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CTyankee

(63,912 posts)
Thu Dec 24, 2015, 06:00 PM Dec 2015

update on the shinges nightmare

I'm in week 7. After 3 months my "official" post herpetic neuralgia kicks in formally. So we have a window of hope that before that date it will be gone. Sorry for the confusion before.

I saw the neurologist today. I was so hopeful a nerve block would solve this but he said absolutely not, and he's never heard of it as a remedy for this. OK, he's the doctor, not me.

So he has me upping my dose of Gabapentin by one 400 mg pill a day, in addition to the Percoset (every 4-6 hours). We'll see what happens.

This is the first Christmas I have had without family. I usually visit my MA dtr and her family. We are all sad. But she is busy cooking and I'm here posting my condition online to DU.

Merry Christmas everyone! Love you so much!





30 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
update on the shinges nightmare (Original Post) CTyankee Dec 2015 OP
SO sorry you're still stuck, yank! elleng Dec 2015 #1
glad you are home happy. Some people are. It's a relief. CTyankee Dec 2015 #3
Merry Christmas to you. murielm99 Dec 2015 #2
Yes, I am. I am up out of bed but will be back in it early tonight...only no dreams of sugarplums... CTyankee Dec 2015 #4
Feel better! shenmue Dec 2015 #5
thanks so much, shenmue! Happy holidays to you to! CTyankee Dec 2015 #6
Feel better soon, we're thinking of you..n/t monmouth4 Dec 2015 #7
I've got wonderful friends here! I don't know what I'd do without my DU community! CTyankee Dec 2015 #20
L-lysine & esther C helped me get past shingles pain.... Can't hurt, might help you too? peacebird Dec 2015 #8
I'm writing that down and going to my health food/drug store tomorrow! CTyankee Dec 2015 #19
My 2nd bout with shingles looked to be very mild procon Dec 2015 #9
thanks, but doc said nothing about this. I tried acupuncture for somethinhg else and was CTyankee Dec 2015 #10
The patches didn't work at all...they hurt...doc said he thought that would be the case. CTyankee Dec 2015 #12
Sorry. Merry Xmas. 840high Dec 2015 #11
thanks. I am hopeful for an xmas miracle to cure this thing...hope is strong...we'll see... CTyankee Dec 2015 #13
What an awful ordeal, CTyankee. brer cat Dec 2015 #14
I know a woman who had the nerve block for Shingles and she swears by it... 1monster Dec 2015 #15
what was the dr.'s speciality who did the nerve block? My neurologist said he hadn't CTyankee Dec 2015 #18
I don't know and won't see her until some time after the Christmas break. I'll 1monster Dec 2015 #21
A recent story in the AARP bulletin told about a person question everything Dec 2015 #16
Wishing you courage and strength to face this ordeal, CTY. Surya Gayatri Dec 2015 #17
always a good idea, surya. thank you... CTyankee Dec 2015 #22
Thanks for the updates goldent Dec 2015 #23
i guess there's mixed thinking on this. My pharmacist said after this shingles attack I won't CTyankee Dec 2015 #24
Just to be clear goldent Dec 2015 #25
While the shingles vaccine is NOT a guarantee you'll never get them, SheilaT Dec 2015 #27
When my aunt was 90 (she's not 93) she had a terrible case of shingles dflprincess Dec 2015 #28
GET IT! elleng Dec 2015 #26
I got the message goldent Dec 2015 #29
Good! elleng Dec 2015 #30

CTyankee

(63,912 posts)
3. glad you are home happy. Some people are. It's a relief.
Thu Dec 24, 2015, 06:13 PM
Dec 2015

If I were with my dtr I would run into my ex again and even tho he is on medication that keeps him from being too obnoxious, it does stir the memory (not what I want to do!).

Wish I could be off meds but c'est la vie. Hoping for better days...

murielm99

(30,764 posts)
2. Merry Christmas to you.
Thu Dec 24, 2015, 06:09 PM
Dec 2015

I am sorry you are suffering this at the holidays. Try to stay comfortable, if possible.

CTyankee

(63,912 posts)
4. Yes, I am. I am up out of bed but will be back in it early tonight...only no dreams of sugarplums...
Thu Dec 24, 2015, 06:16 PM
Dec 2015

dreams of relief from pain!

The great news is that my appetite has come back and I'm eating again...lost 25 lbs. during this saga but I wasn't fat to begin with, and the doc doesn't seem concerned...

peacebird

(14,195 posts)
8. L-lysine & esther C helped me get past shingles pain.... Can't hurt, might help you too?
Thu Dec 24, 2015, 07:00 PM
Dec 2015

Best of luck!

procon

(15,805 posts)
9. My 2nd bout with shingles looked to be very mild
Thu Dec 24, 2015, 07:03 PM
Dec 2015

with only just a mild rash and a couple of blisters, so I was very surprised when that turned into post herpetic neuralgia. There was no relief from the constant pain and nothing my MD tried brought me any relief, just the stupor of narcotics which only dulled the senses, but did not actually eliminate the pain.

