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TM99

(8,352 posts)
Mon Jan 5, 2015, 04:58 PM Jan 2015

I am asking for a bit of support today.

As many of you well know, I am a non-believer, 'atheist' if you will, and am not a part of any organized religious groups even though I practice many Buddhist teachings and have been involved with my ancestral Ocha traditions here locally.

One thing I do value in religion is the community support in times of both great joy and great sadness. Today I am struggling with mortality. My father is in his late 80's. He has had heart problems for decades now. I know the reality of his death is coming sooner rather than later.

After Christmas, he got the flu despite receiving this year's vaccine. He suffered through it only to end up with bronchitis. The day before New Year's Eve, he went to his new PCP. With all of the changes in medicare and the ACA, he had to leave a practice with MD's that worked with him for well over 15 years. This new MD listened to his lungs and said you will be fine and sent him home. The next day he went into the ER unable to breath. He spent New Year's there and was discharged Saturday. Today I received a call that he is back in the ER and soon to the ICU. My sisters and mother are certain that this is his time. I am not but that is another story.

His cardiologist said he should not have been released, of course. He is finally now on antibiotics as he has developed pneumonia, of course. He has internal bleeding and is receiving blood transfusions and is of course on oxygen. I can not just pick up and fly across the country to be with my family at this time due to my own work and health concerns. I feel a mixture of anxiety, guilt, and deep sadness. No matter how much I know the reality of death is ever present, I still can not yet wrap my mind around losing my father.

He has been such an important role model in my life. He was born a bi-racial marriage and in the 1960's married my white mother in the south. They marched for civil rights together and have been very active in their church for decades especially with regards to LGBT civil rights as my youngest sister is lesbian.

I feel that this is not the time, and I can not know that for sure. If they can find the source of the internal bleeding and stop it, he is strong willed and can recuperate - this time. And there are so many variables that I can't see or predict from more medical incompetence to just a body too old and frail to fight off death any longer.

I am posting here for a kind word and some support from many who I have never met yet feel some intimate connection with.

Thank you for listening.

89 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
I am asking for a bit of support today. (Original Post) TM99 Jan 2015 OP
I am so sorry that your father and your family are going through this. hrmjustin Jan 2015 #1
Thank you! TM99 Jan 2015 #5
I'm so sorry that this is happening to you. ColesCountyDem Jan 2015 #2
Just knowing that I can come here TM99 Jan 2015 #7
Trust your instincts. okasha Jan 2015 #3
Thank you so much Okasha. TM99 Jan 2015 #8
TM99, I am a Catholic/Christian believer, but we have something in common. TexasProgresive Jan 2015 #4
Thank you TexasProgressive. TM99 Jan 2015 #9
So sorry for what you and your family are going through LiberalEsto Jan 2015 #6
Thank you so much. TM99 Jan 2015 #10
I'm sorry to hear that - hope things work out. nt el_bryanto Jan 2015 #11
Thank you El Bryanto. TM99 Jan 2015 #35
My best to you and your family at this trying time. nm rhett o rick Jan 2015 #12
Thank you Rhett o Rick. TM99 Jan 2015 #36
Sending hugs oldandhappy Jan 2015 #13
Thank you. TM99 Jan 2015 #37
Sending good thoughts to you and your Dad Sienna86 Jan 2015 #14
I hope I am right as well. TM99 Jan 2015 #38
When we die, it is important we are not alone. rug Jan 2015 #15
Every time he thinks of you, he is not alone. stage left Jan 2015 #17
Thank you very much Rug. TM99 Jan 2015 #40
Oh man. rug Jan 2015 #60
I, too, am an atheist. stage left Jan 2015 #16
Yes, I like that. TM99 Jan 2015 #41
Thank you for sharing your need for support, TM99 TygrBright Jan 2015 #18
Thank you Bright. TM99 Jan 2015 #42
A hug for you from Vermont~ democrank Jan 2015 #19
Thank you democrank. TM99 Jan 2015 #43
Reading your OP, the poem that came to me was from William Blake Fortinbras Armstrong Jan 2015 #61
Thank you Fortinbras TM99 Jan 2015 #62
Most of us are in denial about death most of the time -- it is the only way to face the day pnwmom Jan 2015 #20
Yes, that is very true. TM99 Jan 2015 #44
What a difficult time for you. cbayer Jan 2015 #21
Thank you Cbayer! TM99 Jan 2015 #45
I'm very sorry, TM99. Arugula Latte Jan 2015 #22
Thank you Arugula Latte. TM99 Jan 2015 #46
So sorry to hear this. AtheistCrusader Jan 2015 #23
light, positive energy and love irisblue Jan 2015 #24
Thank you irisblue. TM99 Jan 2015 #47
I am sending you love and light. redwitch Jan 2015 #25
Thank you redwitch. TM99 Jan 2015 #48
I'm sure he knows you are with him. Leontius Jan 2015 #26
Thank you Leontius. TM99 Jan 2015 #49
((peace to you and your family)) blm Jan 2015 #27
Thank you blm. nt TM99 Jan 2015 #50
My heart goes out to you and your Dad... mrsadm Jan 2015 #28
Thank you mrsadm. TM99 Jan 2015 #51
I'm sorry about your dad onecaliberal Jan 2015 #29
Thank you onecaliberal. TM99 Jan 2015 #52
Is he by chance diabetic? Uben Jan 2015 #30
Hi Uben. TM99 Jan 2015 #53
... Enthusiast Jan 2015 #31
Thank you Enthusiast. TM99 Jan 2015 #54
My thoughts are with you in this painful time. Jackpine Radical Jan 2015 #32
Thank you Jackpine. TM99 Jan 2015 #55
I'm sorry to hear about your dad A Little Weird Jan 2015 #33
Thank you. TM99 Jan 2015 #56
I lost my dad right before Christmas tavernier Jan 2015 #34
Oh, I am so sorry to hear that taverneir. TM99 Jan 2015 #57
Hey friend - you've done a good thing here! calimary Jan 2015 #39
Hi Calimary. TM99 Jan 2015 #58
... Mnemosyne Jan 2015 #59
Thank you Mnemosyne. TM99 Jan 2015 #65
Hope you are doing alright under the circumstances, TM. How are you? Mnemosyne Jan 2015 #71
I wish I could say I am dealing with it all with ease, TM99 Jan 2015 #74
Status update. TM99 Jan 2015 #63
That's VERY welcome news, TM99! calimary Jan 2015 #66
Hi Calimary TM99 Jan 2015 #67
Thank you for the updates. okasha Jan 2015 #68
Oops, wrote other reply before seeing your update. Good, and encouraging, news for you! Mnemosyne Jan 2015 #72
This agnostic Episcopalian will pray for you and your family wryter2000 Jan 2015 #64
Thank you wrtyer2000. TM99 Jan 2015 #73
parents and the cosmos carolinayellowdog Jan 2015 #69
Thank you CYD. TM99 Jan 2015 #75
Pinning this thread for awhile so it is easier for members to find. hrmjustin Jan 2015 #70
Another update. TM99 Jan 2015 #76
That is such happy news, TM 99! okasha Jan 2015 #77
Thank you Okasha. Yes, it is! TM99 Jan 2015 #79
I understand. okasha Jan 2015 #80
My prayers and good thoughts for your father and all of your family. hrmjustin Jan 2015 #78
Sad Update TM99 Jan 2015 #81
Peace be with you all. okasha Jan 2015 #82
Thank you Okasha. TM99 Jan 2015 #86
I am so sorry TM99! hrmjustin Jan 2015 #83
Thank you Justin. TM99 Jan 2015 #87
It is a perfectly reasonable and touching thing to do. hrmjustin Jan 2015 #89
Bereft. rug Jan 2015 #84
I am so sorry to hear that you lost your daughter Rug. TM99 Jan 2015 #85
My thoughts are with you TM. rug Jan 2015 #88
 

