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KaryninMiami

(3,073 posts)
Wed Aug 13, 2014, 11:52 PM Aug 2014

Stem Cell transplant starts tomorrow

And I was advised this morning that sadly. the cancer has returned. Although the PT scan in mid June showed remission, 4 nodes of lymphoma have now shown up in this week's scan only 2 months later. This thing is really aggressive. Needless to say, this was more then unsettling news. My doctor, who heads up the transplant unit at UM Sylvester, assured me that he and 2 colleagues, all with extraordinary credentials, independently decided that moving forward with the autologous transplant still was the right decision. Apparently, it's not uncommon for lymphoma patients to go through these even when disease is present because the massive dose of chemo will knock it all out. As there is no cancer in my bone marrow, my stem cells are just fine to infuse after 6 days of chemo. I go in tomorrow (Thurs) at 10am. Will be checking in here when I can with updates and am journaling at caring bridge (PM me if you are interested in following along with my journey there).

Taking deep breaths (and just swallowed my nightly Xanax). With 4 weeks in the hospital looming in front of me, I feel like Piper from Orange is the New Black, heading into the slammer.

Wish me luck.

11 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Stem Cell transplant starts tomorrow (Original Post) KaryninMiami Aug 2014 OP
... YvonneCa Aug 2014 #1
Wishing you tons of luck... NYC_SKP Aug 2014 #2
Wishing you the very best. sinkingfeeling Aug 2014 #3
Stay determined ... slipslidingaway Aug 2014 #4
Best of luck on Day Zero!!! slipslidingaway Aug 2014 #5
Keeping you in thoughts and prayers, Karyn Ruby the Liberal Aug 2014 #6
Hoping you will be leaving the hospital soon ... slipslidingaway Sep 2014 #7
Just read an update on Karyn's CB site ... slipslidingaway Sep 2014 #8
Thank you for that update. Ruby the Liberal Sep 2014 #9
You're welcome ... slipslidingaway Sep 2014 #10
(((KaryninMiami))) Solly Mack Sep 2014 #11

slipslidingaway

(21,210 posts)
4. Stay determined ...
Fri Aug 15, 2014, 12:14 AM
Aug 2014

and sorry to hear the results of the latest scan. I do not know the particulars of your disease, but you can check the LLS boards, both under lymphoma and under stem cell transplant. If you do, you'll see that the word "determined" is used more frequently than the word "positive." Nobody can stay positive all the time, just try and stay determined, day by day!

As my husband's doctor said ... we have lots of drugs, use whatever meds (anti-anxiety/pain) you need to get through this period, your job is to get through the next month!

Best of luck!













slipslidingaway

(21,210 posts)
5. Best of luck on Day Zero!!!
Wed Aug 20, 2014, 12:25 AM
Aug 2014

And +1, +2, +3, +4 .......




"The day you receive your new cells is often called 'Day Zero'. It usually comes 1 or 2 days after you complete the preparative regimen..."

http://bethematch.org/For-Patients-and-Families/Getting-a-transplant/Transplant-day/



slipslidingaway

(21,210 posts)
8. Just read an update on Karyn's CB site ...
Sat Sep 13, 2014, 12:36 AM
Sep 2014

she is now home and taking things one day at a time.

Healing thoughts coming your way



slipslidingaway

(21,210 posts)
10. You're welcome ...
Sat Sep 20, 2014, 07:30 PM
Sep 2014

I always look for updates from the participants here in the forum, so thought others might want to read the latest.

We all need a little push and encouragement at times.

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