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sheshe2

(83,898 posts)
Thu Mar 30, 2017, 07:16 PM Mar 2017

The Immortal Life of Henrietta Lacks

About The Immortal Life of Henrietta Lacks

Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor black tobacco farmer whose cells—taken without her knowledge in 1951—became one of the most important tools in medicine, vital for developing the polio vaccine, cloning, gene mapping, in vitro fertilization, and more. Henrietta’s cells have been bought and sold by the billions, yet she remains virtually unknown, and her family can’t afford health insurance.

Soon to be made into an HBO movie by Oprah Winfrey and Alan Ball, this New York Times bestseller takes readers on an extraordinary journey, from the “colored” ward of Johns Hopkins Hospital in the 1950s to stark white laboratories with freezers filled with HeLa cells, from Henrietta’s small, dying hometown of Clover, Virginia, to East Baltimore today, where her children and grandchildren live and struggle with the legacy of her cells. The Immortal Life of Henrietta Lacks tells a riveting story of the collision between ethics, race, and medicine; of scientific discovery and faith healing; and of a daughter consumed with questions about the mother she never knew. It’s a story inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we’re made of.


http://rebeccaskloot.com/the-immortal-life/



"cells taken without her knowledge..the collision between ethics, race, and medicine... the dark history of experimentation on African Americans...legal battles over whether we control the stuff we’re made of"

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The Immortal Life of Henrietta Lacks (Original Post) sheshe2 Mar 2017 OP
It's really a riveting book. Hela cells are so vital to research even today! MissB Mar 2017 #1
I spent years using them for my research. Barack_America Mar 2017 #16
I need to restart listening to the book on tape I have underpants Mar 2017 #2
This hits close to home as I am friends with her grandson, and that family has been ROBBED LaydeeBug Mar 2017 #3
I was just reading an article about that as well, LaydeeBug. sheshe2 Mar 2017 #5
Yep. They are owed BILLIONS by now. nt LaydeeBug Mar 2017 #8
Fascinating panader0 Mar 2017 #4
You are welcome, panader0. sheshe2 Mar 2017 #9
The plantation economy in action? guillaumeb Mar 2017 #6
I would say sheshe2 Mar 2017 #7
It was SOP at the time Retrograde Mar 2017 #17
And there was the long term syphillis experiment guillaumeb Mar 2017 #18
The book was very good, the story very sad, but equally important. woodsprite Mar 2017 #10
excellent book mzteaze Mar 2017 #11
That is one of the most riveting books brer cat Mar 2017 #12
An amazing book and required reading for my 2nd daughter riderinthestorm Mar 2017 #13
Terrific Story peggysue2 Mar 2017 #14
I read it when it first came out! radical noodle Mar 2017 #15

MissB

(15,812 posts)
1. It's really a riveting book. Hela cells are so vital to research even today!
Thu Mar 30, 2017, 07:24 PM
Mar 2017

I'm sure the movie won't be nearly as good but I will go see it anyway.

 

LaydeeBug

(10,291 posts)
3. This hits close to home as I am friends with her grandson, and that family has been ROBBED
Thu Mar 30, 2017, 07:28 PM
Mar 2017

They don't dare admit what they owe them

sheshe2

(83,898 posts)
5. I was just reading an article about that as well, LaydeeBug.
Thu Mar 30, 2017, 07:46 PM
Mar 2017

Sad, they sound like they are being torn apart.

https://www.washingtonpost.com/local/on-the-eve-of-an-oprah-movie-about-henrietta-lacks-an-ugly-feud-consumes-the-family/2017/03/28/d33d3418-1248-11e7-ada0-1489b735b3a3_story.html

Her cells were a lifesaving gift to millions...yet she was never given the choice over her own body. The cells were harvested without permission.

guillaumeb

(42,641 posts)
6. The plantation economy in action?
Thu Mar 30, 2017, 07:54 PM
Mar 2017

With her body as the plantation?

Recommended. The ultimate in exploitation.

Retrograde

(10,156 posts)
17. It was SOP at the time
Thu Mar 30, 2017, 10:38 PM
Mar 2017

As mentioned in the book cited in the OP, hospitals (including the one where Lacks was treated at no charge) regularly took samples from patients without telling them, much less asking permission. Lacks' case was special only in that her cells turned out to be aggressive growers and lent themselves more easily to research and testing than other strains.

guillaumeb

(42,641 posts)
18. And there was the long term syphillis experiment
Fri Mar 31, 2017, 03:58 PM
Mar 2017

documenting the effects that was conducted on black patients as well.

woodsprite

(11,924 posts)
10. The book was very good, the story very sad, but equally important.
Thu Mar 30, 2017, 08:34 PM
Mar 2017

It was required reading for my daughter when she was entering the University of Delaware a few years ago. They had Rebecca Skloot and some of Henrietta's family come and speak to the freshman class. I had just undergone uterine cancer surgery. Made me wonder if they did any type of research with my 'spare parts'.

 

riderinthestorm

(23,272 posts)
13. An amazing book and required reading for my 2nd daughter
Thu Mar 30, 2017, 08:51 PM
Mar 2017

Who attended a progressive SoCal high school.

Big K&R

peggysue2

(10,839 posts)
14. Terrific Story
Thu Mar 30, 2017, 09:09 PM
Mar 2017

And important one, too. Skloot gives a fascinating account of the slow but evolving discipline of bioethics and medical research. I read this following a friend's brother dying of cancer. I read this one and the Emperor of All Maladies, another fascinating history of cancer, research and treatment.

Sadly, I recently read that Henrietta Lack's story has created all sorts of contention between Lack's descendants. Sounds as if petty rivalries ad jealousies have popped up since the book's publication and huge success. Oprah is producing and starring in an upcoming movie.

That aside, the story is the story, one worth reading, remembering and learning from.

And yes, I'd like to see the upcoming movie.

radical noodle

(8,013 posts)
15. I read it when it first came out!
Thu Mar 30, 2017, 10:28 PM
Mar 2017

It's an amazing book. I'm going to watch for the movie, and hope it is true to the book.

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