hrmjustin

(71,265 posts)
1. I am so sorry that your father and your family are going through this.
Mon Jan 5, 2015, 05:12 PM
Jan 2015

It is hard to be away from family in these situations. All you can do is hope for the best and prepare for the worst.

You play it by ear at the moment and just do a wait and see approach.

My thoughts and prayers for all of you.



 

TM99

(8,352 posts)
5. Thank you!
Mon Jan 5, 2015, 05:26 PM
Jan 2015

I have to remember how fortunate I am that I got to take my S.O. to visit my family last year for almost two months. We had such a wonderful visit. I got to do things that I remembered so fondly from my youth with my dad that I wasn't sure I would get to do again. He and I used to take long walks for hours just talking away about religion, philosophy, life, whatever. I got to do that again last fall by the lake near his retirement community. It was wonderful.

I appreciate all of your thoughts and prayers!

ColesCountyDem

(6,943 posts)
2. I'm so sorry that this is happening to you.
Mon Jan 5, 2015, 05:12 PM
Jan 2015

I'm not sure how I could help you, but I want you to know that I care and that you, your father and family will be in my thoughts and prayers.

 

TM99

(8,352 posts)
7. Just knowing that I can come here
Mon Jan 5, 2015, 05:33 PM
Jan 2015

and see words of support and encouragement keeps me from feeling totally helpless and lost emotional.

That is more than enough and I thank you.

okasha

(11,573 posts)
3. Trust your instincts.
Mon Jan 5, 2015, 05:22 PM
Jan 2015

Uncertainty is painful. There really is a level , though, on which we are deeply aware of those we love, regardless of distance or lack of information. Continue to hold your dad in your heart and listen to what it tells you.

As others have said, you and your family are in my thoughts and prayers. We're here for you.

 

TM99

(8,352 posts)
8. Thank you so much Okasha.
Mon Jan 5, 2015, 05:36 PM
Jan 2015

I am very much a man of thinking and sense reality. I remain open to so much in life because I am confronted by mysteries like intuition and creativity that I can't explain. And frankly I don't want to.

I feel deeply that it is just not his time. Will it be soon? Yes, certainly. He and I both know this. So I am holding on to that hope and trust right now. I won't be devastated if I am wrong. I will be elated if I am right.

TexasProgresive

(12,157 posts)
4. TM99, I am a Catholic/Christian believer, but we have something in common.
Mon Jan 5, 2015, 05:26 PM
Jan 2015

My Dad died at 80 of an aneurism on January 7th 2000. He was so proud to have made 80 in December. Your Dad is still with the family and I know that you are suffering because you can't be at his side. You and I are lucky in that we have good reason to love our fathers.

