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RandySF

(58,899 posts)
Sat Sep 5, 2015, 08:25 PM Sep 2015

Michael and Kitty Dukakis campaign to lift stigma from the electric shock treatment that saved her life

Last edited Sat Sep 5, 2015, 10:18 PM - Edit history (2)

It was June 2001 when “Jane Dee” checked into Massachusetts General Hospital at her own insistence. The 64-year-old woman, who had suffered from severe depression for 17 years, wanted to be hospitalized to ensure she didn’t drink away her fear of what was planned for the next day.

When she awoke, she couldn’t help but think about One Flew Over the Cuckoo’s Nest. The Jack Nicholson movie and its gruesome depictions of electroconvulsive therapy ran through her mind as she walked to the basement procedure room to get her own, far more modern version of “shock” therapy in hopes of driving away the depression.

Almost immediately, she felt better—lighter, happier. She and her husband were able to celebrate their 38th wedding anniversary that night in awe of the complete turnaround.

Jane Dee, though, was no ordinary patient. She had tried—sometimes unsuccessfully—to keep her history of depression and drug and alcohol abuse out of the public eye during her husband’s political career. Now that her husband was out of office, she had an even bigger secret: shock therapy.

The couple quickly found that electroconvulsive therapy was massively successful at treating severe depression. But it suffered a huge public relations problem: It developed a horrible reputation in the middle of the 20th century when it was used without today’s patient safety protections, it was stigmatized through pop culture and there was no one willing to talk publicly about its effectiveness.



http://www.politico.com/magazine/story/2015/09/dukakis-depression-treatment-campaign-213116#ixzz3kuhZcuqx

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Michael and Kitty Dukakis campaign to lift stigma from the electric shock treatment that saved her life (Original Post) RandySF Sep 2015 OP
Isn't this fascinating...! MADem Sep 2015 #1
I remember when I was 14, seeing my dad after such a treatment Skittles Sep 2015 #2
Interesting. As someone with lifelong, treatment resistant depression, Crunchy Frog Sep 2015 #3
I also looked into it TexasBushwhacker Sep 2015 #6
Another more recent account that I've found. Crunchy Frog Sep 2015 #7
Here's some more info TexasBushwhacker Sep 2015 #8
A friend had it about a yr. ago loyalsister Sep 2015 #4
They are courageous to become the public face of this. brer cat Sep 2015 #5
I have two friends with adult children who have both had ECT treatments mnhtnbb Sep 2015 #9

MADem

(135,425 posts)
1. Isn't this fascinating...!
Sat Sep 5, 2015, 08:38 PM
Sep 2015

It looks like they're getting better at figuring out what the right "dose" is.

I knew someone who had this, years ago, and I thought it changed their personality (not for the better, either--they lost HUGE chunks of their past).

Critics of ECT say that psychiatrists are not as forthcoming about the memory loss as they should be—and earlier versions of the treatment, even as late as the beginning of the 2000s, could indeed wipe out years of memories. But as technology has improved, the memory loss side effects have generally lessened; physicians say they have no way of knowing how severe or long-lasting the memory loss will be.


Read more: http://www.politico.com/magazine/story/2015/09/dukakis-depression-treatment-campaign-213116#ixzz3kukcepFm

Crunchy Frog

(26,587 posts)
3. Interesting. As someone with lifelong, treatment resistant depression,
Sat Sep 5, 2015, 08:55 PM
Sep 2015

I've been researching this issue lately.

I've been reading this book for an interesting alternate perspective. I've been reading lots of other things as well.

I've made the decision that this would not be an option for me. While I understand that it can work out well for some people, for me it would be too much like playing Russian roulette. If it goes bad, there's no way to undo it, and it does go bad in too many cases.

TexasBushwhacker

(20,202 posts)
6. I also looked into it
Sat Sep 5, 2015, 09:11 PM
Sep 2015

I decided to wait because I started a new job and I was told you really can work while getting treatments. The possibility of memory loss is certainly worrisome, but so is the prospect of continuing to try to live with depression. I know that Dick Cavett said it saved his life and Carrie Fisher uses it to manage her bipolar disorder.

I looked into the book you linked and its author. She had her ECT in the early 80s. Much has changed in the last 30 years.

Crunchy Frog

(26,587 posts)
7. Another more recent account that I've found.
Sat Sep 5, 2015, 10:07 PM
Sep 2015
Here.

I would highly recommend actually reading the book before dismissing it out of hand. It's far more than simply a personal, first hand account. It's extremely well researched, referenced, and covers the entire history, up to year of publication (2009). What I'm finding most interesting, and most concerning, is the entire way in which issues of safety and concerns about memory and cognitive effects have been dealt with by the industry and by the psychiatric profession.

Dr. Sherwin Nuland, surgeon and medical writer, had it in the early 70's (bad old days) and it worked like a miracle for him. But as with Russian roulette, just because someone played it and won, doesn't mean that someone else will have the same sort of experience.

A good source for getting info about contemporary experiences is in various online forums for people dealing with mental illness, where people talk about their experiences with various different treatments. I'm finding too many similar accounts, even from just the past couple of years, to feel comfortable with this treatment modality.

Whatever decision you make, I hope it ends up working out for you.

TexasBushwhacker

(20,202 posts)
8. Here's some more info
Sun Sep 6, 2015, 12:52 PM
Sep 2015

Like I said, at this point in time I figure as long as I can work, I might as well stick with my brain as is, although the struggle with depression is still substantial.

Here's some real people feedback from patients:

http://www.dailystrength.org/treatments/Electroconvulsive_therapy

loyalsister

(13,390 posts)
4. A friend had it about a yr. ago
Sat Sep 5, 2015, 08:56 PM
Sep 2015

She felt a lot better. it worked better than any medication she had tried. I think it's helpful to keep an open mind and remain vigilant about safeguards, etc.

brer cat

(24,576 posts)
5. They are courageous to become the public face of this.
Sat Sep 5, 2015, 09:11 PM
Sep 2015

Depression is greatly misunderstood and ECT even more so. It is very encouraging to read a success story, and I hope that she will be able to live the full life she is seeking.

mnhtnbb

(31,392 posts)
9. I have two friends with adult children who have both had ECT treatments
Sun Sep 6, 2015, 01:03 PM
Sep 2015

It seems to have helped them both--but one is less than a year out on his first treatments
and the other is a couple of years out.

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