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Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsThis is how I will die thanks to trump-it won't be pretty-infact it will be horribly painful. How
within a month after being denied my chemo infusion, I will probably lose my job due to uncontrollable restroom issues. Likely within a month, I will have severe pancreatitis but due to not being able to go to the hospital, it will be a long painful agonizing death.
The area where my Crohn's is if not controlled causes pancreatitis. The swelling inside shuts off certain areas that in turn cause the pancreas to be shut off. The pain is severe as well as the nausea and weight loss. If left untreated long enough, your organs start to shut down.
At age 50 I have pre-exhisting conditions and most definitely have exceeded any maximum life time limit. We do not have a lot of money to be paying out of pocket to up grade our coverage so once the other half's insurance denies my coverage I will likely die within months. When it gets to that point ---well I am not going to go out of my mind because of severe pain trust me (have had pancreatitis at least 8 times) it is one of the most severe illnesses ever experienced.
If it gets to that point, I will take the merciful way out
This is likely how I will go.
How will you go
TexasBushwhacker
(20,204 posts)stage left
(2,962 posts)Demtenjeep has just given me what I'm going to say to mine when I call them tomorrow for the umpteenth time.
demtenjeep
(31,997 posts)I hope everyone does.
My pleas will fall on deaf ears. I am "blessed" with Pat Roberts, Jerry Moran and that new fuck Ron Estes that replaced Mike Pompeo
onecaliberal
(32,866 posts)demtenjeep
(31,997 posts)if I wasn't on anti-anxiety I would probably be feeling a LOT worse
onecaliberal
(32,866 posts)Bullshit.
stage left
(2,962 posts)Mike Mulvaney, the scummiest scum ever to come out of a South Carolina swamp just said that type two diabetics didn't deserve health insurance coverage. I am a type 2 diabetic. I could go one of several ways. Heart attack, stroke, complications from amputations, kidney failure. Or I could get lucky and just go blind. Since I'm 69 and on Medicare it might be awhile before I get my healthcare ripped away, but getting rid of Medicare is definitely on the Radical Republican agenda.
luvMIdog
(2,533 posts)shenmue
(38,506 posts)Hortensis
(58,785 posts)Right now almost 70% of all non-elderly Americans are insured through the workplace. A significant portion of those actually have fairly decent insurance, most of them employed by large companies. Is becoming one of them really totally impossible for both of you? Only one of you needs that one job...
Another thing you can do is move to a blue state that will offer its own ACA-type insurance coverage AND good Medicaid coverage. Look around. If you're already in one, maybe be cautiously hopeful while you wait to see what happens? And absolutely research everything your tax dollars do for people right there for assistance. If you're not in a progressive state, maybe start a list of which states are likely to set up their own healthcare programs in future and begin examining possibilities?
With your serious health problems and being at least 15 years out from Social Security and Medicare, both of which are also in danger, if things continue to go wrong perhaps you should join the many who may be doing that anyway.
Btw, I have health problems myself, and my husband and I have already learned we can live very happily in a old mobile home on pretty but inexpensive land. This wasn't accidental. Losing our nice, large home and savings someday to medical bills was a real possibility before the ACA, and now of course still could be. I even occasionally look around me here and imagine what especially treasured possessions I'd keep, not morbidly but pleasantly as I imagine simplifying. The one we purchased for vacations is in a purplish-red state, though, so eyes open, ready to rethink if needed.
demtenjeep
(31,997 posts)trust me, I would have already
but we are "stuck"
Hortensis
(58,785 posts)You've said it's a matter of life and death. You have a right to take care of yourself, even if it requires others to make sacrifices.
Serious as your condition is, new medical advances are also likely to continue to increase both your wellbeing and your viable, decent lifespan. Just as they already have, or should have had you benefited from them.
marylandblue
(12,344 posts)And it isn't so easy to move sometimes. People have family obligations, there are costs to consider. For example, if your home is already paid for, you might be financially unable to move to another state and start paying rent or buy a new home.
So yes, it's a shame that anyone has to think about this at all, let alone that may now be millions facing these difficult problems.