Regardless of your belief or non-belief you have that to live with. Pity those who don't feel.

I think this quote from Dr. Benjamin Mays fits your Dad. "Whatever you do, strive to do it so well that no man living, dead, or yet born can do better."

Dr. Benjamin E. Mays was an inspiration and advisor to his students, including Julian Bond, Andrew Young, and Dr. Martin Luther King, Jr., who referred to Dr. Mays as his "spiritual mentor."


NowTM99, I will be praying for you, your family, your Dad and his health care people that ya'll will get a bit more time together.




 

TM99

(8,352 posts)
9. Thank you TexasProgressive.
Mon Jan 5, 2015, 05:43 PM
Jan 2015

That is a wonderful and very apropos quote. I never had the pleasure of meeting Dr. Mays or Dr. King though both of my parents did. I was fortunate to meet Dr. Bond and Rev. Young many times growing up.

My father is a great man in my eyes. He was not a politician or a minister. He was a simple professor at a small college in the south. He taught young men and women for 35 years. He inspired those kids daily. He inspired me and still does. I had to leave when I was in my late teens. He stuffed money into my hands, gave me a hug, and said go find your own path and dreams. Little did he or I know then that I would be so far away from him and the rest of my family for so many decades. First with the military and then settling out west with a practice and teaching myself.

My S.O. and I have plans to move closer to the family this year. I just hope that he will still be alive when we are able to do so.

I greatly appreciate your thoughts and prayers.

 

TM99

(8,352 posts)
36. Thank you Rhett o Rick.
Mon Jan 5, 2015, 08:14 PM
Jan 2015

We have never conversed directly I believe, however, I find myself almost always in agreement with your posts especially some many these days in the Populist Group.

oldandhappy

(6,719 posts)
13. Sending hugs
Mon Jan 5, 2015, 06:15 PM
Jan 2015

This is hard -- not knowing, having something happening with your parents, feeling not exactly helpless but definitely not sure of things. I am GLAD for you that you have had this amazing relationship with your father. You have many memories to treasure. I know you believe that your love for your father and his for you is real. I hope that is enough. I am praying now for you as I type. May you be surrounded by all the love you have experienced over the years. Your dad is an amazing man. He lived with courage.

Keep us posted, please.

 

TM99

(8,352 posts)
37. Thank you.
Mon Jan 5, 2015, 08:16 PM
Jan 2015

I am very happy. Some would say blessed, I simply say that fate dealt me both good and bad. One of the best is my father. I have seen so many sons with such profound relationship problems with their dads. I thankfully never had those. We rarely if ever fought even during my terrible teen years. He and my mother have always been there for me and my younger sisters. I miss them all very much especially today.

Sienna86

(2,149 posts)
14. Sending good thoughts to you and your Dad
Mon Jan 5, 2015, 06:18 PM
Jan 2015

I hope you are right; that this is not your Dad's time to pass. Hugs to you. He sounds like a wonderful man.

 

rug

(82,333 posts)
15. When we die, it is important we are not alone.
Mon Jan 5, 2015, 06:24 PM
Jan 2015


November 25, 2011 - An old man was found dead in the waiting hall of a train station in Taiyuan, the capital city of North China’s Shanxi Province. Among his fellow passengers was a Buddhist monk/

http://www.urbandharma.org/kusala/dad.html

Every time he thinks of you, he is not alone.


 

TM99

(8,352 posts)
40. Thank you very much Rug.
Mon Jan 5, 2015, 08:22 PM
Jan 2015

That was beautiful.

About two hours ago, unable to speak my dad got my mom to put the phone to his ear to hear my voice. I told him again how much I love him. And if he is wanting to live and fight on, then damnit, keep fighting!

Several hours later, and I just got a text from my youngest sibling that he is sleeping finally. He got several transfusions. He still needs the endoscopy to determine the source of the bleeding and he is still very bad shape. But he is alive, fighting, and we shall see, we shall see!

 

rug

(82,333 posts)
60. Oh man.
Mon Jan 5, 2015, 11:08 PM
Jan 2015

That image gives me shivers.

Now it's up to medicine. I'm glad you made contact tonight. May you have many more.

stage left

(2,962 posts)
16. I, too, am an atheist.
Mon Jan 5, 2015, 06:28 PM
Jan 2015

I do believe, though, in the spirit of man. Wishing strength for you and your father in this difficult time.

 

TM99

(8,352 posts)
41. Yes, I like that.
Mon Jan 5, 2015, 08:23 PM
Jan 2015

I believe in that amazing sense of self that can create amazing things, fight for those in pain, will ourselves through adversary, and longs to live deeply and passionately.

Thank you.

TygrBright

(20,762 posts)
18. Thank you for sharing your need for support, TM99
Mon Jan 5, 2015, 06:33 PM
Jan 2015

It's not about believing or non-believing, it's about being human. We're here for each other, we are a community.

Your Dad sounds like a strong and vibrant person who's lived through some formidable challenges. I'll join you in hoping that he surmounts this one, too.

If I can offer any helpful suggestion, it's this: Although you may be far away and *feel* as though you can't help your father, you can look around and see who else in your family needs a loving phone call, a card letting them know they're in your thoughts, a hug if they're near, a sharing of some words of hope like the ones you've shared here about your father's strength and life.

