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liberalnarb

(4,532 posts)
Mon Jan 30, 2017, 10:41 PM Jan 2017

Please, hope and pray for me.

Hey, DU, I just got back from the Doctor with some bad news. And just to clear it up, no there is nothing life threatening, I won't be joining our friends on the In Memoriam page anytime soon. Though it is sight threatening. I've been experiencing odd visual disturbances since late August. I visited a Neuro-opthmologist today (forgive me if that is spelled incorrectly) and explained my problem. They did some standard tests and asked questions, I told them what I was experiencing. The Doctor diagnosed me with Positive Persistant Visual Migraine Phenomena. An extremely irritating visual condition that remains mysterious since it was discovered about 21 years ago. There are theories, but no one has been able to determine the cause. The whole thing is a big blur (and if you could see through my eyes, literally). The doctor said that there is no real treatment for it. It's unpredictable. He said it could be gone by tomorrow or last forever. I did some research, many people reported it
going away after a matter of weeks, months, and a few times even years. That gives me hope, but the idea of this experience being permanent is frightening. In a situation like this, I'll just do my best to ignore it and hope and pray it goes away. I certainly won't let it hold me back from joining you all in the fight against the coming tyranny of this new administration . Please keep me in your hopes and prayers. Thanks, DU. Keep fighting fascism!

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Please, hope and pray for me. (Original Post) liberalnarb Jan 2017 OP
Hug shenmue Jan 2017 #1
Sending good vibes malaise Jan 2017 #2
Aww...sucks...you got them! Good luck and hope it passes quickly! jmg257 Jan 2017 #3
My wishes for a speedy recovery! herding cats Jan 2017 #4
Hope it disappears FOREVER, my dear liberalnarb! CaliforniaPeggy Jan 2017 #5
Wish you well ... I hope the best for you! Greywing Jan 2017 #6
Stay strong liberalnarb. nt pkdu Jan 2017 #7
Is it angular and neon like in color? amerikat Jan 2017 #8
This is full visual field and constant. liberalnarb Jan 2017 #19
Hope you find some relief. amerikat Jan 2017 #29
I do suffer from serious anxiety. Without medication I get panic attacks. liberalnarb Jan 2017 #35
Wishing you speedy recovery. gademocrat7 Jan 2017 #9
Prayers Kber Jan 2017 #10
Please keep away from xenoestrogens greymattermom Jan 2017 #11
Oh damn, hun. I get ocular migraines now and then. nolabear Jan 2017 #12
I just started having those a few months ago. Lisa0825 Jan 2017 #13
I have had them 3 times in the past. What is most horrifying about them is you don't tblue37 Jan 2017 #38
That is not how mine were. Lisa0825 Jan 2017 #39
Mine is unique. It appears as snow or static. Like this: liberalnarb Jan 2017 #42
That sounds like the auras that some people get before a regular migraine headache. tblue37 Jan 2017 #44
Yes, that's very similar to what I had bucolic_frolic Jan 2017 #45
Mine are like that too, altho as I get older they marybourg Jan 2017 #50
Here's a hug. Hope it does end soon. we can do it Jan 2017 #14
I can sympathize tavernier Jan 2017 #15
May this trouble clear up soon and never return. I suffered migraines livetohike Jan 2017 #16
love light and health irisblue Jan 2017 #17
How thoughtful. liberalnarb Jan 2017 #36
I had some back in the late 1980s eleny Jan 2017 #18
Thanks. It's certainly migraine related, but from what they said my issue liberalnarb Jan 2017 #22
Big hopeful hug going your way, l eleny Jan 2017 #24
Healing thoughts, liberalnard! Cha Jan 2017 #20
I see it on the screen, but luckily it doesn't screw up my ability to read. liberalnarb Jan 2017 #23
Wow thank God you can read, though... elehhhhna Jan 2017 #30
Prayers for you LibraLiz1973 Jan 2017 #21
Out! Out, Damn Visual Migraines!!! BlancheSplanchnik Jan 2017 #25
Stay strong democrank Jan 2017 #26
Good luck mcar Jan 2017 #27
I hope you get well soon LeftInTX Jan 2017 #28
Good luck. I hope its gone in days. Remember, we're all here for you. williesgirl Jan 2017 #31
Abundant Blessings Liberalnarb Equinox Moon Jan 2017 #32
Good Thoughts & Hugs from behind the Cheddar Curtain in Walker-stan Big_K Jan 2017 #33
How truly awful! PoindexterOglethorpe Jan 2017 #34
That was a fear of mine to. When this first started I panicked at the thought of going blind. liberalnarb Jan 2017 #37
I'm glad for that, but it does sound as if your vision PoindexterOglethorpe Jan 2017 #47
Good luck!! grantcart Jan 2017 #40
hoping for the best JI7 Jan 2017 #41
I had optic migraines a few times bucolic_frolic Jan 2017 #43
A prayer to Saint Lucia for you, liberalnarb. tenorly Jan 2017 #46
That sounds scary. Positive thoughts and prayers, liberalnarb! pnwmom Jan 2017 #48
I hope you get better. There's hope that it will. montana_hazeleyes Jan 2017 #49
I will say some prayers to the goddesses for you. Stay strong, eat nourishing food and riversedge Jan 2017 #51
Healing thoughts your way, liberalnarb. Laffy Kat Jan 2017 #52
I have no advice but wish you well. Lifelong Protester Jan 2017 #53
Here's hoping this bids you a... 3catwoman3 Jan 2017 #54
Yes, hopes and prayers coming your way ... Sunny05 Jan 2017 #55
Sending you healing vibes! calimary Jan 2017 #56
I hope for you that it passes soon. I know someone who has a somewhat similar FailureToCommunicate Jan 2017 #57
Hope the best for you n/t hibbing Jan 2017 #58
Mule here! Mountain Mule Jan 2017 #59
Prayers sent your way lunamagica Jan 2017 #60
In my prayers. Keep your positive thoughts flowing - mind is very powerful. nt iluvtennis Jan 2017 #61
Wishing you jazzcat23 Jan 2017 #62
DU vibes are very powerful! Rhiannon12866 Jan 2017 #63
Thanks. liberalnarb Jan 2017 #64
Don't forget to let us know how you're doing... Rhiannon12866 Jan 2017 #65
Wishing you all the best! smirkymonkey Jan 2017 #66
Count on your relationship with God to bring you through. oasis Jan 2017 #67
Yes. This experience certainly brought me back to spirituality. liberalnarb Jan 2017 #68
Good. oasis Jan 2017 #69
Healing vibes for you, liberalnard. sheshe2 Jan 2017 #70