I read that some patients were getting good results from acupuncture. I didn't really know what to expect after the first session, but I'd say there was a 60% reduction in pain within 24 hours. The acupuncture itself was quite painless and I had a total of 3 treatments that used a mild electrical current attached to the needles. Following that, I have also got the vaccine as well, and have not had another episode for 2 years.

Speaking only of my own experience, I also found some short term relief in using OTC topical ointments containing both camphor and menthol to soothe my sensitive skin. I certainly empathize with you, there is nothing more debilitating and depressing than the raw intensity of that endless, unrelieved pain.

Wishing you a speedy recovery.

CTyankee

(63,912 posts)
10. thanks, but doc said nothing about this. I tried acupuncture for somethinhg else and was
Thu Dec 24, 2015, 07:39 PM
Dec 2015

disappointed. Thanks for your report, tho. I do appreciate it.

CTyankee

(63,912 posts)
12. The patches didn't work at all...they hurt...doc said he thought that would be the case.
Thu Dec 24, 2015, 07:53 PM
Dec 2015

so lidocaine is out...jeez, what next???

brer cat

(24,606 posts)
14. What an awful ordeal, CTyankee.
Thu Dec 24, 2015, 08:12 PM
Dec 2015

I do hope you get relief from the change in meds. Yucky way to spend Christmas.

If it can't be merry, I hope at least it isn't miserable.

1monster

(11,012 posts)
15. I know a woman who had the nerve block for Shingles and she swears by it...
Thu Dec 24, 2015, 09:10 PM
Dec 2015

She was out sick for seven days and then back good as new.

I am not endorsing or denigrating this treatment. I have no other knowledge of it other than the above anecdote.

CTyankee

(63,912 posts)
18. what was the dr.'s speciality who did the nerve block? My neurologist said he hadn't
Fri Dec 25, 2015, 10:36 AM
Dec 2015

ever heard a nerve block being done for shingles. And this is his specialty! I don't understand...

1monster

(11,012 posts)
21. I don't know and won't see her until some time after the Christmas break. I'll
Fri Dec 25, 2015, 01:31 PM
Dec 2015

ask her when we get back to school.

question everything

(47,535 posts)
16. A recent story in the AARP bulletin told about a person
Fri Dec 25, 2015, 01:04 AM
Dec 2015

with painful shingles and eventually meditation eased it a bit. Did not need that many painkillers.

You may want to look into it.

Hoping for the best.

 

Surya Gayatri

(15,445 posts)
17. Wishing you courage and strength to face this ordeal, CTY.
Fri Dec 25, 2015, 06:45 AM
Dec 2015

Try blocking the pain with music. With a good pair of earphones and well chosen pieces, you can get some respite, at least for a while.

Music not only has "charms to soothe a savage breast," it can interfere with the brain's perception of pain.

goldent

(1,582 posts)
23. Thanks for the updates
Sat Dec 26, 2015, 11:45 PM
Dec 2015

I'm sure many besides me have heard about the vaccine and wondered whether we should get it. My doctor has mentioned it to me a few times but I've never done anything about it.

Hoping for the best for you.

CTyankee

(63,912 posts)
24. i guess there's mixed thinking on this. My pharmacist said after this shingles attack I won't
Sun Dec 27, 2015, 09:54 AM
Dec 2015

need it. I guess I'll have to rely on my doc's estimation.

The pain subsided remarkably yesterday afternoon. I thought for sure this was it, the end of it, but it is roaring back today...yuck...

goldent

(1,582 posts)
25. Just to be clear
Sun Dec 27, 2015, 09:54 PM
Dec 2015

I've never had shingles - my doctor had suggested it as a preventive measure but didn't really push it.

 

SheilaT

(23,156 posts)
27. While the shingles vaccine is NOT a guarantee you'll never get them,
Sun Dec 27, 2015, 10:12 PM
Dec 2015

it should greatly reduce the severity of an attack.

dflprincess

(28,082 posts)
28. When my aunt was 90 (she's not 93) she had a terrible case of shingles
Sun Dec 27, 2015, 10:27 PM
Dec 2015

bad enough we were all afraid it might be the end of her.

At the time people were being told not to get the shot until they turned 60 (I think that's been revised to 50 now) and I did get vaccinated the day before I turned 60. On my birthday Auntie called, not to wish me a happy birthday but to remind me to go get "that shot".

You go get "that shot" too.

elleng

(131,107 posts)
26. GET IT!
Sun Dec 27, 2015, 10:06 PM
Dec 2015

I did, several years ago.

Especially after Dad suffered with the illness, I jumped in (as soon as I could.) After hearing all of Yank's misery, there'd be NO DOUBT in my mind.

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