Doing a little of that each day can be helpful in coping with your own anxiety and sorrow.

Keep us updated, okay?

warmly,
Bright

 

TM99

(8,352 posts)
42. Thank you Bright.
Mon Jan 5, 2015, 08:31 PM
Jan 2015

I am actually rather awe-struck at how wonderful this community is. I needed this kind of support today and probably for a short while.

Sadly, it is just myself and my girlfriend here. All of my remaining family are in the DC area with my parents. My S.O. is by her own admission more like my father - an agnostic mystic. She also considers herself a witch, and asked me if I minded earlier if she did some magic for me. I don't need to believe or disbelieve in the outcome of such actions. All I needed to know is that she loves me dearly.

So while she naps, I am sending her a little love card to let her know how much I am glad she is here with me through all of this. She and my family truly love each other.

See my reply to Rug for a short update.

democrank

(11,096 posts)
19. A hug for you from Vermont~
Mon Jan 5, 2015, 06:38 PM
Jan 2015

Certain events in our lives help put things in perspective. Some of these events bring us profound sorrow and sometimes profound enlightenment. Concentrate on all the wonderful memories you have of your father. Just your being able to say he was "an important role model" is golden.

Every day is a gift, but if this is his time to go, may he pass in peace knowing you love and respect him.


Take good care....

 

TM99

(8,352 posts)
43. Thank you democrank.
Mon Jan 5, 2015, 08:37 PM
Jan 2015

I definitely agree. I have spent the afternoon when not texting, on the phone, or here, reading some of the poets of the Romantic period. My father dearly loved teaching Shelly, Byron, and Keats. So today I read --

I WEEP for Adonais—he is dead!
O, weep for Adonais! though our tears
Thaw not the frost which binds so dear a head!
And thou, sad Hour, selected from all years
To mourn our loss, rouse thy obscure compeers,
And teach them thine own sorrow! Say: ‘With me
Died Adonais; till the Future dares
Forget the Past, his fate and fame shall be
An echo and a light unto eternity!’


I don't know if it will be today, and I hope not, yet I am steeling myself for the time when I do lose him but not his love.

Fortinbras Armstrong

(4,473 posts)
61. Reading your OP, the poem that came to me was from William Blake
Tue Jan 6, 2015, 04:52 AM
Jan 2015
Can I see another's woe,
And not be in sorrow too?
Can I see another's grief,
And not seek for kind relief?

Can I see a falling tear,
And not feel my sorrow's share?
Can a father see his child
Weep, nor be with sorrow filled?

Can a mother sit and hear
An infant groan, an infant fear?
No, no! never can it be!
Never, never can it be!


For what it's worth, you and your father and your family are in my prayers today.
 

TM99

(8,352 posts)
62. Thank you Fortinbras
Tue Jan 6, 2015, 10:55 AM
Jan 2015

Yes, Blake is another of our favorites. That is a touching poem, and I appreciate your prayers greatly.

pnwmom

(108,980 posts)
20. Most of us are in denial about death most of the time -- it is the only way to face the day
Mon Jan 5, 2015, 06:40 PM
Jan 2015

most of the time -- except when we have no choice, as with you, now.

I hope you can pull some strength from the awareness of all that your father has meant to you, and how much he'll always be a part of you. That much we can all believe in.

 

TM99

(8,352 posts)
44. Yes, that is very true.
Mon Jan 5, 2015, 08:39 PM
Jan 2015

I do wish that I could be in denial about this, I really do. I have seen too much death in so many ways that I know it comes for us all eventually.

It is good being able to share, especially at DU, how important my father is in shaping not only my views but so many other young minds that he taught.

Thank you so much.

cbayer

(146,218 posts)
21. What a difficult time for you.
Mon Jan 5, 2015, 06:45 PM
Jan 2015

My only wish for you is that you find some way to go visit with him as soon as you are able.

This is so often how things go with the elderly. When young, you can shake off a cold, but as you get older the possibility of complications increase and can happen very suddenly.

He sounds like a wonderful man and it helps me to understand why you are who you are. I am glad he has your mother and sister right now.

Thanks for sharing this.

 

TM99

(8,352 posts)
45. Thank you Cbayer!
Mon Jan 5, 2015, 08:46 PM
Jan 2015

I wish we could just hop on a plane later tonight. Unfortunately, with my health issues, I would make myself very sick trying to do so. I know he and my mom both understand this. We are planning on moving as soon as we possibly can, and we will go visit as soon as we can before the move.

He has suffered from severe cardiac problems since birth. He was born with a heart defect. Modern science, fate, and a strong will has given my father 80+ years of life. I am very much my father's son - willful, sometimes way too assertive, a deep love of learning and teaching, and a fighter against injustice.

I am more hopeful after the recent messages that he will pull through this one, and yes, being as elderly as he is, a simple flu can be deadly.

AtheistCrusader

(33,982 posts)
23. So sorry to hear this.
Mon Jan 5, 2015, 06:50 PM
Jan 2015

I only have one piece of advice; spend as much time with him as you can. Leave nothing, NOTHING un-said. Not everyone gets the opportunity, to reflect and talk and share, when the end does approach. Make the most of it, just in case.

redwitch

(14,944 posts)
25. I am sending you love and light.
Mon Jan 5, 2015, 06:55 PM
Jan 2015

And a virtual hug since I can't give you a real one. I believe the thing to hold on to is that the pain that you are feeling at the thought of losing him is because the love you bear him is so powerful. I believe that the energy of love is the most powerful force in the universe. I also believe that energy will sustain you and comfort you through whatever may come. You are so fortunate to have such a wonderful role model!