Hortensis
(58,785 posts)She's 50 years old, Maryland.
marylandblue
(12,344 posts)Last edited Sun Jun 25, 2017, 09:21 PM - Edit history (2)
I don't know her personal circumstances, but I do know people in that situation for all sorts of reasons.
annabanana
(52,791 posts)State they prefer. So much for protections on pre existing conditions and lifetime caps...
The_jackalope
(1,660 posts)But I have deep empathy for your situation, demtenjeep. My 65-yo wife has advanced ovarian cancer, and is not a candidate for either chemo or surgery. The usual cause of death in this situation is bowel obstruction, which is an agonizing death. She has made alternate plans.
My heart breaks when I think of the number of Americans that will be forced to take an early exit because of lack of care.
This is not how a rich, modern nation is supposed to behave. It's barbarism.
roamer65
(36,745 posts)It's gonna break your heart, my friend.
sweetroxie
(776 posts)and I'm on dialysis at the pleasure of Medicare. It is very expensive. I am old (76), not at all rich and disabled and female. If Medicare dries up, so do I. Daily dialysis is what is keeping me alive. If I am forced to stop dialysis, I will die.
cwydro
(51,308 posts)Are you not covered through your job? I have several friends who are teachers. All are covered through work.
ananda
(28,868 posts)We now live in such a mean world, so mean.
I don't know how I will go. But why does that matter?
How everyone else goes is just as important. We are
bound holistically, and no person is an island.
Calculating
(2,955 posts)Let's face it, the current system is busted and will bankrupt our nation if it continues at the current rate. Something like 20+% of our gdp is going towards healthcare, with the top 5% of patients costing 50% of that. All of that money has to come from somewhere. Medicine has evolved to the point where it can keep very sickly people alive, but at a cost of hundreds of thousands per year. Is that even sustainable? I only make $30k per year, and that's not even a third of what it takes to keep some of these people alive. Can our society afford to be spending this obscene amount of money on healthcare? I'm not saying that we need to just "let the sick die" as Republicans seem to think, but something is gonna give sooner or later at the current rate. A nation cannot afford to be spending such a significant % of the GDP on healthcare, and all the healthy people are needing to pick up the slack for the sickly who can't pay.
So to the fundamental issue, why is healthcare so damned expensive?
-Not enough doctors?
-Pharma prices out of control?
-Too much spending on hospital administrative costs?
-Too much spending on state of the art equipment?
-Too much fraud?
Motownman78
(491 posts)Hospitals and Doctors will charge what they can get. If you had people just paying out of pocket, the costs would go way down because they could only charge what the market will bear.
marylandblue
(12,344 posts)Also doctors expect to be highly paid and jealously guard their profession. We pay doctors triple what a doctor earns in France.
crim son
(27,464 posts)People are advised to to see the doctor for every skin bump, every bout of nausea and every fever. Doctors see them because there is a tiny risk they will refuse somebody who is actually sick and be sued. Medical malpractice insurance is insanely expensive and would not be affordable for the average person. The medical profession has been overspecialized so if you go in with a broken finger you may get a tetanus shot at your primary care physician's office and shuttled over to another office to have the injury set. We all get tested for every darned thing under the sun - are badgered into it, even. And those tests and procedures are insanely expensive! Our medical care system is screwed up, royally screwed up.
Doremus
(7,261 posts)Pushing for this test and that, totally unrelated to the problem at hand ... have it here at this office not the one closer to your home...
It's a sad and pathetic thing what the oligarchy has done to our healthcare system.
mwooldri
(10,303 posts)I know that it's not as valuable as it used to be (thank you Brexit) but every Brit resident in the UK has the National Health Service. It's my backup plan, it's also my children's back up plan. Yes there are waiting lists for certain things (knee replacements, non life threatening stuff) but life threatening stuff gets treated. The ACA was a step in the right direction to universal health care. Trump Care is a big step backwards.
malaise
(269,072 posts)pirateshipdude
(967 posts)awesomerwb1
(4,268 posts)I hope something changes soon. Millions of people do not deserve this.
Is there a way to document all these cases? Someone should start a website if there isn't one already (or in the works) to document all these cases with personal videos etc. These f-ers responsible for all this suffering have to be held accountable for this someday if there is justice in this world.
