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cate94

(2,811 posts)
Fri Oct 10, 2014, 05:12 PM Oct 2014

breast cancer

It is confusing. Last year they told me I had cancer and needed surgery. Then they told me it wasn't really cancer it was PLCIS. Not DCIS, not LCIS but PLCIS. Pleomorphic lobular carcinoma in situ. Actually it is treated the same as DCIS and even though initially they panicked me. it was easy and just a lumpectomy. NBD in fact I was admiring the scar in early summer, it is barely visible now. I went for my 6 month and all was good. No problems.
I changed providers for my annual and went to a facility associated with my doctors group. The biggest reason I changed was because they have 3-d imaging. I have dense breasts with lots of calcifications so it felt like my best bet. Indeed it was.

They did the left first and it all seemed fine. My right- well the picture didn't come out and the radiologist wanted another. Okay. Gulp. My Dr.s orders included an ultrasound of the left -so off I go to the next station. The technician started on the right. No, I said it is supposed to be the left. The radiologist wants me to do both. Shit. The radiologist comes in and tells me it is very small. Need a biopsy. They wouldn't have seen it without 3-d. It turned out to be infiltrating ductal carcinoma.

Surgery, pathology, and it turns out there were 4 IDC's all very small and clustered together under a very large PLCIS. They got good margins on the IDC but not the PLCIS. Back for surgery. They tell me if they don't have good margins this time, I'll have to have a mastectomy. Waiting.

21 replies = new reply since forum marked as read
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breast cancer (Original Post) cate94 Oct 2014 OP
Thinking of you and hoping for the best outcome. Solly Mack Oct 2014 #1
Thanks cate94 Oct 2014 #3
Wishing you the best, but happy to hear you are questioning, reading, thinking ... slipslidingaway Oct 2014 #2
Thanks cate94 Oct 2014 #4
You are welcome, tried to find a link to the Memorial Sloan Kettering fund raiser ... slipslidingaway Oct 2014 #5
I do try cate94 Oct 2014 #8
Happy to hear you have a companion who will not take no for an answer ... slipslidingaway Oct 2014 #13
Standing with you cate Ruby the Liberal Oct 2014 #6
I find it odd cate94 Oct 2014 #7
Have my fingers crossed for a good outcome with the surgery. sinkingfeeling Oct 2014 #9
Thank you! cate94 Oct 2014 #10
Good news cate94 Oct 2014 #11
Wonderful news on the clean margins ... slipslidingaway Oct 2014 #12
Thanks! cate94 Oct 2014 #14
You have a job to do ... slipslidingaway Oct 2014 #15
Will do! cate94 Oct 2014 #16
Great and ... slipslidingaway Oct 2014 #17
Absolutely cate94 Oct 2014 #18
Thanks so much ... slipslidingaway Oct 2014 #19
Yay for clean margins! Ruby the Liberal Oct 2014 #20
Thanks!! cate94 Oct 2014 #21

slipslidingaway

(21,210 posts)
2. Wishing you the best, but happy to hear you are questioning, reading, thinking ...
Fri Oct 10, 2014, 07:26 PM
Oct 2014

and changed providers that have a more complete view.

You have to be your own advocate, appears as if you are doing a fine job!



slipslidingaway

(21,210 posts)
5. You are welcome, tried to find a link to the Memorial Sloan Kettering fund raiser ...
Fri Oct 10, 2014, 09:52 PM
Oct 2014

for breast cancer but could not. They currently have a donor that is giving two dollars for every dollar donated and I would post a thread a tread in GD if I had more than the mailing. Been donating to them since the 80's, never thought my spouse would need their expertise a few years ago.

Continue to question and find an outlet/laugh and keep moving, exercise is so important. I really should take my own advice



cate94

(2,811 posts)
8. I do try
Sat Oct 11, 2014, 09:34 AM
Oct 2014

to find ways to laugh. I have a dark sense of humor which seems to work well in this situation.. I have a dog that requires two walks a day. Normally we walk three miles a day. Since it is so close to surgery, I probably won't get half that for a few days. I need the exercise for my mental health more than anything - especially now.

Thanks for the advice. I need all the help I can get.

slipslidingaway

(21,210 posts)
13. Happy to hear you have a companion who will not take no for an answer ...
Tue Oct 14, 2014, 11:32 PM
Oct 2014

on going for a walk! Little by little, so happy to hear the good news

Ruby the Liberal

(26,219 posts)
6. Standing with you cate
Fri Oct 10, 2014, 09:53 PM
Oct 2014

They focused on my left breast (which was DCIS) last fall, and after all of the exams, ultrasounds, and biopsies - finally sent me for a bilateral MRI in December where they found 'atypical cells' in the other breast.

I opted for a bilateral mx because I didn't want the unknown rearing ts ugly head every 6 months in testing for the next 5 years.

Ask 2 people what they would do in that position and you will get 3 answers.

Hang in there and please continue to post your experiences/questions - this is a wonderful group.

cate94

(2,811 posts)
7. I find it odd
Fri Oct 10, 2014, 11:04 PM
Oct 2014

that they did a mammogram, ultrasound and an MRI and they only saw one of the tumors. That really makes me a little skeptical of the imaging capabilities but I am not ready... I had my re excision yesterday and they had a nurse who has had a mastectomy come in and talk to me about hers. She said it wasn't that painful. It didn't sound like reconstruction was a piece of cake. I guess it is best to be prepared.

I ask myself what I will do and get three answers.

Thanks for your input

cate94

(2,811 posts)
11. Good news
Tue Oct 14, 2014, 05:09 PM
Oct 2014

Clean margins! No more surgery!! So very grateful!
Next step will be radiation and I hear that isn't too bad. I'm meeting the oncologist tomorrow to find out what other steps I might need to take.

slipslidingaway

(21,210 posts)
12. Wonderful news on the clean margins ...
Tue Oct 14, 2014, 11:29 PM
Oct 2014

another concern dropped from the list! We do sweat each day waiting for results, so I know what it is like to say "check"
and moving on!

Very happy to hear the good news



cate94

(2,811 posts)
14. Thanks!
Wed Oct 15, 2014, 12:02 PM
Oct 2014

I feel very lucky. I met with the oncologist today and he was very pleased with everything. I need to verify the dates but it looks like radiation will start in December. Such a sigh of relief.

slipslidingaway

(21,210 posts)
15. You have a job to do ...
Wed Oct 15, 2014, 10:03 PM
Oct 2014

during this time ... build yourself up with good food, exercise and lots of laughs before the next leg of the race.

So happy to hear he was pleased with everything so far!




slipslidingaway

(21,210 posts)
17. Great and ...
Wed Oct 15, 2014, 10:28 PM
Oct 2014

could use some good thoughts on Friday for my spouse's 4 year check up post transplant ... still get nervous



Ruby the Liberal

(26,219 posts)
20. Yay for clean margins!
Fri Oct 17, 2014, 12:13 PM
Oct 2014

It is nerve wracking waiting post surgery for pathology. Congrats on a positive report!!!

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