 

TM99

(8,352 posts)
48. Thank you redwitch.
Mon Jan 5, 2015, 08:52 PM
Jan 2015

Yes, I have a deep, deep love for all of my family. I know how hard this is on them without me. I have been so grateful at how lucky I was to have such wonderful parents. My S.O. is unable to even communicate with hers, they are simply that dysfunctional and destructive. My parents have made her feel so loved and cherished even though they have only met her the one time on our almost two month trip last fall.

I keep that love in my heart this even as I continue to hope that he will make it through this crisis. I do so want at least one last visit or a few years living near them again before he does die.

 

TM99

(8,352 posts)
49. Thank you Leontius.
Mon Jan 5, 2015, 08:55 PM
Jan 2015

It was wonderful being able to speak with him even if all he could do was listen to me yammer on about staying strong and that I love him.

Uben

(7,719 posts)
30. Is he by chance diabetic?
Mon Jan 5, 2015, 07:34 PM
Jan 2015

My mom had pneumonia before Xmas. 8 days in the hospital, but she came home much, much, better. She's 81. My step dad had internal bleeding resulting from prostate cancer radiation treatments. HE is diabetic and the only thing left to try was hyperbaric oxygen treatments. Forty consecutive weekday treatments of 1 1/2 hrs each. It worked! HE hasn't passed blood in a year and a half now. He's 84.
Hope your dad beats this and you can enjoy a few more years with him.

 

TM99

(8,352 posts)
53. Hi Uben.
Mon Jan 5, 2015, 09:08 PM
Jan 2015

No, diabetes runs in mom's side of the family.

He was born with a congenital heart defect. Both his father and grandfather died in their late 40's from massive heart attacks because of the defect he inherited. But by the time he was in his 40's medicine had progressed. He received one of the first pig valve replacements and later had a human one put in. He has had a pacemaker for almost two decades and is on all kinds of blood thinners and other medications to control the congestive heart failure.

I think the suspicion is that the blood thinners are leading to bleeding somewhere in the GI tract. That coupled with CHF and then this pneumonia is an incredible strain on such an elderly man. The latest news is that they are doing an endoscopy to locate and then stop the bleeding. That, antibiotics for the pneumonia, and blood transfusions will hopefully given his body enough to live if he can.

Thankfully I did not inherit his condition. My health problems are related to a pit tumor that was removed and a gland that just got too damaged by treatments and surgery. But like father, now son, fights long term health problems, but it never stopped him, nor will it stop me from living life to the fullest as long as I can. My father has shown me that kind of strength my whole life. I love that about him.

I am very glad your family made it through. The flu this year has been particularly vicious. I am doing everything possible not to get it myself.

Thank you!

A Little Weird

(1,754 posts)
33. I'm sorry to hear about your dad
Mon Jan 5, 2015, 08:08 PM
Jan 2015

He sounds like a great man - your admiration and respect for him shine through in your writing. I hope he pulls through and the two of you can have more time together.

 

TM99

(8,352 posts)
56. Thank you.
Mon Jan 5, 2015, 09:12 PM
Jan 2015

I think I see him as a great man even if he was just a simple educator.

I have always been fortunate that my father has always respected me as much as I have him. Not all of my male friends can say that sadly. Even when he did not agree with my choices, like going into the Army, he fully supported me. I have faith for the lack of a better word that this is not his time. I will keep focused on that for as long as it takes for us to spend at least one more in person day together.

tavernier

(12,392 posts)
34. I lost my dad right before Christmas
Mon Jan 5, 2015, 08:13 PM
Jan 2015

So sorry. Stay strong and don't let your resistance down. After weeks of stress, this flu bug was not a welcome addition.



 

TM99

(8,352 posts)
57. Oh, I am so sorry to hear that taverneir.
Mon Jan 5, 2015, 09:14 PM
Jan 2015

I know how profoundly sad I feel today not knowing if he is dying or will live through the week and further still. I don't want to image that pain yet.

I have to watch my health and that is one reason why I am not able to just fly out tomorrow. I have not gotten the flu, and I am willfully determined not to get it this year. One of us men in the hospital is enough!

Thank you for your kind words.

calimary

(81,322 posts)
39. Hey friend - you've done a good thing here!
Mon Jan 5, 2015, 08:18 PM
Jan 2015

First of all, checking in - just anyway.

Second, this makes me think back to the night my mother died. My dad left years earlier, but she passed in late 2006. I could not share about my dad's death with DU - I wasn't even a member yet and had not even heard of DU back then. But I posted about my mom's passing that night.

I was OVERWHELMED. Literally. People here were just beyond the beyond. They were SO loving and sympathetic - and empathetic, too. First one, then a few more, then dozens - by the time the last person had posted, the count was somewhere around 300! People comforted me and embraced me and reassured me and mourned with me and kept me company. Helped keep me balanced through a very difficult week, what with the funeral and other mop-ups and all - arrangements it fell to ME to take care of and coordinate and oversee. I won't EVER forget that. Not possible! It was like an online wake. It meant The WORLD to me. THE WORLD!!! The companionship and consolation that flowed toward me washed over me like a tidal wave.