amerikat

(4,909 posts)
8. Is it angular and neon like in color?
Mon Jan 30, 2017, 10:47 PM
Jan 2017

I have this. My doctor calls it ocular migraine or atypical migraine. How long have you had it?

 

liberalnarb

(4,532 posts)
19. This is full visual field and constant.
Mon Jan 30, 2017, 11:04 PM
Jan 2017

I know what ocular migraines are and I'm pretty sure this is different.

 

liberalnarb

(4,532 posts)
35. I do suffer from serious anxiety. Without medication I get panic attacks.
Mon Jan 30, 2017, 11:23 PM
Jan 2017

In face I ended up back on meds because the onset of this caused a panic attack.

greymattermom

(5,754 posts)
11. Please keep away from xenoestrogens
Mon Jan 30, 2017, 10:48 PM
Jan 2017

I'm a migraine expert. My advice can't possibly hurt you and might help. Migraine is a huge mystery that I tried for years to solve. Unfortunately, funding is almost non existent.

nolabear

(41,987 posts)
12. Oh damn, hun. I get ocular migraines now and then.
Mon Jan 30, 2017, 10:49 PM
Jan 2017

They come and go fast thank goodness. I would not want to have them long term.

Once you've done all you can look into some alternative stuff. I am really conservative when it comes to that but explore.

Lisa0825

(14,487 posts)
13. I just started having those a few months ago.
Mon Jan 30, 2017, 10:49 PM
Jan 2017

I had 3-4 a day a few times a week for a month, and then they haven't happened again since. I hope you will also find that they go away soon.

tblue37

(65,408 posts)
38. I have had them 3 times in the past. What is most horrifying about them is you don't
Mon Jan 30, 2017, 11:29 PM
Jan 2017

just lose vision. Your visual field disappears and becomes nothingness. I only ever got them in my left eye, and fortunately I was able to make them stop by sleeping for 30-60 minutes.

My doctor daughter said that brief ocular migraines like that might be the result of a transient ischaemic attack (TIA).

Good luck! I hope this doesn't progress but goes into remission for you.

Lisa0825

(14,487 posts)
39. That is not how mine were.
Mon Jan 30, 2017, 11:32 PM
Jan 2017

Mine were identical images in both fields of vision. I could still see, but I basically had an optical illusion of a shimmering, colorful jagged circle, expanding slowly from pinpoint until it got large enough to go outside my field of vision.

Very much like this:

tblue37

(65,408 posts)
44. That sounds like the auras that some people get before a regular migraine headache.
Mon Jan 30, 2017, 11:41 PM
Jan 2017

I don't get a headache at all with my ocular migraines. My visual field just becomes an empty nothingness--not blackness, just a void.

It is hard to describe because it has no visual aspect at all, but it is terrifying. If I had lost it in both eyes, I don't think I could have handled it. Even in just one eye it felt like an existential crisis! Much worse than just not being able to see.

marybourg

(12,633 posts)
50. Mine are like that too, altho as I get older they
Mon Jan 30, 2017, 11:54 PM
Jan 2017

are less colorful, smaller and shorter in duration.

tavernier

(12,392 posts)
15. I can sympathize
Mon Jan 30, 2017, 10:53 PM
Jan 2017

having had a plethora of visual problems in the past few years requiring several surgeries. Sending a prayer and mucho good thoughts your way.

livetohike

(22,145 posts)
16. May this trouble clear up soon and never return. I suffered migraines
Mon Jan 30, 2017, 10:57 PM
Jan 2017

from age 14 until menopause. Debilitating. Wishing you peace and recovery.

eleny

(46,166 posts)
18. I had some back in the late 1980s
Mon Jan 30, 2017, 11:01 PM
Jan 2017

The first one was triggered when I was driving home in very bright sunshine after a big snowstorm. No sunglasses and the sun must have been reflecting off the snow. It happened as I was driving in a westerly direction in the later afternoon here in the Denver, Colorado area. It's a tough time to drive even without all that snow on the ground.