There can't be a single person in this country who won't be touched in one way or another by a similar story.
demtenjeep
(31,997 posts)there are millions of us
GoCubsGo
(32,086 posts)My mom's side of the family is full of people who died from it. But, we have the absolute worst drivers in the country here, so one of them could just as easily take me out. Either way,I will go quickly,since I am uninsured, and not a member of the group the republicans deem worthy of living.
Rollo
(2,559 posts)SARCASM ALERT!
Seriously, I'm in sort of the same boat... insulin dependent diabetes; you take away my health care, I may die. Right now I have employer subsidized exchange coverage, and am old enough to go on Medicare Part B if I have to, although the drug benefits are not as good as with employer subsidized exchange coverage.
It really riles me when the cons say what a failure Obamacare is. It isn't. From my point of view, it's been very successful. People who think it sucks probably have never faced a serious health issue while on limited income.
bagelsforbreakfast
(1,427 posts)B2G
(9,766 posts)Are you insured through your employer? Or is it Medicaid?
B Stieg
(2,410 posts)for diabetes was to stop eating.
Guess I'll be trying that.
Unless, of course, the MS comes back.
Then, I really don't know...
smirkymonkey
(63,221 posts)I am so sorry for your predicament and I wish you the best. There should never be a reason why someone like you should be denied healthcare. I am so angry about this I could spit nails!
There must be a better, more compassionate way. There absolutely must be.
hamsterjill
(15,222 posts)I have a family member just diagnosed with cancer and we are frantically trying to find treatment.
Yours is one of many - TOO many, I might add - that I've read that are all so needless and heart wrenching.
I have nothing uplifting to offer, but I simply wanted to acknowledge the pain and suffering, and merely send you a hug. It's not right, and I'm never going to lose that simply concept.
0rganism
(23,958 posts)...i also have a pretty solid idea of how i go now, thanks to Trump and the GOP.
i'm relying on some fairly expensive medicine to keep my MS on hold, but it's not perfect; in a couple years i will likely no longer be able to work. the year after that, my insurance will disappear, and i will no longer be able to afford medicine. then the MS progression resumes full speed - i don't expect to live more than 10 years under these conditions.
if AG Sessions resumes the war on weed, which i use daily to abate symptoms, my muscle spasms will exacerbate the situation.
i intend to go to DC to live out the final months of my life as close to the capitol steps as i can get. the GOP perps can damn well walk past my failing, twitching body every day until it turns into a corpse.
LiberalLoner
(9,762 posts)janx
(24,128 posts)So unless you are aware of that, you might want to check it out. That's another horrible thing that we all have to deal with.
roamer65
(36,745 posts)Doreen
(11,686 posts)situation. One of the things that pisses me off is that the repukes that want to take our health insurance away and make us die in pain are the fuckers that vote against assisted suicide. It is like haha no prescribed pain meds for you while you become totally incapacitated and not allowed to escape a terrible death. WHY, are they against letting us go in a nicer way?
roamer65
(36,745 posts)I don't plan to linger in agony or abandoned in the streets.
I believe in voluntary physician assisted suicide.
Demtenjeep...
nancy1942
(635 posts)but at age 75 I probably don't have to worry about a long and horrible finale. Since I live in Oregon where there is a Death with Dignity law(until the Republicans figure out how to ban it); that would be my plan if my Crohn' s ultimately threatens me. I am currently not doing
very well, so I am realistic. I can share your worries. I wish you well during these God awful times.
townie
(38 posts)I hope things get better for you. I've heard similar stories though.
peggysue2
(10,836 posts)to read this. Which is why we all need to call out this wealth transfer program posing as healthcare reform. I don't know how I will die but I know that it will happen, one way or another. I also know in my bones that if we cannot afford to offer care and dignity to all our citizens, then we're not much of a society.
Our youngest son suffered a traumatic brain injury nearly 20 years ago. We had insurance but his medical bills were staggering. He's alive and doing well but he's a walking pre-existing condition.
This is why we fight.
LongTomH
(8,636 posts)I am so sorry for all the people on this thread who will have to make the choice between suicide and prolonged suffering if TrumpDeathCare passes.