a higher level? A mother and a sister - you cannot get any closer than that.

Good luck for both of you.



Ruby the Liberal

(26,219 posts)
41. Thank you for posting this
Tue Feb 18, 2014, 07:23 PM
Feb 2014

Ironically, I will never have to have a mammogram again.

I was diagnosed last fall and had surgery last month. A mammogram/ultrasound combination caught it. My surgeon said that it was so tiny, he almost missed it! Biopsy confirmed it and now its dead, Jim.

Latest Discussions»General Discussion»Mammograms - DO IT!