should I leave it?

The only question is how much privacy you want to cede.

Last edited Sun Nov 16, 2014, 01:21 PM - Edit history (1)

think I should remove this thread. It did not feel right.

My older son was born with external hydrocephalus. He's 20 now and didn't require any treatment. About the only effect we've seen is his hat size.

Since I was not born with Hydro. I have different form of Hydro which occurred at the age of 47.

I hope this doctor provides the help you are looking for.

they seems very helpful. I hope it will be resolved once and for all. I'm square one once again with this problem.

Best wishes for speedy and pain-free healing...

Last edited Sun Nov 16, 2014, 01:22 PM - Edit history (1)

it's been a long rough road.

Hydrocephalus Diagnosed in Young and Middle Aged Adults

Hydrocephalus that is diagnosed in young and middle-aged adults is different from hydrocephalus diagnosed in infancy and early childhood, or adult-onset normal pressure hydrocephalus (NPH) found in older adults (typically age 60 and older). Doctors are just beginning to identify and describe this distinct form of hydrocephalus.

As yet, there is no universally agreed-upon term to describe this form of hydrocephalus. We have chosen to use the term coined by Dr. Michael Williams: the syndrome of hydrocephalus in young and middle-aged adults (SHYMA). (Other terms used to describe this and similar forms of hydrocephalus are late-onset idiopathic aqueductal stenosis, long-standing overt ventriculomegaly of the adult, and late-onset acqueductal stenosis.)




http://www.lifebridgehealth.org/Main/HydrocephalusDiagnosedinYoungandMiddleAgedAdults.aspx

I know you've been struggling

I've been whining a lot as of late. It's been tough to deal with a non stop headaches, my back and neck problems and then stopping the medication. Thanks again

Wishing you better health.

for your good wishes.

Keep me informed. Have only seen neurologist, too chicken to explore shunt. How are you doing?



Good luck!