I will NEVER forget that. I will always feel a great love for DU and all DUers because of that. They're the family you never met and weren't actually related to. Stay close during this terrible and heavy time, dear TM99, and keep us close. Don't hesitate to share how you feel, what you're going through. Don't feel as though you're being annoying or unreasonably hogging attention. So many people here have had to face that same vigil - when an aging or very sick loved one is facing his or her last days. So many people here will, and can, and definitely do understand that special agony you're feeling now. So many of us have walked this path. And there's always somebody around to reply, if and when you need it. As our own Skittles once said - "someone's always here." Indeed, there are MANY pairs of strong and sturdy shoulders here for you to lean on - when you need it most.

Don't forget that.

DU will buoy you up.

 

TM99

(8,352 posts)
58. Hi Calimary.
Mon Jan 5, 2015, 09:17 PM
Jan 2015

What a wonderful reply, thank you.

I debated sharing this, and I am glad I did. I have been home all afternoon by myself. I needed some support even if just virtual.

This community is amazing. Hell, there can be some serious debates and even unkind words, and yet, what a group, eh?!

I will stay close and keep y'all updated. I need this support myself. I am pretty isolated due to my own health and my work requires boundaries where it just wouldn't be appropriate to share my feelings right now.

Thank you so much for just being here.

 

TM99

(8,352 posts)
74. I wish I could say I am dealing with it all with ease,
Thu Jan 8, 2015, 06:52 PM
Jan 2015

and that would be a convenient lie.

Pops had the second attempt at stemming the bleeding ulcer earlier and outside of needing more blood, he is at least still very stable. Now, if that doesn't work, and he must undergo a more extensive surgical procedure to stop the bleeding ulcer, then I just don't know if he is strong enough to survive that.

So I am up and down. I am sanguine and focusing on life and work here one moment, and then I am quite anxious, sad, and distracted another.

I do appreciate so much genuine concern and support I am getting here. That makes it somewhat easier. Thank you!

 

TM99

(8,352 posts)
63. Status update.
Tue Jan 6, 2015, 11:11 AM
Jan 2015

It was a rough night but there is good news.

The endoscopy found a bleeding ulcer - likely from the medication. That coupled with the pneumonia, CHF, mild kidney dysfunction, and his age was a deadly combo.

He has responded well to the blood transfusions. They have clamped off the ulcer and his blood pressure is slowly returning to normal. He is on high dosages of antibiotics. His cardiologist is also monitoring now his heart meds accordingly.

My mother felt confident enough to actually go back to the apartment to get some much needed rest so that is good.

He is not out of the woods yet and certainly has a long road to recovery if he can make it through the coming week. They are saying at this point that he will be in ICU for at least the remainder of this week. Then he will get a regular room for a week or more. After that they will send him to a rehab facility for a period of time, and then hopefully he can get back home to my mother.

Last year, he had a bad leg infection that required a short hospital stay and about two weeks in rehab so he and mom have experience with that facility and staff already. They were excellent, offered great rehab, and allowed constant family visits.

Emotionally, mom is doing a bit better. She has her minister there, and he has been a stalwart companion for the last 48 hours. I have met him, and he is a really good man - deeply spiritual and very empathic. My youngest sister is handling it well and will stay at the apartment with mom until he is at least in the regular room if not rehab.

My other sister is not. Sadly she is a DC politico, an alcoholic (not in recovery!) and rather estranged from our mother (also an alcoholic but in recovery). She does not agree with 'heroic' measures even though that is what both my parents want at this time. She tried to muscle in at the hospital but thankfully the minister neutralized that problem. I am planning on calling her later this morning to encourage her to back off and let mother deal with this as our father wants. Hopefully we won't argue too much.

Thank you for all of the replies - even from those I have on Ignore and can't read but do see. I have shared with my mother that so many here were thinking of us and praying for us. That really made her feel good. I will update as I know more. Hopefully he will make it through this so that we can move there and have some remaining time with him before he does die.

calimary

(81,322 posts)
66. That's VERY welcome news, TM99!
Tue Jan 6, 2015, 01:51 PM
Jan 2015

Great! I hope he gains strength and momentum. Many hugs to your mom. AND to your sister.

There's always family "stuff" at times like these. Kinda like the boxes you have to trip over while you're either putting up or taking down the Christmas decorations. Or the toys and shoes and sippy cups littered all over the floor when you have a small child. It's just "stuff." It happens with every family. I don't know one family that doesn't have at least a small amount of it. Part of the human condition, I think. Don't let it get to you. She's worrying because she wants your dad well and healthy, or perhaps she prays for safe passage. Either way, she wants what she feels is best for him at this moment - how-ever one defines that.

I remember reaching the point - with BOTH my aging and ailing parents AND my sweet dear mother-in-law as she was fading away. There came a moment when I didn't know what to pray for - healing and recovery? Or safe passage? I guess that's part of it, too. For me, by the time that realization came, they were each so far gone that it would have taken a Lourdes-type miracle to reverse that downward trend. For you? Maybe the happier turn of events? Hope so! You have such a wonderful and still loving and sustaining relationship with your parents - we shall all hope that can extend for as long as possible! What's sadder is when that kind of loving and no-strings-attached relationship is not there - or no longer there. Leaves a real dilemma in the soul. It's really sad to see as I have witnessed, personally.

