General Discussion

Diagnosed 2014 at 50 yo. I’m just getting worse. Multiple Sclerosis has been around too long there has to be a cure. I believe there is and it’s all hush hush. Too much $$ to be made for a cure. A cure means patients lost.

I was taking Gilenya first then stopped to start Ocrevus which I completely hated (infusion). I had bad progression from stopping G, like rebound. After Ocrevus fiasco now I take Mayzent/Siponimod which I wanted and had to wait for drug approval. It’s all such guessing game and the doctors don’t know as it’s all new stuff. We are all tested on. It’s like we are given stuff to hook us so we can’t stop. Treat the CAUSE not the SYMPTOMS. I’m worried about the virus killing me with ms. Then I think it might be best better off. It’s not even mentioned as a risk anywhere. Still I do all I can to not get Coronavirus. Thanks for reading my vent! We all need safe hugs.