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Akoto

(4,266 posts)
Sat Jul 23, 2016, 02:05 AM Jul 2016

So, I have shingles. Ow.

Always thought this was a condition folks older than myself faced, but I'm 31, and a friend who works at my GP's office says he had them at 15!

I admit my doubts about the diagnosis, but both the nurse practitioner and the GP looked at the outside of my leg and said they could see the rash running along the nerve. I pretty much haven't been able to for the life of me except for tonight, when the light hit my leg just right in a dark kitchen and I was able to see two bumps in the area they indicated.

The NP called it early shingles and said it was good that I had come when I did, in a way. When asked her level of certainty, she said 95%, so I guess I have to get over my medical skittishness and try to trust her diagnosis. I've not even taken a full two days of antivirals, and I was told to wait at least four days before getting concerned about misdiagnosis.

It doesn't seem to bother me so much during the day, but at night, gah. I haven't been sleeping much because everything that touches it hurts. I'm physically disabled, so I live with my parents, and I don't think they'd approve of my stripping any further down than my boxer shorts. :S Of course, the pain is also on the leg that has a limp due to my disability. I think my body is telling me to get it removed or else!

What's worse, I also had to go on an antibiotic for something separate. Between the two, no contact with alcohol (imbibed or external) or propylene glycol. I can't drink anyway due to my meds for my disability, so that wasn't a big deal. However, propylene glycol is in everything! It was in my hand soap, my alcohol-free mouthwash (try to take me out again, Big Dental!), even the lidocaine spray I had been using on my leg at pharmacist's suggestion. My folks had to go scour the mouthwash aisle for a damned hour just to find one that was okay.

It's funny that this can come from, as my mom recalls it, three chickenpox which I seemed to be absolutely unfazed by as a baby (I got them from my older brother, like many bad things in my life). Feels like the outside and somewhat the front of my leg, from just beneath the hip to just above the knee has either a sunburn or a rug burn. At night, it'll start to sting at random, like bee stings. Can't stand contact with fabric or being rubbed, but weirdly, I can put my hand to it and it's fine if I keep it still. Also weird, the skin has a numb quality even as it hurts! Crazy thing.

I definitely wasn't expecting this diagnosis when I went in. Always thought, more than age, that this came with a raging outbreak of lesions and such. In a way, that'd be easier for me to accept, because at least I could see it! As I said, just have to try and trust for a bit.

Sorry for rambling here. It's 2am and I have absolutely no desire to try going to sleep, so instead, I vent like a madman. Hardened by fifteen years of chronic pain, taken down by three chickenpox back with a vengeance.

10 replies = new reply since forum marked as read
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patricia92243

(12,597 posts)
2. You cannot get vaccinated while in the middle of an outbreak, but as
Sat Jul 23, 2016, 02:32 AM
Jul 2016

soon as it is over - get that vaccination. It will come back if you don't. Having it once will not make you immune in the future.

So sorry you are in such pain now.

qnr

(16,190 posts)
3. Sorry that you are going through this.
Sat Jul 23, 2016, 02:33 AM
Jul 2016

I really don't know what to say about helping with the pain. Just a reminder to stay away from people (especially children) if you have open sores. My wife's grandmother was recently diagnosed with it, it kept her away from the kids a lot for a while, and everybody hated that

Akoto

(4,266 posts)
4. That's the weird bit, I didn't know you could have rashless shingles.
Sat Jul 23, 2016, 02:38 AM
Jul 2016

That said ... You can! That's on the diagnosis of my Nurse Practitioner, my GP, *and* Dr. Google!

No sores or anything, in short. With luck, the antivirals will work well and there never will be.

qnr

(16,190 posts)
5. Well that's a positive note at least.
Sat Jul 23, 2016, 02:41 AM
Jul 2016

Good luck and I hope you get through all of this relatively unscathed after the antiviral course.

dixiegrrrrl

(60,010 posts)
8. The key that it is shingles:
Sat Jul 23, 2016, 08:44 AM
Jul 2016

"the skin has a numb quality even as it hurts!"

It is a nerve infection, and nerves are under the skin, so yeah, you get this crazy itching burning feeling but rubbing/scratching the skin does not relieve the itch. Pure torture.

The only thing that helped me was to keep the areas wrapped, snugly, esp. at night, which really reduced the "fire" feeling from rubbing the skin against sheets and blankets. Sounds weird, but really helped. And pain pills.
My doc prescribed generic Elavil, called Amitriptyline, which has been used off label for years for nerve pain. This was for the post shingle pain, I am really curious if it would have worked during the outbreak as well.

CTyankee

(63,912 posts)
9. I, too, am still struggling with the after effects of my shingles episode which started last Novembe
Sat Jul 23, 2016, 09:37 AM
Jul 2016

I am now diagnosed with post herpetic neuralgia and I am going to a pain specialist for a procedure called Qtenza which involves insertion of a thin wire in the back of my neck -- I can't just get a nerve block because the affected area is too close up the vertebrae to my head.

I too will be getting my shingles shot (probably this week).

NewEnglandGirl

(610 posts)
10. I feel for you...
Sat Jul 23, 2016, 10:17 AM
Jul 2016

There are some meds to help with the nerve pain such as Neurontin or Lyrica....if the pain is really bad I would ask the doctor about using them for a time. See if that would be ok with your other meds but I know that they are given along with the antivirals. Sending you healing vibes.

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