So glad that's not your situation!!!

Much love and many hugs - to ALL of you!



 

TM99

(8,352 posts)
67. Hi Calimary
Tue Jan 6, 2015, 05:10 PM
Jan 2015

I am so happy right now. I just got a call from my sister who was able to let my father speak to me over the speaker phone. He could barely do anything other than mumble, but he sounded good for what he is still going through. And, you are right, even if he dies this week, or next month, or years from now, I am simply enjoying each and every experience with him and allowing him to let me know when enough is enough. For now, it is not for him, so I am right there beside him encouraging him to fight on.

I spoke to my sister, and we have always been very close. So big bro was able to ask her to back off without her feeling too unheard or pushed. That was a welcome thing today.

I remember my mother's father getting to that place you describe at the end of his life. I was not with my family as I was away at college, but I remember them telling me that they allowed the MD to administer morphine in such a way as to ease his suffering and allow the death he knew and was ready for was inevitable.

I appreciate your warm thoughts and hugs!

okasha

(11,573 posts)
68. Thank you for the updates.
Tue Jan 6, 2015, 07:08 PM
Jan 2015

This is such great news! May you and your dad have many, many good times together
before he takes his journey.

wryter2000

(46,051 posts)
64. This agnostic Episcopalian will pray for you and your family
Tue Jan 6, 2015, 12:26 PM
Jan 2015

I've lost both parents and my husband. All I can tell you is to be thankful for the time you've had with him. Not everyone is blessed with wonderful people in their lives.

I hope he recovers and you have many more years together.

 

TM99

(8,352 posts)
73. Thank you wrtyer2000.
Thu Jan 8, 2015, 06:48 PM
Jan 2015

That is a lot of loss that you have dealt with as well. It is precious the time we get with any and all that we love. I definitely agree with your thoughts on that.

carolinayellowdog

(3,247 posts)
69. parents and the cosmos
Tue Jan 6, 2015, 07:24 PM
Jan 2015

Dear TM99,

From one who has lost both parents but gained a different sense of family and heredity, some words of dubious wisdom. May your parents thrive for years to come. But whatever the outcome, this is one of those moments in life where the superficial aspects appear in proper perspective, and the deep and cosmic issues of what connects you to all life are highlighted.

When my dad died, I was in my early 40s, and almost instantly recognized I was destined to write about the history of his family. When my mother died, I was in my early 50s, and well along on the paternal family history. Both of those transitions stand out as points in time where the things that were really important in life were highlighted and more transitory issues were seen in context as not so important.

Most of us, I think, spend our 20s and 30s trying to fulfill some unique individual purpose. But in our 40s and 50s we discover how much the really deep existential issues of our existence are deeply embedded in generations of history.

At least, that is my experience as the son of a father who also exemplified the transitions of the 1960s re interracial marriage.

Blessings to you as you face these life issues.

CYD

 

TM99

(8,352 posts)
75. Thank you CYD.
Thu Jan 8, 2015, 07:07 PM
Jan 2015

Yes, I agree.

Even before my father's latest health set-backs, I have felt that pull to connect with my father's deep familial roots. It led me to explore La Regla Ocha and Palo Mayombe more intimately even though I am hardly a 'believer'.

But it is about a tradition passed on from generation to generation full of stories, songs, moral teachings, mystery, and life & death.

I am of the age that I know the time of both of my parent's passing is nigh. I can say I am making peace before it comes, and yet, I know I won't truly until I am grieving in my own way the end of one and the beginning of something else.

I still owe you a PM, so please forgive my tardiness. I have been frightfully busy and distracted. And I look forward to our next conversation as we do share much in common.

Thank you.

 

TM99

(8,352 posts)
76. Another update.
Sun Jan 18, 2015, 07:09 PM
Jan 2015

At my request given concerns by my family with several doctors on my father's team, their minister got involved & likely saved my father's life.

The second surgery on the ulcer was successful. He was unable to eat though due to some unknown throat issue. Several doctors simply suggested that it was time for him to die. It was not.

After a new team came on board, a CT determined there was no stroke. A barium study did determine that he had a epiglotal spasm that prevented him from swallowing. They expected it to resolve but due to the ulcer they could not give him a feeding tube. They instead gave him IV feeding. Within 2 days, he was strong enough to fight off the pneumonia. His ulcer surgery has held and there is no further bleeding. They have advised that the risk of stroke is lower than the risks of more ulcers so he is off the cumodin permanently.

He has been downgraded from critical and has left the ICU as of Friday. He will be in a rehab facility by the end of this week. He is stronger and very alert. His voice is returning as is his ability to swallow and now eat. We had a difficult but necessary family phone conference this morning about the fact that my mother is simply to old herself to care for my father even if he bounces back from this critical period. Thankfully they planned ahead for this and the senior apartments they live in has an elevated care assisted living facility attached via a separate wing. He will likely move into a single room there post rehab. My mother can literally walk through the second building and then through to the adjacent wing to see him any time they desire. I know he would love to go back to their apartment together but sadly, I fear that will not be a reality now.

