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Ms. Toad

(34,074 posts)
Mon Apr 25, 2016, 08:04 PM Apr 2016

Finally making plans

Tentative as they may be . . .

Surgery the week of May 16 or 23, after we get genetic tests back. The tests will make the difference between lumpectomy and bilateral mastectomy (60% greater risk of cancer => bilateral mastectomy.)

Otherwise the news is good. ER+, PR+, and HER2-. The best combination. They will probably do an oncotype test during surgery - there is a small chance i will need chemotherapy if it falls into a range that suggests a high propensity to regrow.

The size is slightly larger than previously suggested - so likely shading into stage II, by 1 mm. Grade 1.

If I have a lumpectomy - radiation daily for 4-6 weeks. If I have a mastectomy - no radiation.

Then there is the reconstruction question. I'd always assumed I would not have reconstruction - but since I've just lost 57 lbs, and fit into all my clothes, I'd like to enjoy them a bit longer in a way that i might not be able to without reconstruction.

Anyone with experience with radiation fatigue & breast reconstruction (of any flavor - I seem to be eligible for all kinds since I am no longer obese . . . I'm 2 lbs from a normal BMI).

Emotionally, I'm fine as long as the new nurse navigator they assigned to me can keep the rest of the office in line so there are no new communication snafus.

5 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Finally making plans (Original Post) Ms. Toad Apr 2016 OP
Your prognosis sounds very good! PennyK Apr 2016 #1
Prognosis is definitely good. Ms. Toad Apr 2016 #2
You sound good! Keep us posted, please. Solly Mack Apr 2016 #3
I am - subject to change at any moment . . . Ms. Toad Apr 2016 #4
I can advise on one thing PennyK Apr 2016 #5

PennyK

(2,302 posts)
1. Your prognosis sounds very good!
Mon Apr 25, 2016, 09:58 PM
Apr 2016

Our types are very different, but it sounds like you're going to avoid chemo, so good for you!
And I'm with you on reconstruction. I'm 65 and I'd like to look relatively normal for a while longer, too.

Ms. Toad

(34,074 posts)
2. Prognosis is definitely good.
Tue Apr 26, 2016, 11:26 PM
Apr 2016

Near 100% (aside from my likely quirky genes).

Fingers crossed that my insurance company doesn't reject this genetic test. I'd like to have that information before I decide about surgery.

Solly Mack

(90,769 posts)
3. You sound good! Keep us posted, please.
Thu Apr 28, 2016, 12:53 AM
Apr 2016

I don't have any experience with breast reconstruction but I can tell you that I was tired for a few months even after radiation ended. It actually seemed to get worse after treatment. I kept to a routine as much as possible but some days it was all I could do to stay upright.

Sending you my best!

Ms. Toad

(34,074 posts)
4. I am - subject to change at any moment . . .
Thu Apr 28, 2016, 07:35 AM
Apr 2016

Yesterday's administrative screw-up of the day didn't even phase me.

Your experience sounds like what I've been told about radiation. That's one of the reasons I'm leaning toward a mastectomy - unless something unexpected turns up - no radiation. I typically recover pretty well from surgery - so I might be back to normal much more quickly than after radiation.

Thanks!

PennyK

(2,302 posts)
5. I can advise on one thing
Thu Apr 28, 2016, 08:43 AM
Apr 2016

Year and a half ago, I had breast reduction...I was big and saggy and experiencing bad shoulder pain (one torn ligament diagnosed). I even got it approved by my insurance! For that time until this little incident, I've had perfect perky girls, and it's been heavenly. I'm hopeful, that when this is all said and done, that I'll be back to that (and I already have the plastic surgeon to make me perky again)!
And since I've already had surgery there, that part doesn't scare me at all. It really was not bad.

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