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In reply to the discussion: Little Star, my mom [View all]WinstonSmith4740
(3,063 posts)I lost my husband 10 years ago to cancer. He fought it the best he could for two years, but it was caused by a lousy gene he inherited so he was never even going to hit remission. The decision to stop treatment was his & I had to respect it. So I can tell you from experience...hospice workers are angels on earth. I don't know how they do it. The next period of time is going to be tough on you. She'll experience ups and downs. There will be a couple of days where you'll swear shes getting better. Keep those pain meds nearby. If they haven't given her morphine yet, they probably will. Don't be afraid to let her have it when she asks for it.
It's a good thing on so many levels you didn't let her go to an assisted care facility. Just as this virus was ramping up, my best friend's mom was hospitalized. A couple of days after she was sent to rehab, they told Susie she wouldn't be allowed in to visit her mom due to the virus concerns. She pulled her out that day.
I know you have a lot on your shoulders right now, but please take time for yourself. The exhaustion that will hit you when this is all over is normal, but in the meantime, remember to eat, get enough rest, and allow yourself to laugh. Pull as many stories out of your mom as you can...there's got to be SOME family legend she hasn't told you about yet. Maybe something her grandparents told her when she was a kid. Record her voice telling you.
The following poem was in the pamphlet the hospice people gave me. I have offered it to everyone I've come across since then who is on this journey. I hope it brings you as much comfort as it brought me. Message me if you want to talk.
https://www.bing.com/videos/search?q=Watch+Gone+From+My+Sight&ru=%2fvideos%2fsearch%3fq%3dWatch%2bGone%2bFrom%2bMy%2bSight%26FORM%3dVDMHRS&view=detail&mid=2A6054A60E9C150D7C822A6054A60E9C150D7C82&rvsmid=8FB58DF0D04EFEFC025E8FB58DF0D04EFEFC025E&FORM=VDMCNR