My S.O. and I will plan at least a visit after the flu season dies down some in the coming months. While there we will also look for a place to live with more earnest. I have accepted that 'not this time' but 'soon' is coming. I want the chance for us to spend the last months or years together if we can make it happen.

I may not check in a for a short while. The level of poutrage on DU has become a bit much for me given what we are going through. I will touch base when I am able but starting Monday, I feel I need a break from this place.

Thanks y'all.

okasha

(11,573 posts)
77. That is such happy news, TM 99!
Sun Jan 18, 2015, 08:39 PM
Jan 2015

Thank you for the update.

Perhaps you could simply spend more time in this group. I've considered taking a sabbatical, but no way am I going to give up the Sunday LOLCats!

 

TM99

(8,352 posts)
79. Thank you Okasha. Yes, it is!
Sun Jan 18, 2015, 09:04 PM
Jan 2015

I need at least a week off until this Paris thing chills down and GD no longer allows posts on religion again.

I sit in a chair and listen to people rage, rant, cry, express, complain, etc. on a daily basis. They are hurting from wounds both real and perceived from their pasts. I do not mind my work at all. But I do need a break from it so I don't get burned out.

Coming here can be that break. But too often here recently that same rage, ranting, complaining, etc. is just becoming toxic. The pain, the hurt, and the rage are real and very often so justified. BUT...here at DU are allies. These are people who ultimately agree on social changes, economic realities, etc. Right now, however, people are just venting their spleens at those who were not the source of their hurt but are very easy targets.

I could take the time to trash threads, put more on Ignore, blah blah blah, or I can just take a short break until it simmers back down to a low boil. My emotional state is a bit fragile right now with all that my family is going through, and I just don't have the resources to not let it affect me. I am not even a religious believer, but I have gotten sick of the just venomous bile hurt and angry people are throwing around here at DU right now.

I'll be back but after I answer a few lingering to-do PM's, I need a short break.

okasha

(11,573 posts)
80. I understand.
Sun Jan 18, 2015, 09:24 PM
Jan 2015

I've gotten some more painting done while taking day long breaks from DU. And starting Tuesday, I'll be back in the ceramics studio, which will necessarily impose some limits on my time here.

 

hrmjustin

(71,265 posts)
78. My prayers and good thoughts for your father and all of your family.
Sun Jan 18, 2015, 08:44 PM
Jan 2015

If you need to talk we are here for you.

 

TM99

(8,352 posts)
81. Sad Update
Sat Jan 24, 2015, 06:59 PM
Jan 2015

I just received word from my sister that our father is not expected to live through the weekend.

I have some anger at some real and tangible incompetence on the part of the medical professionals my family has trusted since Christmas. His own PCP missed the pneumonia and said he was fine even though both he and my mother had the flu, and she had developed bronchitis. He went to the ER not two days later and they sent him home. Three days after that on New Years Eve, he once again entered the ER and will not leave alive from this hospital. Several MD's had already written him off as dead and with-held treatment which may actually have saved his life. He was delayed on antibiotics for the pneumonia, no pulmonary care was done(he needed the fluids suctioned from his lungs), there was an almost week long delay on a feeding tube, and the throat issues were dismissed as inconsequential.

Now he is simply too weak, too emaciated, and his lungs are too full for him to survive much longer. Thankfully, I got to have a longish talk with him over the phone just a few days ago. He shared those intimacies that a father shares with a child before he dies. My SO was fortunate enough to get to talk to him just this afternoon though he couldn't say much more than a muffled and mumbled I love you both.

I am not a very feeling sort of man. I always tended more to the thinking function, and I am very sad. I can't cry yet. I have so much work to do to help them at a distance. My own health issues will preclude me getting there but we have discussed as a family that we will travel for the memorial and interring of his ashes in a few months. I speak as if it is a done deal. I am not a man of faith or a believer in miracles. The probability of him rallying and surviving this is not very realistic at this point.

Thank you everyone for your supportive words, thoughts, and prayers for me and my family. I will resume posting again here after a needed little break. I will leave a final update when he passes.

 

hrmjustin

(71,265 posts)
83. I am so sorry TM99!
Sun Jan 25, 2015, 01:11 AM
Jan 2015

I am glad you got to speak to him a few days ago. I will keep all of you in my prayers.

So sorry.

 

TM99

(8,352 posts)
87. Thank you Justin.
Mon Jan 26, 2015, 09:22 PM
Jan 2015

My youngest sister sent me a photo of him. I know to some that might seem macabre, but I want to know how he is really so I can have some closure. Sadly, a family curse appears to still be in effect. Dating back generations on his side, no son has been home or present when his father died.

We sent a photo of us to her to show him and even if he can't speak, tonight we are going to speak to him and share our love.

 

rug

(82,333 posts)
84. Bereft.
Sun Jan 25, 2015, 11:13 AM
Jan 2015

When my daughter died I could do nothing, think nothing, standing emotionally naked.

Let your loved ones carry you through this. It is the one certain thing we can not influence.

I'm sorry this has come today.


 

TM99

(8,352 posts)
85. I am so sorry to hear that you lost your daughter Rug.
Mon Jan 26, 2015, 09:13 PM
Jan 2015

That is tragic.

Yes, I guess I am a bit emotionally numb right now. I just got the call that he was transferred to a local hospice late this afternoon. The end is nearing.

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