As soon as I got home I called my eye doctor. He said it was a visual migraine. It lasted until the shimmering arc drifted down and out of my sight. My brother also had them.

I had them once in a while after that for several years. Then they went away and never returned.
Take heart and have hope! They can go away.
My thoughts are with you.

 

liberalnarb

(4,532 posts)
22. Thanks. It's certainly migraine related, but from what they said my issue
Mon Jan 30, 2017, 11:07 PM
Jan 2017

seems to be a strange creature compared to other migraine relate eye issues.

 

elehhhhna

(32,076 posts)
30. Wow thank God you can read, though...
Mon Jan 30, 2017, 11:15 PM
Jan 2017

Find out who's researching this and contact them...especially if it's an unusual case they should be interested..

Prayers from TX.

LeftInTX

(25,383 posts)
28. I hope you get well soon
Mon Jan 30, 2017, 11:11 PM
Jan 2017

I would get a 2nd opinion regarding treatment. I get occular migraines and take anti-seizure medication to prevent them. I also have other auras with my migraines, including vertigo. I was plagued with migraines from age 8 until I started anti--convulsants in my 30s.

Those visual disturbances can be kind of scary, so I'm glad you have an answer.

My mom had the same thing and never got a headache. Her's went away without treatment.

ETA: I just read all the responses in the thread. Sorrry didn't realize doctor told you it isn't occular migraine.


PoindexterOglethorpe

(25,862 posts)
34. How truly awful!
Mon Jan 30, 2017, 11:20 PM
Jan 2017

Losing my vision is one of my irrational fears. I've been fortunate in that while I was always very nearsighted, glasses and contact lenses have corrected that little problem.

I sincerely hope that a miracle cure happens to you.

 

liberalnarb

(4,532 posts)
37. That was a fear of mine to. When this first started I panicked at the thought of going blind.
Mon Jan 30, 2017, 11:25 PM
Jan 2017

Happy to at least no that that's not what's going on.

PoindexterOglethorpe

(25,862 posts)
47. I'm glad for that, but it does sound as if your vision
Mon Jan 30, 2017, 11:50 PM
Jan 2017

is severely compromised. Better, but still not very nice.


bucolic_frolic

(43,188 posts)
43. I had optic migraines a few times
Mon Jan 30, 2017, 11:41 PM
Jan 2017

not blurry, but large half visual field starburst shapes that would
shrink over a few hours

Don't get them anymore, not in about 15 years

montana_hazeleyes

(3,424 posts)
49. I hope you get better. There's hope that it will.
Mon Jan 30, 2017, 11:53 PM
Jan 2017

I had something similar after looking at a very bright light in bathroom for awhile because there had been water spray coming down from something broken upstairs.

I began having parts of my vision with roundish "halos' that I could not see through. They lasted a couple days then finally stopped. Then I went to a store with fluorescent lighting and it started again and I panicked and had to leave store.

It got better soon after. I'm saying all this because maybe bright light may add to this? I stay in low light as much as possible now. This may be different than what you have, but I'm hopeful you will get better.

riversedge

(70,242 posts)
51. I will say some prayers to the goddesses for you. Stay strong, eat nourishing food and
Mon Jan 30, 2017, 11:57 PM
Jan 2017

give yourself some mental love. All things are connected. Best to you.

calimary

(81,322 posts)
56. Sending you healing vibes!
Tue Jan 31, 2017, 12:26 AM
Jan 2017

Think green! Green is the color of healing, vitality, youth, springtime, renewal, and growth.

FailureToCommunicate

(14,014 posts)
57. I hope for you that it passes soon. I know someone who has a somewhat similar
Tue Jan 31, 2017, 12:33 AM
Jan 2017

condition and she manages quite well when it happens. And now that she is no longer frightened by it, she says they seem to resolve more quickly.

(Not that it will come to this for you, but, I also have numerous friends who are blind, or have gone blind, and they lead happy, fulfilled lives)

Mountain Mule

(1,002 posts)
59. Mule here!
Tue Jan 31, 2017, 12:42 AM
Jan 2017

Sending you prayers and Tonglen (Buddhist practice of compassion for others). I too suffer from a medical condition and these bad times can make it worse if I allow it and sometimes even when I don't allow it. You are not alone. We are here for you - every one of us.

Rhiannon12866

(205,525 posts)
65. Don't forget to let us know how you're doing...
Tue Jan 31, 2017, 05:56 PM
Jan 2017

DUers also have long memories and will want to support you as you go along...

 

liberalnarb

(4,532 posts)
68. Yes. This experience certainly brought me back to spirituality.
Tue Jan 31, 2017, 06:44 PM
Jan 2017

I was brought up Presbyterian, but in recent years became and Agnostic-Athiest. Panic attacks on top of these vision problems put me in need of comfort other people couldn't quite provide.

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